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In Loving Memory of Lorenzo

A campaign by: Lorenzo's Family
218 Donors
Raised Percent :
94.73%

94.73% Funded
, Italy
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IN LOVING MEMORY OF LORENZO

MAY 18, 2009 – JANUARY 25, 2024

We welcomed Lorenzo into the world in May, 2009.  He was a perfect addition to our American/Italian family.  Shortly after his birth we realized that Lorenzo was not thriving as his big sister did, and so began our year long search to discover why Lorenzo was not growing, reaching milestones and often sick with respiratory and digestive issues.

After traveling to countless specialists, Lorenzo was finally diagnosed in June of 2010 at “La Nostra Famiglia” hospital in Italy.  His diagnosis was devastating; a rare genetic condition called MECP2 Duplication Syndrome.  The symptoms and prognosis of this syndrome are heartbreaking with a shortened life expectancy.  We were crushed.

We were told that there was not much information about MECP2 Duplication Syndrome.  It was said that we should be prepared for the worst.  Lorenzo would probably never walk or communicate and that he would be very ill.

With this in mind, we decided to pick up the pieces and give Lorenzo the opportunity to reach his potential, whatever that may be.  With great support from his doctors and therapists, Lorenzo began intensive therapies.  Lorenzo beat all odds against him in his progress.  He began walking independently at the age of 5 years.  He was non-verbal but was very expressive.  He looked at you with a sparkle in his eye, took your hand and walked with you.   He guided you to where he wanted to go and made you understand him, all without words.  He was very smart and knew what he wanted. Lorenzo loved music and he danced to it, he enjoyed being with other children and he loved school. He loved his sister but if she tried to hug him, he pushed her away. He loved food and he would eat anything, he was always positive, he liked when people smiled at him, and he ignored people who ignored him. He brightened the darkest day with his smile, and he was a star in his sister’s eyes.  Lorenzo’s body betrayed him, it did not allow him to communicate as he wished, and it prevented him from running on the playground with his classmates. Doctors were convinced that Lorenzo understood and had the ability to learn, but he was trapped in his body.

In the last years, Lorenzo developed epilepsy but kept fighting like the warrior he was. His life became more difficult, but he never gave up and he continued to travel the world with friends and family. His untimely passing came as a shock and was unexpected at the end of a beautiful day spent at school with his friends and after a joyful evening at home with his family.

The ability to help children with MECP2 Duplication Syndrome is within reach.  The research currently underway is very promising and will be able to prevent children like Lorenzo from the onset of devastating seizures, illness, and premature death.  The drug therapies being studied will restore children’s brain function, possibly restore their speech, and prevent dangerous respiratory infections.  While we were not able to save Lorenzo, it is still our mission to obliterate MECP2 Duplication Syndrome (MDS). There are still many children that can be saved. Only with funding can we find a cure – therefore in lieu of flowers in honor of Lorenzo’s passing, please consider donating in support of MDS research in his name.

Lorenzo’s family

Suzi, Sofia and Alessandro

 

