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A Cure for Ava

A campaign by: Susan Robenalt & Cindy Watson / $100,000 Goal
190 Donors
Raised Percent :
64.40%

64.40% Funded
, United States (US)
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Who is Ava? On most days, she is a cackling, wobbly walker who loves being outside and splashing in the bathtub. Ava can’t express her feelings or say the words “I love you”. Instead, her personality has to shine through stares, screeches, or hand reaches.

It doesn’t have to be this way.

In September 2021, Bryan and Lindsey received the official diagnosis that Ava has Rett syndrome. Quickly, the vision for the life they had imagined with her was dramatically altered. We learned she will probably never talk, and that she will require lifelong care. Her basic needs may change as certain skills she has acquired may go away. Rett keeps you on your toes like that.

Having Rett Syndrome has been described as having symptoms of Autism, Cerebral Palsy, and Epilepsy.  Families affected by Rett syndrome never know what tomorrow might bring and live every day for the small victories – an unsteady step, an accidental nose pick (yes we cheered for it!), or the connection made in a single moment of the day where you can tell exactly what she wants.

We feel very fortunate that Ava began walking independently in October and continues to show everyone that she’s not letting up. Along the way, she’s found ways to adapt with her lack of skills. Before walking, she found her independence by speeding down the street on her toy airplane.

But all of her victories haven’t been without hardships. Ava breaks down in fits of frustration when she can’t communicate what she wants. She has visited more specialist doctors in her two years than most of us have in our lifetime.

There is light at the end of the tunnel. Research is truly on the cusp of finding a cure for this horrible syndrome. That’s why we have partnered with Rett Syndrome Research Trust, and hope you might join us in supporting this cause. Every dollar donated goes to the research and gives Ava a better chance at living a life she deserves.

We encourage everyone reading to learn more on this website’s homepage about the recent breakthroughs in science related to Rett syndrome.

We are all truly grateful for your support! It means the world to us because Ava is our world.

Love,

Susan Robenalt and Cindy Watson (Grandmothers to Ava)

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Minimum amount is $ Maximum amount is $10000
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Donation Levels

