Our Promise to Lily

A campaign by: Juliann & Andrew Edwards
29 Donors
$43,825.00 Raised
$75,000.00 Goal
Raised Percent :
58.43%

58.43% Funded
Share this campaign:

An inspirational quote came to mind when writing this year’s campaign update, a quote from Pastor Charles Swindoll. “We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude. I am convinced that life is 10% what happens to me and 90% of how I react to it.”

On February 13th 2017 our family was introduced to the devastating disorder, Rett Syndrome. We often struggle remembering the rollercoaster of emotions we felt that specific day, which may seem odd to most. After all it was a day our family was informed that our daughter will never speak, will slowly deteriorate in eating and all gross motor skills and that she will most likely have an abridged life. What we do remember, like it was yesterday, was how we responded to this news…Diving head first into a fight for a cure!

There are endless options we have as parents when news like this is given to us, especially about our children. Our response, our attitude and our ultimate promise is that… We will Never stop fighting, Never Stop raising awareness and funds. Never stop giving Lily the best quality of life we can give. To those new to the “Rett Community” you are not alone. Our promise is to you as well. We look forward to celebrating with you on that special day where our promise is fulfilled and Rett is eradicated.

Juliann & Andrew Edwards

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$10000

Lily's Voice

2 Donors

$5000

Lily's Hero

1 Donor

$1000

Lily's Star

11 Donors

$500

Lily's Champ

3 Donors

$250

Lily's Supporter

2 Donors

$100

Lily's Believer

7 Donors

$50

Lily's Hope

2 Donors

Name Donate Amount Date
Exelon Foundation $1,000.00 March 16, 2021
Dan O'Loughlin $500.00 February 23, 2021
Beau Boudreaux $3,000.00 December 30, 2020
Victoria Phillips $100.00 December 25, 2020
Dixie & Larry Edwards $1,000.00 December 23, 2020
Trisha Richardson $500.00 December 20, 2020
Anonymous $100.00 December 19, 2020
Carol Peterson $1,000.00 December 18, 2020
Anonymous $50.00 December 18, 2020
Joe Zwetolitz $250.00 December 18, 2020
Sahiba Chawla $25.00 December 17, 2020
Hadia & Ahmad Ghandour $1,000.00 December 16, 2020
Anonymous $100.00 December 15, 2020
Donald Sherrill $5,000.00 December 14, 2020
Bryan Hanson $1,000.00 December 11, 2020
Greg & Cheryl Wood $1,000.00 December 11, 2020
Anonymous $100.00 December 09, 2020
Susan Korn $250.00 December 09, 2020
Desiree Hamilton $100.00 December 08, 2020
Energy Solutions $2,500.00 December 08, 2020
George Vaughan $100.00 December 07, 2020
david hood $1,000.00 December 04, 2020
Robert Almon $2,500.00 December 04, 2020
Anonymous $100.00 December 04, 2020
Sean Sexstone $1,000.00 December 04, 2020
Tim Freeman $50.00 December 04, 2020
Anonymous $500.00 December 03, 2020
Unum Match $10,000.00 December 02, 2020
Juliann & Andrew Edwards $10,000.00 December 02, 2020