My beautiful granddaughter, Lily, 10, has Rett Syndrome, a devastating rare disease caused by a mutated gene. Since the age of two, she’s been unable to walk, talk or feed herself. Yet with the help of a special computer, she tested into fifth grade. Her devoted dog is named “Kaya.”
Besides everyday tasks, and too many hospital visits, Devin and Malin frequently take Lily skiing, surfing, horseback riding, swimming, and to a special camp, all facilitated by extraordinary volunteers and staff. Lily loves these outings. We do too, so palpable is her joy.
Will Lily ever be able to ski on her own? Read a book? Surf?
I’d be happy if she could feed herself a bite of cereal someday.
Or turn the pages of a book.
We know that someday, there will be a cure. Other single-gene diseases have been cured. May the bounty of the earth, and the best minds in our country, yield a Rett Syndrome cure, soon.
The Rett Syndrome Research Trust is a 501(c)(3) charity single-mindedly dedicated to finding a cure for Lily and the 350,000 other girls and women suffering from the disease. Since 2008, the Trust has given more than $85 million to physicians and scientists seeking a Rett cure. 94% of every dollar you donate supports the goal of finding a cure for Rett. That’s an excellent record.
With special thanks to my family:
William Payne; Malin Delling, Devin Fromm & Lily Fromm; Allison Fromm; Calvin Laboon; Jay & Colleen McKenna; Ed & Patsy McKenna; Marian McKenna
2 Donors
0 Donors
6 Donors
11 Donors
37 Donors
| Name | Donation Amount | Date |
|---|---|---|
| Tom/Donna Timcho | $250 | January 14, 2026 |
| Richard McKenna | $50 | January 09, 2026 |
| Marian McKenna | $1,000 | January 02, 2026 |
| Mary Anne Sharer | $500 | January 02, 2026 |
| Daniel & Margaret Curtin | $100 | December 31, 2025 |
| Caryle Murphy | $100 | December 31, 2025 |
| Betsy Momich | $75 | December 29, 2025 |
| Mary & Peter Schiafly | $300 | December 24, 2025 |
| Constance Bentzen | $250 | December 23, 2025 |
| Kristin Davitt | $500 | December 22, 2025 |
| David Ehrenwerth | $100 | December 20, 2025 |
| Ann and Tim Slavish | $100 | December 20, 2025 |
| Edward & Joyce Ging | $20,000 | December 19, 2025 |
| Gracia Sheptak | $200 | December 18, 2025 |
| Roberta Lucchino | $100 | December 18, 2025 |
| Howard Bruschi | $500 | December 18, 2025 |
| Gail Brown | $50 | December 18, 2025 |
| Karen Kelley | $250 | December 17, 2025 |
| Karl Haglund | $50 | December 17, 2025 |
| Edward Feinstein | $300 | December 11, 2025 |
| Barmak Behdadnia | $250 | December 11, 2025 |
| Regan Fetterolf | $300 | December 11, 2025 |
| Carol Bratt | $400 | December 11, 2025 |
| Susanne Rielly | $100 | December 11, 2025 |
| Annie & Joe Schlafly | $500 | December 11, 2025 |
| Marie Hinchliffe | $100 | December 03, 2025 |
| Yaimi Azua Vega | $100 | December 08, 2025 |
| Kristen Hatch | $50 | December 06, 2025 |
| Marianne Sarrazin | $250 | December 06, 2025 |
| James S & Elizabeth A Brown Fund | $1,500 | December 04, 2025 |
| Marc & Donna Rosenwasser | $100 | December 04, 2025 |
| Susan Livingston | $100 | December 04, 2025 |
| Edward & Judy Walter | $250 | December 04, 2025 |
| Grant & Lee Friday | $100 | December 04, 2025 |
| Richard & Carol Heppner | $100 | December 04, 2025 |
| Steven Goodman | $100 | December 04, 2025 |
| Jay & Colleen McKenna | $1,000 | December 04, 2025 |
| Herschel & Roslyn Segall | $100 | December 04, 2025 |
| Marianne Novy | $100 | December 04, 2025 |
| Susan Herald | $250 | December 04, 2025 |
| Peggy Runnette | $100 | December 04, 2025 |
| Thomas Friday | $50 | December 04, 2025 |
| Paul & Marcia Whitehead | $600 | December 04, 2025 |