$5000

Ava's Superhero

2 Donors

$2500

Ava's Hero

3 Donors

$1000

Ava's Champion

22 Donors

$500

Ava's Supporter

17 Donors

$100

Ava's Advocate

114 Donors

Name Donation Amount Date
Maureen & Tom Pedrick $1,000.00 September 07, 2022
Amy Fitzgibbons $100.00 August 17, 2022
LPL Matching gift Susan Robenalt $500.00 August 09, 2022
LPL Matching gift Barbara Meola $100.00 August 09, 2022
Sharon Casey $1,000.00 August 05, 2022
Judy Hoover $150.00 July 13, 2022
Kevin Falk $1,500.00 July 12, 2022
Anonymous $100.00 June 27, 2022
Sunny Bright $100.00 June 14, 2022
Paul Gale $1,000.00 June 12, 2022
Alene Hardin $100.00 June 05, 2022
Kim OConnell $200.00 June 04, 2022
Sandra Hipsher $50.00 June 02, 2022
Carol Merrill $100.00 June 01, 2022
Allyson Hillyard $100.00 May 29, 2022
Nancy Brackmann $100.00 May 28, 2022
Barbara Meola $100.00 May 27, 2022
Lee Hays $100.00 May 25, 2022
Susan Miller $100.00 May 24, 2022
Nancy Longenbaker $200.00 May 22, 2022
Michael O’Connell $500.00 May 19, 2022
Rod & Wendee Henry $40.00 May 16, 2022
Jeff Applewhite $100.00 May 10, 2022
Wanda & Wayne Adams $1,500.00 May 03, 2022
Julie Klawon $100.00 April 18, 2022
Doreen & Kevin Kerr $100.00 April 15, 2022
Sandra Riehl $100.00 April 15, 2022
Dublin A.M. Rotary Club $3,000.00 April 01, 2022
Susan & David Robenalt $5,000.00 April 01, 2022
Barbara Thompson $100.00 March 16, 2022
Pam Mennella $100.00 March 15, 2022
Cynthia Watson $2,500.00 March 08, 2022
Anonymous $100.00 March 03, 2022
John & Sostella McGaw $50.00 March 02, 2022
Patti Hays Brooks $50.00 February 27, 2022
Anonymous $50.00 February 27, 2022
Anonymous $50.00 February 27, 2022
Marilyn & David Ryerson $1,000.00 February 25, 2022
Cameron and Lynley Geer $250.00 February 23, 2022
Theresa Wilkins $50.00 February 23, 2022
Julie Cullen $50.00 February 22, 2022
Dublin A.M. Rotary Club $231.00 February 16, 2022
Arlyn Widenhoefer $50.00 February 16, 2022
Kimberlee Kiehl $100.00 February 11, 2022
Anonymous $50.00 February 07, 2022
Abbie Krekel $500.00 February 05, 2022
Tommy Pfeiffer $100.00 February 05, 2022
Anonymous $50.00 February 05, 2022
Trent Bird $20.00 February 05, 2022
Robert Hays $1,000.00 February 05, 2022
Steve Schwanekamp $100.00 February 04, 2022
Leon & Beverly Mascofff $50.00 February 04, 2022
Lois Sprick $100.00 February 03, 2022
Amanda Watson $50.00 January 31, 2022
Anonymous $130.00 January 30, 2022
Nancy Balthaser $100.00 January 28, 2022
Richard Poach $100.00 January 26, 2022
Joseph Mowad $100.00 January 24, 2022
Karen Wagenbrenner $100.00 January 21, 2022
Anonymous $250.00 January 21, 2022
GERALDINE MACDUFFIE $100.00 January 20, 2022
Christopher Amatos $1,000.00 January 19, 2022
JOHN Kendall $100.00 January 17, 2022
Kevin Falk $1,000.00 January 11, 2022
Sheldon Rohde $100.00 January 04, 2022
Caroline Kline $300.00 January 04, 2022
Matthew Powell $100.00 January 03, 2022
Deborah McCann $100.00 January 02, 2022
Rae Ortega $100.00 December 31, 2021
Bill & Susan Shepard $100.00 December 29, 2021
Harriet & Chicka Nagata $100.00 December 24, 2021
Allison Pressley $100.00 December 18, 2021
Jordan Schram $100.00 December 17, 2021
Jennifer Landrum $100.00 December 17, 2021
Violet & Jordan Anderson $500.00 December 16, 2021
Yolanda Nagata $200.00 December 16, 2021
Juanita Rohde $1,000.00 December 16, 2021
Michael Lehr $100.00 December 13, 2021
Roger Williams $200.00 December 12, 2021
Sarah Walker $100.00 December 11, 2021
John Schumacher $1,000.00 December 10, 2021
Hannah Hays $250.00 December 09, 2021
Carrie Kiesel $100.00 December 08, 2021
Gene McMahon $100.00 December 08, 2021
LPL Foundation $500.00 December 08, 2021
Virginia & Donald Smith $100.00 December 08, 2021
Craig Offield $100.00 December 08, 2021
Wes Hardin $100.00 December 07, 2021
Kortney Cervantes $300.00 December 07, 2021
Anonymous $100.00 December 07, 2021
Henry Voorhees $1,000.00 December 06, 2021
Arthur Goodell $100.00 December 06, 2021
