An inspirational quote came to mind when writing this year’s campaign update, a quote from Pastor Charles Swindoll. “We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude. I am convinced that life is 10% what happens to me and 90% of how I react to it.”
On February 13th 2017 our family was introduced to the devastating disorder, Rett Syndrome. We often struggle remembering the rollercoaster of emotions we felt that specific day, which may seem odd to most. After all it was a day our family was informed that our daughter will never speak, will slowly deteriorate in eating and all gross motor skills and that she will most likely have an abridged life. What we do remember, like it was yesterday, was how we responded to this news…Diving head first into a fight for a cure!
There are endless options we have as parents when news like this is given to us, especially about our children. Our response, our attitude and our ultimate promise is that… We will Never stop fighting, Never Stop raising awareness and funds. Never stop giving Lily the best quality of life we can give. To those new to the “Rett Community” you are not alone. Our promise is to you as well. We look forward to celebrating with you on that special day where our promise is fulfilled and Rett is eradicated.
Juliann & Andrew Edwards
| Name | Donation Amount | Date |
|---|---|---|
| Kristin Kimble | $100 | May 20, 2022 |
| John Ferrara | $250 | May 10, 2022 |
| Exelon Matching gifts Susan Korn and Bryan Hanson | $2,200 | April 13, 2022 |
| Carol Boyle | $25,000 | April 13, 2022 |
| Sahiba Gibson | $50 | March 30, 2022 |
| Robert Cushman | $100 | March 23, 2022 |
| Unum match of Ben Frelka | $500 | March 21, 2022 |
| Mike and Cindy Lackey | $1,000 | March 07, 2022 |
| Unum match | $10,000 | March 07, 2022 |
| Anonymous | $5,000 | March 05, 2022 |
| Susan Korn | $200 | December 24, 2021 |
| Brynn Moga | $50 | January 29, 2022 |
| Ben Frelka | $500 | January 16, 2022 |
| Greg & Cheryl Wood | $500 | December 31, 2021 |
| Anonymous | $50 | December 31, 2021 |
| Sean Sexstone | $1,000 | December 31, 2021 |
| Beau Boudreaux | $3,000 | December 30, 2021 |
| Greg Wood | $500 | December 28, 2021 |
| Dixie & Larry Edwards | $1,000 | December 22, 2021 |
| EnergySolutions Federal PAC | $2,500 | December 10, 2021 |
| Ahmad & Hadia Ghandour | $1,000 | December 08, 2021 |
| Carol & Steve Peterson | $500 | December 02, 2021 |
| Steve Horvath | $100 | December 02, 2021 |
| Russell Workman | $200 | December 01, 2021 |
| Trisha Richardson | $1,000 | November 29, 2021 |
| Peter P Sena III | $1,000 | November 29, 2021 |
| Todd Eiler | $100 | November 29, 2021 |
| Frederick Gerloff | $100 | November 24, 2021 |
| Vik Tathe | $250 | November 23, 2021 |
| Juliann & Andrew Edwards | $10,000 | November 17, 2021 |
| Julia Madden | $500 | October 23, 2021 |
| Don Sherrill | $7,000 | October 13, 2021 |
| Dixie & Larry Edwards | $100 | August 25, 2021 |
| Robbin Isaac | $500 | May 09, 2021 |
| Exelon Foundation | $1,000 | March 16, 2021 |
| Dan O'Loughlin | $500 | February 23, 2021 |
| Beau Boudreaux | $3,000 | December 30, 2020 |
| Victoria Phillips | $100 | December 25, 2020 |
| Dixie & Larry Edwards | $1,000 | December 23, 2020 |
| Trisha Richardson | $500 | December 20, 2020 |
| Anonymous | $100 | December 19, 2020 |
| Carol Peterson | $1,000 | December 18, 2020 |
| Anonymous | $50 | December 18, 2020 |
| Joe Zwetolitz | $250 | December 18, 2020 |
| Sahiba Chawla | $25 | December 17, 2020 |
| Hadia & Ahmad Ghandour | $1,000 | December 16, 2020 |
| Anonymous | $100 | December 15, 2020 |
| Donald Sherrill | $5,000 | December 14, 2020 |
| Bryan Hanson | $1,000 | December 11, 2020 |
| Greg & Cheryl Wood | $1,000 | December 11, 2020 |
| Anonymous | $100 | December 09, 2020 |
| Susan Korn | $250 | December 09, 2020 |
| Desiree Hamilton | $100 | December 08, 2020 |
| Energy Solutions | $2,500 | December 08, 2020 |
| George Vaughan | $100 | December 07, 2020 |
| david hood | $1,000 | December 04, 2020 |
| Robert Almon | $2,500 | December 04, 2020 |
| Anonymous | $100 | December 04, 2020 |
| Sean Sexstone | $1,000 | December 04, 2020 |
| Tim Freeman | $50 | December 04, 2020 |
| Anonymous | $500 | December 03, 2020 |
| Unum Match | $10,000 | December 02, 2020 |
| Juliann & Andrew Edwards | $10,000 | December 02, 2020 |