For Neil and His Nana

A campaign by: The Hajjar Family
40 Donors
$3,960.00 Raised
$5,000.00 Goal
Raised Percent :
79.20%

79.20% Funded
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Neil is such a light in our lives.

Now ten years old, Neil was diagnosed with MECP2 Duplication Syndrome when he was less than a year old. His extremely low muscle tone affects his life greatly, and makes each day a challenge. He’s also unable to walk, so transporting him is becoming increasingly challenging. The most recent dilemma is finding a way to control his seizures without losing his sweet, happy, and inquisitive personality.

After having a stroke just before he turned 3, Neil was also diagnosed with a disorder called Moyamoya disease, which constricts the blood vessels near his brain. Shortly after the stroke, he had a successful surgery to open up the blood vessels and lower the risk of future strokes.

In Spring/Summer 2021 we are planning a major surgery to fix his hip dysplasia.

Since Neil was very young, we’ve hosted a (almost) yearly fundraiser in our local community. It’s been amazing to receive all the loving support from so many people who want to support Neil and kids like him.

Neil’s Nana was his #1 fundraising fan. Her deep interest in furthering research of MECP2 was paired with her desire to tell her friends and neighbors about this cause she was so passionate about. Nana passed away in early 2020, and we’d like to honor her by conducting this campaign during the one-year anniversary of her passing.

Neil’s favorite activities include being on his outdoor wheelchair swing (see photo), having books read to him, watching his favorite TV shows, eating, and going for drives.

Neil keeps a joyful spirit about him and takes true pleasure in the little things… and so teaches us as his family to do the same. He keeps fighting, and so we will keep fighting with him. There is hope in research for Neil and other children who share his condition.

Donation Amount Minimum amount is $ Maximum amount is $100000
Name Donate Amount Date
WarnerMedia $200.00 March 31, 2021
Todd Drew $100.00 March 23, 2021
Mary Jane Hastings $50.00 March 15, 2021
Erin Crooks $100.00 March 01, 2021
Michelle Finnerty $100.00 March 01, 2021
Lindsay Healy $20.00 February 28, 2021
Jane Drew $200.00 February 28, 2021
donald Palmer $300.00 February 20, 2021
Debbie Morales $100.00 February 18, 2021
Meredith Panik $100.00 February 18, 2021
Susan Marshall $150.00 February 11, 2021
Tom Riley $50.00 February 10, 2021
David Petersen $100.00 February 10, 2021
Sally Moses $50.00 February 09, 2021
Jeffrey Serfass $100.00 February 09, 2021
Trevor Kress $200.00 February 09, 2021
ER Hunsberger $100.00 February 09, 2021
Richard Kuszelewicz $50.00 February 08, 2021
Kim Mclean $20.00 February 08, 2021
Sarah Canberg $50.00 February 08, 2021
Marilyn & Charles Roll $100.00 February 07, 2021
Nicole Fayak $50.00 February 07, 2021
Kimberly Perret $100.00 February 07, 2021
Emily Smolenski $50.00 February 07, 2021
Debra Drew $100.00 February 07, 2021
Jeffrey Serfass $100.00 February 07, 2021
Mary Jane Canose $50.00 February 07, 2021
Jill Wiss $100.00 February 07, 2021
Anonymous $100.00 February 07, 2021
Gerald York $100.00 February 07, 2021
Darcey Brooten $25.00 February 06, 2021
Angela McQueen $100.00 February 06, 2021
Catherine Martin $100.00 February 06, 2021
Kristy Chmura $25.00 February 06, 2021
David Williams $20.00 February 06, 2021
Elizabeth Engelbert $50.00 February 06, 2021
Robert Cull $250.00 February 06, 2021
Ralph Petersen $50.00 February 06, 2021
Linda Kress $150.00 February 05, 2021
Margaret Hajjar $200.00 February 05, 2021