Hope for Stella

A campaign by: Roxanne Arceo
67 Donors
$15,550.00 Raised
$20,000.00 Goal
Raised Percent :
77.75%

77.75% Funded
Share this campaign:

October is Rett Awareness month. What you may not know is, like many girls with Rett Syndrome, Stella cannot speak. She cannot tell us that she has a tummy ache, or that the fabric on her clothes makes her itchy, that she’s afraid of the dark or just needs a cuddle. She cannot feed, dress or go to the toilet independently. With time she will likely lose many of the skills that she has done so much therapy and worked so hard to acquire. She bites, kicks, screams and cries as her only way to communicate. And you would do the same too if you were trapped in the prison that is her body; it never is doing what she wants it to do.

Regardless of the struggles, we are however, very grateful every day that Stella, unlike many others with Rett is able to walk, jump on the trampoline and even ski! Her gorgeous smile and cheeky laugh let us know that she is inside with an awesome personality, just waiting to get out.

And, there is hope. Despite the devastating effects of this syndrome, like finding the proverbial needle in the haystack, the root cause for Rett has been identified as a single gene: MECP2. In addition, this condition does not cause the brain cells to die; it is NOT neurodegenerative. Lastly, it has been proven that restoring levels of the MECP2 protein that the gene of the same name normally produces dramatically reverses the symptoms in mice. These three factors have given the proof of possibility that a cure can be found for Stella and all the other girls and ladies with Rett Syndrome.

Help us to raise much needed money for the Rett Syndrome Research Trust to fund the projects in key therapeutic areas that show promise for a cure for Rett Syndrome. Take a look at the video below to see how your donation will help:

And please don’t forget to go “Speechless. For Rett.” on Saturday 24th of October at 2pm ET for one hour, remembering that Stella will be speechless, until we find a cure.

Thanks so much for your support.

Lots of love, Stella, Axel, Roxanne and Göran

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$10000

Stella's Guardian Angel

0 Donors

$5000

Stella's Fairy Godmother

1 Donor

$1000

Stella's Star

1 Donor

$500

Stella's Hero

7 Donors

$100

Stella's Friend

52 Donors

Name Donate Amount Date
Colleen Mayne $100.00 November 18, 2020
Patty Yang $250.00 November 16, 2020
Sara Atallah $100.00 November 06, 2020
Joakim Krumlinde $100.00 November 05, 2020
Peter Prem $100.00 November 03, 2020
ZHIYUN NI $100.00 November 02, 2020
Jeanette Sten $100.00 November 01, 2020
Salvina Micallef $75.00 October 31, 2020
Aude Villette $500.00 October 30, 2020
in memory of Farmor & Farfar $5,000.00 October 29, 2020
Joost Mackor $100.00 October 27, 2020
Hao ZHANG $100.00 October 27, 2020
Francois Parisod $100.00 October 26, 2020
Sonia Forster $30.00 October 26, 2020
Anonymous $100.00 October 26, 2020
Richard Hancock $100.00 October 25, 2020
Liudmila Konovalova $100.00 October 25, 2020
Pamela Semmens $100.00 October 24, 2020
Asli Sahin $20.00 October 23, 2020
Loraine Yap $200.00 October 23, 2020
Louise Westman $100.00 October 23, 2020
Rachel Arceo $500.00 October 23, 2020
Anonymous $100.00 October 23, 2020
Marina Danilova $100.00 October 22, 2020
Seth Bonnici $100.00 October 22, 2020
Adam Mayne $500.00 October 21, 2020
Anna Kellner $100.00 October 21, 2020
Marguerite Blulle $200.00 October 21, 2020
Belinda Crawford $200.00 October 21, 2020
Malinda Barrett $100.00 October 21, 2020
Araceli Casas $100.00 October 20, 2020
Andrea Novo Gandiaga $100.00 October 20, 2020
Peter Arvidsson $100.00 October 20, 2020
ERIC SCHMID $100.00 October 20, 2020
Ekaterina Ramazanova $100.00 October 20, 2020
Anonymous $100.00 October 20, 2020
Magdalena Sandell Bengtsson $100.00 October 20, 2020
Anonymous $100.00 October 20, 2020
Anonymous $100.00 October 20, 2020
Jean-Paul Salchli $100.00 October 20, 2020
Håkan Stridsberg $200.00 October 20, 2020
David Prosser $100.00 October 20, 2020
Hazel Prosser $100.00 October 20, 2020
Annette Murillo $100.00 October 20, 2020
Annette Murillo $0.00 October 20, 2020
Annette Murillo $0.00 October 20, 2020
Josef Meyer $100.00 October 20, 2020
Raul Perez $100.00 October 20, 2020
Ronald C Arceo $100.00 October 19, 2020
Hakan Soderholm $100.00 October 19, 2020
Magali Gardes $100.00 October 19, 2020
Anonymous $100.00 October 19, 2020
Olle Roos $200.00 October 19, 2020
Bruno Brocchi $100.00 October 19, 2020
Rui Solposto $100.00 October 19, 2020
Natalie Douglas $500.00 October 19, 2020
Anonymous $100.00 October 19, 2020
Matija Cindric $100.00 October 19, 2020
Melissa Radmanovic $100.00 October 19, 2020
Natalie Campbell $1,000.00 October 19, 2020
ELLEN BECK-TYSON $100.00 October 19, 2020
Anonymous $100.00 October 19, 2020
Martyn Jenkins $75.00 October 19, 2020
Rica Bonnici $500.00 October 19, 2020
Josephine Ang $500.00 October 19, 2020
Raquel Duszynski $500.00 October 19, 2020
Anonymous $100.00 October 19, 2020