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Name Donation Amount Date
Kelly Henderson $100 February 19, 2024
Sarah Hudson $30 February 17, 2024
Sofia Centrone $100 February 12, 2024
Meredith Coronato $150 February 12, 2024
Viola e Giorgio Bresciani $100 February 12, 2024
Viola e Giorgio Bresciani $0 February 12, 2024
Moe Talal $300 February 12, 2024
Michael Held $100 February 11, 2024
Massimo Romano' $50 February 10, 2024
Deniz Botkin $250 February 09, 2024
HANIFA AYECHE BANNWARTH $50 February 08, 2024
David Hay $150 February 07, 2024
Sandra Osullivan $200 February 07, 2024
Richard Yeates $500 February 06, 2024
Sarah Jarvis $100 February 06, 2024
Endres Jerome $100 February 06, 2024
Valentina Fanni $100 February 05, 2024
Alexandra Moldovan $50 February 05, 2024
Chantal GIER $100 February 05, 2024
Heike Hangebruch $30 February 05, 2024
Andrea Kilin $25 February 05, 2024
Terry Lenhardt $500 February 04, 2024
Allyson Rhatigan $100 February 04, 2024
Heike von der Heyden $100 February 04, 2024
Gert Van Erum $500 February 04, 2024
Steelcase Exeuctive Team $500 February 04, 2024
Christian Gnam $100 February 03, 2024
Michiel Butzelaar $100 February 02, 2024
Maria Crișan $50 February 02, 2024
Stepan Velensky $30 February 02, 2024
Joel Benghiat $150 February 02, 2024
Chris Krijthe $20 February 02, 2024
Lars Schweizer $30 February 01, 2024
Andreas Ulrich $30 February 01, 2024
Carol Rowe $300 February 01, 2024
Katharina Potts $30 February 01, 2024
Reginella Castelli $100 February 01, 2024
Daniela Marcuccio $50 February 01, 2024
Kim Dabbs $50 February 01, 2024
Anonymous $50 January 31, 2024
David Sylvester $100 January 31, 2024
Anthony Constable $50 January 31, 2024
Marc Nicolaisen $88 January 31, 2024
Turker Vardar $50 January 31, 2024
Rachel Wilcox $25 January 30, 2024
Penelope, Priscilla, Karen, Giacomo $50 January 30, 2024
Samuel Janaud $50 January 30, 2024
Page and Joe Plowman $200 January 30, 2024
Charis Philippou $50 January 30, 2024
Susan Conroy $200 January 30, 2024
Ruth Howard $100 January 30, 2024
Page and Joe Plowman $0 January 30, 2024
Michelle Woods $100 January 30, 2024
Meis Kadhem $30 January 30, 2024
Meis Kadhem $30 January 30, 2024
Angelina Züfle $50 January 30, 2024
Valérie - Paloma - Álvaro - Teo $100 January 30, 2024
Justin Van Roekel $100 January 30, 2024
Anonymous $200 January 30, 2024
HELENA SANCHEZ $55 January 30, 2024
Michaela and Christian Neubauer $100 January 30, 2024
Carlotta Pellegrini $100 January 30, 2024
Joerg Mertins $50 January 30, 2024
Sabine Fuchs $100 January 30, 2024
Jeanne Christensen $50 January 30, 2024
Isabel Hagspiel $25 January 30, 2024
Katrin Mengel $25 January 30, 2024
Stephane MAURER $50 January 30, 2024
Anna and Johannes Inama $150 January 30, 2024
Cornelia Pracht $50 January 30, 2024
David Boehle $100 January 29, 2024
Lee Kim Briffa $50 January 29, 2024
Frederic Voss $100 January 29, 2024
Aide Cedillo $200 January 29, 2024
Silvia Wegmann $50 January 29, 2024
Stefan Thielmann $300 January 29, 2024
Laura Feinauer $50 January 29, 2024
Lea Lorentz $100 January 29, 2024
Gioacchino Cotugno $50 January 29, 2024
Kenneth Dufford $100 January 29, 2024
George Collins $100 January 29, 2024
James O'Connor $100 January 29, 2024
Nicole Koster $300 January 29, 2024
Nicole Koster $0 January 29, 2024
Marco Santos $30 January 29, 2024
Anonymous $25 January 29, 2024
Allison Windon $250 January 29, 2024
Gloria Günzler $40 January 29, 2024
Stephan Derr $50 January 29, 2024
Liana Pena Rubia $100 January 29, 2024
Madelyn Hankins $100 January 29, 2024
Joelle Bataille $30 January 29, 2024
Constance Legros $50 January 29, 2024
Kerstin und Norbert Krischke $100 January 29, 2024
Laurent Scherno $50 January 29, 2024
Oscar Ahuja $50 January 29, 2024
Florence LAMBLA $20 January 29, 2024
Randa and Thomas Mack $50 January 29, 2024
Maarten Dollevoet $100 January 29, 2024
Joachim Mueller Wedekind $50 January 29, 2024
Anna Forsen $60 January 29, 2024
Anna Forsen $40 January 29, 2024
Alessandro Sorcinelli $100 January 29, 2024
Christian Rummel $100 January 29, 2024
Jörg Richter $100 January 29, 2024
