Skip to main content

Uniting for a Cure 2024

A campaign by: Juliann and Andrew Edwards / $100,000 Goal
46 Donors
Raised Percent :
42.72%

0 Days to go
42.72% Funded
, United States (US)
Share this campaign:

This year marks 7 years since Lily’s diagnosis of Rett syndrome in 2017. This chapter in our journey has been the ultimate test of resiliency and navigating the healthcare system for rare disorders. Seizure management, accelerated onset of scoliosis and the knock-on effects of years in a wheelchair are compounded by an increase in height and weight. Needless to say, Andrew and I are doubling down our focus on mental and physical health to ensure we are giving her a high quality of life.

We know that Rett syndrome steals the voices of our loved ones, trapping vibrant minds in silent bodies. We remind you, our trusted network (family, friends and colleagues), that your donation brings us one step closer to groundbreaking research that could unlock their potential and restore their independence. We are on the precipice of a cure. What was once a dream, of a world where every child affected can express their thoughts, is within our reach.  Rett Syndrome Research Trust, our trusted partner, is advancing various pathways to feed the cure pipeline, leading to clinical trials and eventual eradication of Rett.

Silent angels like Lily and their families dream of laughter, mobility and ease of breath and this can be achieved with you leaning in with us. Your support can turn hope into reality for families fighting this devastating condition. Together, let’s ignite a future filled with possibility and joy for those who need it most.

Make a Donation

Donation Amount
Minimum amount is $ Maximum amount is $10000
$
Name Donation Amount Date
Susan Korn $5,000 November 04, 2024
Wes Ridlon $100 November 03, 2024
Jonathan Cochrane $250 November 03, 2024
Stephanie Paris $50 November 03, 2024
David Tacka $2,000 November 02, 2024
Anonymous $250 November 02, 2024
Anonymous $250 November 02, 2024
Benjamin Pickett $250 October 29, 2024
Patrick & Dana Maloney $1,000 October 28, 2024
Jenny Hageman $250 October 27, 2024
Kelvin Henderson $500 October 26, 2024
Julie & Don Moul $5,000 October 24, 2024
Anonymous $100 October 23, 2024
Paul Sari $50 October 22, 2024
Ruba ahmad $200 October 21, 2024
Caitlin Keliher $100 October 21, 2024
Alice Caponiti $200 October 20, 2024
Anonymous $20 October 20, 2024
Paul Murphy $1,000 October 20, 2024
Anonymous $50 October 20, 2024
Anonymous $50 October 19, 2024
Pamela Cowan $250 October 19, 2024
Anonymous $10,000 October 19, 2024
Jhansi Kandasamy $250 October 19, 2024
Anonymous $100 October 19, 2024
Andrew Carneross $100 October 19, 2024
Maureen Zawalick $500 October 19, 2024
Sara Driscoll $100 October 19, 2024
Sean Sexstone $1,000 October 19, 2024
Gabriel Ivory $20 October 19, 2024
Andrea Wagner $50 October 19, 2024
Gerard Aden $50 October 19, 2024
Manorma Kumar $50 October 18, 2024
Austin Knight $50 October 18, 2024
Robert OConnor $250 October 18, 2024
Derek Lyons $300 October 18, 2024
Nicole Olver $100 October 18, 2024
Carol Peterson $1,500 October 18, 2024
Stephanie Donner $200 October 18, 2024
Patrick Taylor $100 October 18, 2024
William Lauderdale $100 October 18, 2024
Andrew Zuckerman $500 October 18, 2024
Farah Benahmed $30 October 18, 2024
Joe Klecha $200 October 18, 2024
Matt Gerson $250 October 18, 2024
Juliann & Andrew Edwards $10,000 October 16, 2024