| Howard Voigt | $50 | December 04, 2025 |
| Cathy & Rick Pieper | $500 | December 04, 2025 |
| Arleen Wagner | $250 | December 04, 2025 |
| Julia Ondako | $300 | December 04, 2025 |
| David & Lynnae Evans | $250 | December 04, 2025 |
| Anthony Bucci | $100 | December 04, 2025 |
| Annie Kudlac & Bernard McKenna | $25 | December 04, 2025 |
| Paul Cohen | $25 | December 04, 2025 |
| Laura Voigt | $100 | December 04, 2025 |
| Donald Solow | $50 | December 04, 2025 |
| Lynn Detrick | $150 | December 04, 2025 |
| Rosemary & Bill Getsie | $200 | December 04, 2025 |
| Helen & Stephen Casey | $500 | December 04, 2025 |
| Marleen Pennison | $250 | December 04, 2025 |
| Jeanne & Richard Berdik | $50 | December 04, 2025 |
| Elaine Dullea | $100 | December 04, 2025 |
| Margo & Jay Troutman | $100 | December 04, 2025 |
| Sheila Fine | $300 | December 04, 2025 |
| Gregory & Gail Harbaugh | $250 | December 04, 2025 |
| David & Malvina Epstein | $50 | December 04, 2025 |
| Paul & Penny McKenna | $1,000 | December 04, 2025 |
| John & Joan Ewing | $150 | December 04, 2025 |
| Thomas & Joan Bigley | $1,000 | December 04, 2025 |
| Barbara Milton | $125 | December 04, 2025 |
| Edward Ifft | $200 | December 04, 2025 |
| Harry & Mary Wagner | $250 | December 04, 2025 |
| James Fanning | $200 | December 04, 2025 |
| Kathleen Gavigan & Bill Dixon | $1,000 | December 04, 2025 |
| Virginia & Bruce Fickman | $100 | December 04, 2025 |
| Phyllis & Herb Goldberg | $25 | December 04, 2025 |
| Matthew Rudzki | $100 | December 04, 2025 |
| Charles Snyder | $300 | December 04, 2025 |
| Susan Magovern | $250 | December 04, 2025 |
| Carl & Mary Lou Gatewood | $100 | December 04, 2025 |
| Jane & Kearney McNeil | $250 | December 04, 2025 |
| Michael Lurey | $300 | December 04, 2025 |
| Mary Maher | $200 | December 04, 2025 |
| Jim Crisanti | $500 | December 04, 2025 |
| Bill & Lisa Donovan | $100 | December 04, 2025 |
| Ryan McKenna | $500 | December 02, 2025 |
| Margaret Mooney | $100 | December 02, 2025 |
| Michael Feinberg | $100 | November 28, 2025 |
| Louis DiNardo | $100 | November 21, 2025 |
| Karl Fromm | $250 | November 18, 2025 |
| Rose Salata | $100 | November 15, 2025 |
| Lindsey Herman | $100 | November 09, 2025 |
| Dick and Christy Findlan | $250 | November 08, 2025 |
| Jane Waller | $250 | November 07, 2025 |
| Joseph Stuligross | $250 | November 07, 2025 |
| Jane McNeil | $250 | November 05, 2025 |
| jacqueline spagiare | $100 | November 05, 2025 |
| Carol Robinson | $300 | November 05, 2025 |
| Stan Shayer | $250 | November 04, 2025 |
| judy esman | $300 | November 04, 2025 |
| Berenice Wilkinson | $100 | November 04, 2025 |
| Dolly Gee | $250 | November 04, 2025 |
| Chris Parker | $500 | November 04, 2025 |
| Bill & Barbara Henninger | $100 | November 03, 2025 |
| Lonnie & Paul Carey | $100 | November 03, 2025 |
| Liza Brown | $100 | November 03, 2025 |
| Michele Bender | $100 | November 03, 2025 |
| Elaine McKenna | $25 | November 03, 2025 |
| John & Janet Conomos | $250 | November 03, 2025 |
| Rita Bostick | $100 | November 03, 2025 |
| Antonia Macpherson | $250 | November 03, 2025 |
| Elizabeth Weaver | $250 | November 03, 2025 |
| Edwin Strassburger | $250 | November 03, 2025 |
| mary ann stuart-templeton | $250 | November 02, 2025 |
| Kathleen Laboon | $50 | November 02, 2025 |
| Ronald Dean | $250 | November 02, 2025 |
| NAOMI HERMAN | $36 | November 02, 2025 |
| Eugene Conti | $100 | November 02, 2025 |
| Bernard Newman | $25 | November 02, 2025 |
| Ann Fromm & Bill Payne | $5,000 | October 29, 2025 |
| Ericka & Jordan Strassburger | $500 | October 28, 2025 |