Cristina Rus $20 January 29, 2024
Anonymous $15 January 29, 2024
Lizbeth O'SHAUGHNESSY $500 January 29, 2024
Anonymous $5 January 29, 2024
Sarah Stratman $100 January 29, 2024
Allison Balus $500 January 29, 2024
Giuseppe Cotugno $1,000 January 28, 2024
Famiglia Cesaretti $100 January 28, 2024
Stéphanie BLANCAN-CALLEN $200 January 28, 2024
Ambra De nitto $30 January 28, 2024
Elise TRELLU $20 January 28, 2024
Alejandro Pocina $100 January 28, 2024
Erika Seran $200 January 28, 2024
Mario Marcuccio $50 January 28, 2024
Silvia und Patrick Walter $200 January 28, 2024
Elvira und Werner Krischke $200 January 28, 2024
Barbara Vergari $100 January 28, 2024
Donna Flynn $250 January 28, 2024
Lulu Schuck $50 January 28, 2024
Roberta Svanoletti $100 January 28, 2024
Raffaella Marcuccio $200 January 28, 2024
Olivier Lang $50 January 28, 2024
Anonymous $100 January 28, 2024
Veronika Halford $100 January 28, 2024
Serena Borghero $50 January 28, 2024
Gabriella Faggiano $40 January 28, 2024
Monica Prati $300 January 28, 2024
Anonymous $100 January 28, 2024
Luminita Lapusan $100 January 28, 2024
Emanuela Faggiano $50 January 28, 2024
Lorenzo Pagani $300 January 28, 2024
Susan von der Linde $100 January 28, 2024
Loretta Falcone $150 January 28, 2024
Susanne Hemke $50 January 28, 2024
Jaclyn Hausler $100 January 27, 2024
Erin Kintzle $100 January 27, 2024
Connie Bateson $200 January 27, 2024
FRANCESCO DE SANTIS $100 January 27, 2024
Caroline and Charlie Huebner $100 January 27, 2024
Sophie Adelman $200 January 27, 2024
Anonymous $100 January 27, 2024
Elide Santoro $100 January 27, 2024
Anonymous $50 January 27, 2024
Gale Moutrey $100 January 27, 2024
Anonymous $25 January 27, 2024
Elena Fortuna $50 January 27, 2024
Nicole McGrath $250 January 27, 2024
Lauren Brey-Knoblauch $100 January 27, 2024
Julia Krause $100 January 27, 2024
Brad Doan $100 January 27, 2024
Daffnei Riedel $50 January 27, 2024
Roland Meinzer $100 January 27, 2024
Eric Valette $100 January 27, 2024
Nicole Benzler $100 January 27, 2024
Beatrice Monari-Abi Chahine $50 January 27, 2024
Nadia Johnson $30 January 27, 2024
Oscar Lopez $50 January 27, 2024
Emily Brown $200 January 27, 2024
Carlos Gonzalez $50 January 27, 2024
Beau Barberis $150 January 27, 2024
Timothy Thomas $200 January 27, 2024
Deena Sami $75 January 27, 2024
Florian Wendelstadt $150 January 27, 2024
Adriana Rahn-Müssig $100 January 27, 2024
Andrew Morris $100 January 27, 2024
Elena de Kan $50 January 27, 2024
Rachele Monfredi $100 January 27, 2024
Anonymous $100 January 27, 2024
Anonymous $50 January 27, 2024
Silke & Ralf Schöddert/Krischke $100 January 27, 2024
Anonymous $50 January 27, 2024
Linda Johnston Rohrbasser $100 January 27, 2024
Astrid Paudtke $100 January 27, 2024
Sjoerd Jan Spiekhout $150 January 27, 2024
Adela Petric $50 January 27, 2024
Alicia Ries $50 January 27, 2024
Cristina Cobarzan $50 January 27, 2024
Teri Kearney $50 January 27, 2024
Karla Zeitz $100 January 27, 2024
Nathan Penney $50 January 27, 2024
Katia Baeyens $100 January 27, 2024
Angela Ullman $100 January 27, 2024
Katia Baeyens $0 January 27, 2024
Barb Fox $25 January 27, 2024
Carol Anderson $50 January 27, 2024
Nikki Maroni $100 January 27, 2024
Carolyn Milligan $50 January 27, 2024
Kathy Callahan $25 January 27, 2024
Dena Mitchell $200 January 27, 2024
Stephanie Bumgarner $50 January 27, 2024
Amy Rossitto $100 January 27, 2024
Shannon Smiley $50 January 27, 2024
Joan Sabott $100 January 27, 2024
Katie Henry $500 January 27, 2024
Norah Pope $100 January 27, 2024
Emily Ceccanti $100 January 27, 2024
Malika Seran $30 January 27, 2024
Robin Seran $200 January 27, 2024
Anonymous $50 January 26, 2024
Samantha Platz $100 January 26, 2024
Mary Yount $100 January 26, 2024
Wendy Heine $50 January 26, 2024
Erin Bock $50 January 26, 2024
Rachel Cole $100 January 26, 2024
Sarah Chatt $25 January 26, 2024
Robert Franksen $100 January 26, 2024
Adria Csorgo $200 January 26, 2024
Brian Carlin $100 January 26, 2024
Anonymous $50 January 26, 2024
Anonymous $20 January 26, 2024
Bridget Kelly $100 January 26, 2024
Susan Johannes $100 January 26, 2024