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Natalie’s Never Giving Up!

A campaign by: Molly & Adam Fleming
34 Donors
Raised Percent :

26.57% Funded
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Thank you for visiting our fundraising page to help fight Rett Syndrome!
Our Natalie is our whole world, to put it mildly. At the start of this campaign, she is not quite 2 and has been diagnosed with Rett Syndrome for less than 2 months – though she has been fighting it for much longer. Now, we want to do our part to fight alongside her. As she works tirelessly to regain skills she has lost or new skills that she continues to amaze us with, we will work toward the day that a cure is found. A day when she can wake up and not have to fight.
Because, for our sweet girl, every day is a battle. She is our warrior. She is the strongest person we know. Although she can’t walk on her own, she works every day to get stronger and to control her steps. We can’t wait for her to experience the freedom to choose where she wants to go – and just GO! We can see her frustration, and it breaks our hearts.
Although she can’t speak, we know she has so much to share. She constantly babbles, chatters and throws in the occasional yell. When she is able to repeat a word she’s just heard, the joy on her face is electrifying. She’s working to learn to use eyegaze communication, and we are so excited that she’ll be able to communicate with us. But the real dream is to hear our sweet girl tell us, in her own, unique voice, exactly what is on her mind.
Although Natalie’s hands don’t always do what she wants or needs, she pushes herself to use them purposefully. She loves pictures and art, and we look forward to the day that she will be able to hold a crayon or a paintbrush and create her own.
But Rett does not define Natalie. It is just a part of her amazing being.
She loves (LOVES) music – her favorite song, “Can’t Stop the Feeling,” can turn even the most dire moment into a dance party.
She loves her dogs, Alice and Rory, and will reach out to touch them – giggling as they stick their cold, wet noses in her face.
She loves the outdoors, whether it’s a walk in her wagon, a ride in her trailer (pulled behind mom’s bike), a canoe or boat ride, or a hike – she’s (literally) a happy camper.
She loves the beach, and just recently stood, independently, for the first time ever while enjoying the sand between her toes. Her biggest smiles to date were captured while visiting her family in North Carolina – watching the waves in the ocean, letting them wash over her feet and bury her toes in soft sand.
And speaking of family, Natalie sure loves hers. She lights up when she sees them, gives them the sweetest hugs that tell us, when she can’t, how much she loves them. We are so lucky to have the family we have. They have shown such amazing support as we come to terms with Natalie’s diagnosis. We would be lost without them.
And last – Natalie loves Flamingos! Her trusty sidekick, Mingo, is almost always within arm’s reach – day or night – whether she’s at therapy, school, a doctor’s appointment, or just lounging in the hammock – Mingo is always there.
Natalie is never giving up, and neither are we. We hope that you will consider joining us in our fight to Reverse Rett.
Molly & Adam Fleming

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Donation Amount
Minimum amount is $ Maximum amount is $100000
Name Donation Amount Date
Daniel Wigton $200 July 22, 2023
Cindy Shay $500 December 30, 2022
Andria Parrott $150 December 30, 2022
Margaret Ruley $100 October 07, 2022
Gary Newell $10,000 July 03, 2022
Sallie Denner $500 December 31, 2021
Patrick McGaughy $500 December 25, 2021
Carol Cimino $100 December 23, 2021
Lorraine Bahan $25 November 26, 2021
Anonymous $500 November 04, 2021
Jacqui Vona $25 October 09, 2021
Nicholas Snyder $25 July 17, 2021
Trevor Neth $50 June 15, 2021
Anonymous $500 March 12, 2021
Erin Barrett $100 January 01, 2021
Michael (Carol) Cimino $100 December 26, 2020
Stephanie Jones $50 December 02, 2020
Kathleen Jordan $25 November 16, 2020
Anonymous $500 October 27, 2020
Karen Ruetty $100 October 05, 2020
Meghan Pruitt $25 October 02, 2020
OneHope Foundation $772 September 18, 2020
Anonymous $10 September 01, 2020
Kim Jackson $350 August 24, 2020
Kate Kerscher $50 August 05, 2020
Stephanie Congrove $100 August 04, 2020
stephanie jones $100 August 03, 2020
Jessica Johnson $25 August 01, 2020
Tamara Schmidt $25 July 30, 2020
Erin Barrewtt $100 July 30, 2020
Anonymous $25 July 27, 2020
Sue Nason $200 July 14, 2020
Theresa Geist $100 July 12, 2020
Kenneth Chu $10 December 27, 2019