This year marks 7 years since Lily’s diagnosis of Rett syndrome in 2017. This chapter in our journey has been the ultimate test of resiliency and navigating the healthcare system for rare disorders. Seizure management, accelerated onset of scoliosis and the knock-on effects of years in a wheelchair are compounded by an increase in height and weight. Needless to say, Andrew and I are doubling down our focus on mental and physical health to ensure we are giving her a high quality of life.
We know that Rett syndrome steals the voices of our loved ones, trapping vibrant minds in silent bodies. We remind you, our trusted network (family, friends and colleagues), that your donation brings us one step closer to groundbreaking research that could unlock their potential and restore their independence. We are on the precipice of a cure. What was once a dream, of a world where every child affected can express their thoughts, is within our reach. Rett Syndrome Research Trust, our trusted partner, is advancing various pathways to feed the cure pipeline, leading to clinical trials and eventual eradication of Rett.
Silent angels like Lily and their families dream of laughter, mobility and ease of breath and this can be achieved with you leaning in with us. Your support can turn hope into reality for families fighting this devastating condition. Together, let’s ignite a future filled with possibility and joy for those who need it most.
| Name | Donation Amount | Date |
|---|---|---|
| Beau Boudreaux | $2,000 | December 16, 2024 |
| The Wilson Sonsini Foundation | $2,000 | December 13, 2024 |
| Chayo Sanders | $25 | December 08, 2024 |
| Anonymous | $500 | December 04, 2024 |
| Alanna Cabrero | $100 | December 04, 2024 |
| JOHN FOSTER | $100 | November 19, 2024 |
| Sumantra Ghosh | $1,000 | November 15, 2024 |
| Edward Halpin | $250 | November 10, 2024 |
| Rebecca Salvadore | $500 | November 09, 2024 |
| Susan Korn | $5,000 | November 04, 2024 |
| Wes Ridlon | $100 | November 03, 2024 |
| Jonathan Cochrane | $250 | November 03, 2024 |
| Stephanie Paris | $50 | November 03, 2024 |
| David Tacka | $2,000 | November 02, 2024 |
| Anonymous | $250 | November 02, 2024 |
| Anonymous | $250 | November 02, 2024 |
| Benjamin Pickett | $250 | October 29, 2024 |
| Patrick & Dana Maloney | $1,000 | October 28, 2024 |
| Jenny Hageman | $250 | October 27, 2024 |
| Kelvin Henderson | $500 | October 26, 2024 |
| Julie & Don Moul | $5,000 | October 24, 2024 |
| Anonymous | $100 | October 23, 2024 |
| Paul Sari | $50 | October 22, 2024 |
| Ruba ahmad | $200 | October 21, 2024 |
| Caitlin Keliher | $100 | October 21, 2024 |
| Alice Caponiti | $200 | October 20, 2024 |
| Anonymous | $20 | October 20, 2024 |
| Paul Murphy | $1,000 | October 20, 2024 |
| Anonymous | $50 | October 20, 2024 |
| Anonymous | $50 | October 19, 2024 |
| Pamela Cowan | $250 | October 19, 2024 |
| Anonymous | $10,000 | October 19, 2024 |
| Jhansi Kandasamy | $250 | October 19, 2024 |
| Anonymous | $100 | October 19, 2024 |
| Andrew Carneross | $100 | October 19, 2024 |
| Maureen Zawalick | $500 | October 19, 2024 |
| Sara Driscoll | $100 | October 19, 2024 |
| Sean Sexstone | $1,000 | October 19, 2024 |
| Gabriel Ivory | $20 | October 19, 2024 |
| Andrea Wagner | $50 | October 19, 2024 |
| Gerard Aden | $50 | October 19, 2024 |
| Manorma Kumar | $50 | October 18, 2024 |
| Austin Knight | $50 | October 18, 2024 |
| Robert OConnor | $250 | October 18, 2024 |
| Derek Lyons | $300 | October 18, 2024 |
| Nicole Olver | $100 | October 18, 2024 |
| Carol Peterson | $1,500 | October 18, 2024 |
| Stephanie Donner | $200 | October 18, 2024 |
| Patrick Taylor | $100 | October 18, 2024 |
| William Lauderdale | $100 | October 18, 2024 |
| Andrew Zuckerman | $500 | October 18, 2024 |
| Farah Benahmed | $30 | October 18, 2024 |
| Joe Klecha | $200 | October 18, 2024 |
| Matt Gerson | $250 | October 18, 2024 |
| Juliann & Andrew Edwards | $10,000 | October 16, 2024 |