Deborah Archer $100.00 December 05, 2021
Rachel Hays $30.00 December 04, 2021
Cynthia Watson $2,500.00 December 03, 2021
Donald and Barbara Gier Sr. $500.00 December 02, 2021
Jennifer Gale $500.00 December 02, 2021
Janet Clampitt $100.00 December 02, 2021
Anonymous $50.00 December 01, 2021
Anonymous $1,000.00 December 01, 2021
Anonymous $100.00 December 01, 2021
Anonymous $25.00 December 01, 2021
Anonymous $100.00 November 30, 2021
Linda Guyton $100.00 November 30, 2021
Donna Naylor $100.00 November 30, 2021
Karen Shively $100.00 November 30, 2021
William Dobbertin $100.00 November 30, 2021
Carol Merrill $500.00 November 30, 2021
Christyne Nasbe $500.00 November 30, 2021
Brittany Watson $100.00 November 29, 2021
Robert Watson $1,000.00 November 29, 2021
Nick Immell $100.00 November 29, 2021
Dianna McCauley $100.00 November 28, 2021
Franklin Prout $100.00 November 27, 2021
Charles Kachulis $100.00 November 25, 2021
Richard Cheffer $1,000.00 November 25, 2021
Jeffrey Concepcion $1,000.00 November 22, 2021
Richard Quattrone $100.00 November 22, 2021
Roger & Vianne Stegmaier $500.00 November 21, 2021
Anonymous $500.00 November 21, 2021
Kristen Shepherd $300.00 November 21, 2021
Nate Ferguson $100.00 November 21, 2021
Lindsay Ratai $100.00 November 21, 2021
Molly Hampton $50.00 November 20, 2021
Kristin McLean $100.00 November 20, 2021
Caroline Revell $500.00 November 19, 2021
Richard Wight $100.00 November 19, 2021
Sandra Hipsher $100.00 November 19, 2021
Shannon ANDERSON $25.00 November 19, 2021
Amy Barnhart $100.00 November 19, 2021
Kelsey Lenzmeier $100.00 November 19, 2021
Alene Hardin $500.00 November 19, 2021
Colleen Henderson $1,000.00 November 19, 2021
Jeffrey Linebaugh $100.00 November 19, 2021
John Hall $50.00 November 19, 2021
elizabeth johnson $50.00 November 19, 2021
Paul Bramall $500.00 November 19, 2021
Anonymous $50.00 November 19, 2021
Anonymous $500.00 November 19, 2021
John Van Cleaf $100.00 November 19, 2021
Scott Banning $50.00 November 19, 2021
Lee Flagg $100.00 November 19, 2021
Eric Snyder $100.00 November 19, 2021
Armen Kenareki $200.00 November 19, 2021
Terri and Duane Long $100.00 November 19, 2021
Todd Shipman $300.00 November 19, 2021
Howard Bernstein $100.00 November 19, 2021
Kevin Pickering $100.00 November 19, 2021
Kristen Odenbach $100.00 November 19, 2021
Pamela Kirk $100.00 November 19, 2021
Chelsey Luvin $75.00 November 19, 2021
William Heagy $100.00 November 19, 2021
Sean O’Leary $100.00 November 19, 2021
Justin Dahan $100.00 November 19, 2021
Donna Roll $50.00 November 19, 2021
Anonymous $100.00 November 19, 2021
Byrne Tim $100.00 November 19, 2021
Anonymous $50.00 November 18, 2021
Seth Richart $20.00 November 18, 2021
Carrie Hays $50.00 November 18, 2021
Mandy Patrick $100.00 November 18, 2021
Thomas Marotta $500.00 November 18, 2021
Dave Brown $100.00 November 18, 2021
Mounir Siblini $100.00 November 18, 2021
Karen Zelevinsky $100.00 November 18, 2021
Gabe Turcsanski $25.00 November 18, 2021
Anonymous $1,000.00 November 18, 2021
Christopher Thompson $1,000.00 November 18, 2021
Anonymous $500.00 November 18, 2021
Anonymous $250.00 November 18, 2021
Anonymous $100.00 November 18, 2021
Anonymous $100.00 November 18, 2021
Anonymous $100.00 November 18, 2021
Mike Woodbury $50.00 November 18, 2021
Ben Miller $25.00 November 18, 2021
Tim Leonard $100.00 November 18, 2021
William McReynolds $100.00 November 18, 2021
Kevin Maceri $100.00 November 18, 2021
Kevin Meyn $100.00 November 18, 2021
Besecker David $100.00 November 18, 2021
Steven Boyd $100.00 November 18, 2021
James Arena $100.00 November 18, 2021
Karlyn Kagy $100.00 November 18, 2021
Anonymous $1,000.00 November 18, 2021
Anonymous $100.00 November 18, 2021
Anonymous $100.00 November 17, 2021
Anonymous $1,000.00 November 17, 2021
Dorcas Briscoe $1,000.00 November 17, 2021
Susan & David Robenalt $5,000.00 November 17, 2021