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Hope for Stella

A campaign by: Roxanne Arceo
90 Donors
Raised Percent :
86.50%

86.50% Funded
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October is Rett Awareness month. What you may not know is, like many girls with Rett Syndrome, Stella cannot speak. She cannot tell us that she has a tummy ache, or that the fabric on her clothes makes her itchy, that she’s afraid of the dark or just needs a cuddle. She cannot feed, dress or go to the toilet independently. With time she will likely lose many of the skills that she has done so much therapy and worked so hard to acquire. She bites, kicks, screams and cries as her only way to communicate. And you would do the same too if you were trapped in the prison that is her body; it never is doing what she wants it to do.

Regardless of the struggles, we are however, very grateful every day that Stella, unlike many others with Rett is able to walk, jump on the trampoline and even ski! Her gorgeous smile and cheeky laugh let us know that she is inside with an awesome personality, just waiting to get out.

And, there is hope. Despite the devastating effects of this syndrome, like finding the proverbial needle in the haystack, the root cause for Rett has been identified as a single gene: MECP2. In addition, this condition does not cause the brain cells to die; it is NOT neurodegenerative. Lastly, it has been proven that restoring levels of the MECP2 protein that the gene of the same name normally produces dramatically reverses the symptoms in mice. These three factors have given the proof of possibility that a cure can be found for Stella and all the other girls and ladies with Rett Syndrome.

Help us to raise much needed money for the Rett Syndrome Research Trust to fund the projects in key therapeutic areas that show promise for a cure for Rett Syndrome. Take a look at the video below to see how your donation will help:

And please don’t forget to go “Speechless. For Rett.” on Saturday 24th of October at 2pm ET for one hour, remembering that Stella will be speechless, until we find a cure.

Thanks so much for your support.

Lots of love, Stella, Axel, Roxanne and Göran

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Donation Amount
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Name Donation Amount Date
Anonymous $100 December 11, 2023
Rachel Simmons $100 October 02, 2023
Anna Fessler $100 September 20, 2023
Cheryl Miles $20 September 10, 2023
Geremia Boschetto $40 September 09, 2023
Loraine Yap $150 September 05, 2023
Victor Cardoner $50 September 04, 2023
Carolien/Leon Hiltermann $50 September 04, 2023
Claire Lee $100 September 03, 2023
Agnieszka Zychowicz-Defever $120 September 03, 2023
Anonymous $20 September 03, 2023
Veerle Oster $50 September 03, 2023
Sarah Olofsson $50 September 03, 2023
Anonymous $100 May 18, 2021
Marija Pejovic Wallin $100 January 24, 2021
Anonymous $100 January 05, 2021
Balazs Racz $100 December 17, 2020
Markus Pfanner $100 December 14, 2020
LAURA MONARI $100 December 08, 2020
Mikael Rauer $100 November 26, 2020
Anonymous $100 November 25, 2020
Colleen Mayne $100 November 18, 2020
Patty Yang $250 November 16, 2020
Sara Atallah $100 November 06, 2020
Joakim Krumlinde $100 November 05, 2020
Peter Prem $100 November 03, 2020
ZHIYUN NI $100 November 02, 2020
Jeanette Sten $100 November 01, 2020
Salvina Micallef $75 October 31, 2020
Aude Villette $500 October 30, 2020
in memory of Farmor & Farfar $5,000 October 29, 2020
Joost Mackor $100 October 27, 2020
Hao ZHANG $100 October 27, 2020
Francois Parisod $100 October 26, 2020
Sonia Forster $30 October 26, 2020
Anonymous $100 October 26, 2020
Richard Hancock $100 October 25, 2020
Liudmila Konovalova $100 October 25, 2020
Pamela Semmens $100 October 24, 2020
Asli Sahin $20 October 23, 2020
Loraine Yap $200 October 23, 2020
Louise Westman $100 October 23, 2020
Rachel Arceo $500 October 23, 2020
Anonymous $100 October 23, 2020
Marina Danilova $100 October 22, 2020
Seth Bonnici $100 October 22, 2020
Adam Mayne $500 October 21, 2020
Anna Kellner $100 October 21, 2020
Marguerite Blulle $200 October 21, 2020
Belinda Crawford $200 October 21, 2020
Malinda Barrett $100 October 21, 2020
Araceli Casas $100 October 20, 2020
Andrea Novo Gandiaga $100 October 20, 2020
Peter Arvidsson $100 October 20, 2020
ERIC SCHMID $100 October 20, 2020
Ekaterina Ramazanova $100 October 20, 2020
Anonymous $100 October 20, 2020
Magdalena Sandell Bengtsson $100 October 20, 2020
Anonymous $100 October 20, 2020
Anonymous $100 October 20, 2020
Jean-Paul Salchli $100 October 20, 2020
Håkan Stridsberg $200 October 20, 2020
David Prosser $100 October 20, 2020
Hazel Prosser $100 October 20, 2020
Annette Murillo $100 October 20, 2020
Annette Murillo $0 October 20, 2020
Annette Murillo $0 October 20, 2020
Josef Meyer $100 October 20, 2020
Raul Perez $100 October 20, 2020
Ronald C Arceo $100 October 19, 2020
Hakan Soderholm $100 October 19, 2020
Magali Gardes $100 October 19, 2020
Anonymous $100 October 19, 2020
Olle Roos $200 October 19, 2020
Bruno Brocchi $100 October 19, 2020
Rui Solposto $100 October 19, 2020
Natalie Douglas $500 October 19, 2020
Anonymous $100 October 19, 2020
Matija Cindric $100 October 19, 2020
Melissa Radmanovic $100 October 19, 2020
Natalie Campbell $1,000 October 19, 2020
ELLEN BECK-TYSON $100 October 19, 2020
Anonymous $100 October 19, 2020
Martyn Jenkins $75 October 19, 2020
Rica Bonnici $500 October 19, 2020
Josephine Ang $500 October 19, 2020
Raquel Duszynski $500 October 19, 2020
Anonymous $100 October 19, 2020