As many of you know I ran the Boston Marathon for 5 consecutive years, raising funds for Adam and MECP2 Duplication Syndrome research. I took a break, but now I’m back! On April 6, 2024 I will compete in my first Marathon in over three years! This will be followed by a Half Marathon on April 20th.
As the years have gone by Adam’s condition has worsened. Most days are very challenging with difficult seizures and respiratory distress. He’s spending more time in the hospital and requires constant care and around-the-clock support.
2024 promises to fundamentally change Adam’s condition as clinical trials of Ion400 are set to begin within the year. This would never have been possible without generous donations from friends and family over the years.
Please consider donating to help speed treatment and end this horrible disease.
Adam's Hero
2 Donors
Adam's Champion
4 Donors
Adam's Advocate
5 Donors
Adam's Supporter
30 Donors
Adam's Friend
44 Donors
| Name | Donation Amount | Date |
|---|---|---|
| Jenny Bonham-Carter | $500 | April 23, 2024 |
| Cecilia Wallstrom | $100 | April 22, 2024 |
| Sarah Tanaki | $50 | April 21, 2024 |
| Lisa Perks | $26 | April 20, 2024 |
| Michelle Dupere | $100 | April 11, 2024 |
| Andrea Imlach | $50 | April 11, 2024 |
| Anonymous | $150 | April 10, 2024 |
| Justin Bates | $50 | April 09, 2024 |
| Kate Da Costa | $50 | April 09, 2024 |
| Tim Guthrie | $100 | April 07, 2024 |
| Elise Carbonell | $100 | April 04, 2024 |
| Laura and Robert Burch | $20 | April 04, 2024 |
| Kara Harvey | $50 | April 04, 2024 |
| Ashley Staniscia | $100 | April 04, 2024 |
| Jared Mitchell | $50 | April 03, 2024 |
| Anonymous | $25 | April 02, 2024 |
| Helena Blomqvist | $100 | April 02, 2024 |
| Georgina Esquivel | $50 | April 02, 2024 |
| Anonymous | $100 | April 02, 2024 |
| Sarah Creutz | $100 | April 01, 2024 |
| Andrew Wong | $50 | April 01, 2024 |
| Todd Farnsworth | $50 | April 01, 2024 |
| Rebecca Potts | $50 | April 01, 2024 |
| Samantha Platz | $100 | April 01, 2024 |
| Lesley Halepis | $100 | April 01, 2024 |
| Elizabeth Kelley | $50 | March 29, 2024 |
| Megan Last | $100 | March 29, 2024 |
| Bonnie Szeto | $250 | March 27, 2024 |
| Pamela Merrill Solomon | $100 | March 26, 2024 |
| Jessica Stryhalaleck | $50 | March 24, 2024 |
| Ingrid Geygan | $50 | March 24, 2024 |
| Brian Zudeck | $100 | March 22, 2024 |
| Jenny Bonham-Carter | $500 | March 22, 2024 |
| Elizabeth De Dominicis | $100 | March 21, 2024 |
| Tara Maki | $25 | March 20, 2024 |
| Sara McNabb | $50 | March 20, 2024 |
| Alexander MacMillan | $50 | March 20, 2024 |
| Pam Lathrop | $100 | March 19, 2024 |
| Cecilia Forsberg | $50 | March 19, 2024 |
| Barbara Klanderman | $100 | March 19, 2024 |
| Anonymous | $100 | March 17, 2024 |
| Frida Framk | $50 | March 17, 2024 |
| John Gorman | $50 | March 17, 2024 |
| Eva & Tomas Frank | $250 | March 16, 2024 |
| Anonymous | $50 | March 16, 2024 |
| Peter Keating | $50 | March 16, 2024 |
| Anonymous | $50 | March 16, 2024 |
| Hanna Frank | $50 | March 14, 2024 |
| Tieu Ing | $50 | March 12, 2024 |
| Karin Sodervall | $50 | March 12, 2024 |
| Christopher Anderson | $50 | March 11, 2024 |
| Mary Dyan | $50 | March 11, 2024 |
| Anne Downing | $100 | March 11, 2024 |
| Marie Sjödin | $50 | March 11, 2024 |
| Christopher Parker | $50 | March 11, 2024 |
| Timothy Fallon | $100 | March 09, 2024 |
| Anonymous | $50 | March 08, 2024 |
| Heather LaRosa | $100 | March 07, 2024 |
| Eileen Sheets | $50 | March 06, 2024 |
| Gina Newton | $25 | March 06, 2024 |
| Tracy Nicholas | $50 | March 05, 2024 |
| Beth Corcoran | $50 | March 05, 2024 |
| Kerin McLoughlin | $100 | March 05, 2024 |
| Susan Kraemer | $500 | March 03, 2024 |
| Anonymous | $100 | March 03, 2024 |
| Leslie Kehoe | $100 | March 03, 2024 |
| Gustavo Castro | $100 | March 03, 2024 |
| Caitlin Castagna | $50 | March 03, 2024 |
| Jocelyn Jocelyn | $50 | March 03, 2024 |
| Ruth Marrion | $500 | March 03, 2024 |
| Anonymous | $30 | March 02, 2024 |
| Heidi Watters | $35 | March 02, 2024 |
| Chad Pelletier | $250 | March 02, 2024 |
| Amy Morrison Baker | $50 | March 02, 2024 |
| Erica Roeck | $50 | March 02, 2024 |
| Charlotte Lenfest | $25 | March 02, 2024 |
| Michelle Salerno | $30 | March 02, 2024 |
| Elizabeth Murphy | $25 | March 02, 2024 |
| Genevieve Rajewski | $50 | March 02, 2024 |
| Marcia Anderson | $1,000 | March 01, 2024 |
| Natalie Howard | $50 | March 01, 2024 |
| Lam Tien | $25 | March 01, 2024 |
| Ulrika Gerth | $50 | March 01, 2024 |
| Carrie Leary | $100 | March 01, 2024 |
| Ashley Gonzalez | $20 | March 01, 2024 |
| Cheryl Bruk | $50 | March 01, 2024 |
| Daniel Bertrand | $50 | February 29, 2024 |
| Dan Powell | $50 | February 29, 2024 |
| Kelly Gilbert | $100 | February 29, 2024 |
| Randy Heins | $250 | February 29, 2024 |
| Pete Paquette | $50 | February 29, 2024 |
| Jill Wilmot | $250 | February 29, 2024 |
| Huda Zoghbi | $1,000 | February 29, 2024 |
| Stephanie Owen | $100 | February 29, 2024 |
| Josefin Berg | $100 | February 29, 2024 |
| Stephanie cooke | $50 | February 29, 2024 |
| Elise Carbonell | $100 | February 29, 2024 |
| Molly Anderson | $20 | February 29, 2024 |