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Hope for Opie

A campaign by: Sarah & Scott / $25,000 Goal
51 Donors
Raised Percent :
23.06%

23.06% Funded
, United States (US)
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Our family will never forget July 3rd, 2018 and while many were excited to celebrate our nation’s freedom, we were devastated learning our Ophelia would lose hers. This was the day she was diagnosed with Rett Syndrome. Over the last 4 years we have learned from the thief we have intimately come to know as Rett. We have watched it steal her voice, her mobility, her independence, and her childhood. The weight of knowing that Rett will continue to possess her first kiss, her first goal in a soccer game, her seat on high school student council, her camping trips, her college application, her opportunity to be a mother and eventually her life— is too much to bear.

Every night as we lay Ophelia down to sleep, we promise her we won’t stop fighting until there is a cure. Every night as we lay down to sleep, we hope that she gets the opportunity to wake up tomorrow and see us fight for her. Thanks to RSRT, there is hope in our promise and multiple curative strategies being researched and developed. Clinical trials on gene therapy are so close we can almost reach out and grab hold. We ask that you help our family fight for Ophelia’s future and for the future of nearly 350,000 individuals held captive by Rett Syndrome. Please consider taking part in creating a future with no Rett.

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Donation Amount
Minimum amount is $ Maximum amount is $10000
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Donation Levels

$1000

Opie's Hero

1 Donor

$500

Opie's Star

1 Donor

$250

Opie's Champion

3 Donors

$100

Opie's Supporter

25 Donors

$50

Opie's Advocate

16 Donors

Name Donation Amount Date
Jan McNeil $100.00 November 11, 2022
Susan Humphreys $20.00 October 27, 2022
Amy Stuart $50.00 October 27, 2022
Martin Weisse $50.00 October 25, 2022
Dave & Tina Shaw $100.00 October 24, 2022
Linda Friehling $100.00 October 24, 2022
Patrick Tomboc $50.00 October 24, 2022
Anonymous $250.00 October 23, 2022
Anonymous $100.00 October 23, 2022
Heidi Terneus $100.00 October 21, 2022
Sharon Stuart $50.00 October 21, 2022
Karen Delligatti $25.00 October 20, 2022
Samuel Bonasso $100.00 October 20, 2022
Anonymous $100.00 October 19, 2022
Nathan Hefner $250.00 October 18, 2022
Miranda Amick $50.00 October 18, 2022
Lauren Smith $100.00 October 18, 2022
The Holberts $100.00 October 18, 2022
Alethea & Mary Ann Wood $100.00 October 17, 2022
Suzie Faris $50.00 October 16, 2022
Janet Phillips $100.00 October 15, 2022
Jarrod Bosley $100.00 October 15, 2022
Beth D Wadewade $100.00 October 14, 2022
Tressa Bonasso $50.00 October 14, 2022
Anonymous $50.00 October 13, 2022
Mike Sengewalt $100.00 October 13, 2022
Claire Craig $50.00 October 11, 2022
Kathy Anderson $100.00 October 10, 2022
Karen Higginbotham $50.00 October 10, 2022
Anonymous $50.00 October 10, 2022
Saif Al Qatarneh $100.00 October 09, 2022
Kate Hwang $50.00 October 09, 2022
Cortney Harris $100.00 October 09, 2022
Kevin Wilfong $500.00 October 09, 2022
Kimberly Reveal $20.00 October 08, 2022
Trey Satterfield $1,000.00 October 08, 2022
Christina Hare $100.00 October 08, 2022
Lissa manchin $100.00 October 08, 2022
Anonymous $50.00 October 08, 2022
Anonymous $250.00 October 08, 2022
Adrea Leach $50.00 October 08, 2022
Sebastian Brooke $200.00 October 08, 2022
Erin Kennedy Hysom $100.00 October 07, 2022
Von Barclay $50.00 October 07, 2022
Maria Morrison $25.00 October 07, 2022
Michele Vidulich $100.00 October 07, 2022
Mannon Gilroy $100.00 October 07, 2022
Renee Lorch $100.00 October 07, 2022
Maria Scudere $25.00 October 07, 2022
Brittany Satterfield $100.00 October 07, 2022
Adriana Zyskowski $50.00 October 07, 2022