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Birthday Wish for Lily: A Cure!

A campaign by: Ann Fromm & Bill Payne / $50,000 Goal
71 Donors
Raised Percent :
72.50%

72.50% Funded
, United States (US)
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Will Devin and Malin ever hear their little girl say, “Mama, Daddy, I love you”?

Yes. Here’s why:

 

There are more than 1 in 10,000 girls and women with Rett syndrome, approximately 350,000 worldwide. They are desperate.

 

An average of 93% of every dollar you donate goes directly toward finding a cure for Rett syndrome.

 

In the last 15 years RSRT, a 501(c)(3) charity, raised nearly $100 million towards this goal. That’s a stunning amount.

 

Early clinical trials in gene therapy have begun, undergirded largely by RSRT-funded research into a cure for Rett. Such a possibility was unthinkable even 20 years ago.

 

In 2023, in the first clinical trial, Patient One was dosed. After six months, she showed enough improvement, according to nine biological markers, that Patient Two was dosed.

 

The clinical trials and the research continue. There’s so much more to be done. Lily gets older every day. She will be 9 on December 5.

 

Please support our intense effort to perfect a cure for Rett syndrome now. If you do, we will reach the goal sooner than any of us can believe.

 

Thank you!

Ann Fromm & Bill Payne

Devin Fromm & Malin Delling

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Donation Amount
Minimum amount is $ Maximum amount is $10000
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Donation Levels

$5000

Sapphire for Lily

1 Donor

$1000

Emerald for Lily

4 Donors

$500

Blue Topaz, Lily's Birthstone

5 Donors

$250

Lapis Lazuli for Lily

14 Donors

Name Donation Amount Date
James and Sarah Cauley $1,000 January 31, 2024
Stewart Libicki $50 January 08, 2024
William Pietragallo $100 December 28, 2023
Martha Beard $1,000 December 29, 2023
Marian Jane McKenna $1,000 December 27, 2023
Sheila Fine $200 December 27, 2023
Kathleen Gavigan $500 December 27, 2023
Madelyn Curtin $50 December 27, 2023
Joan Ewing $150 December 27, 2023
Kris Davitt & Rick Barr $500 December 26, 2023
Jan Wagner $100 December 22, 2023
Gohar BEHDADNIA $200 December 22, 2023
BARMAK BEHDADNIA $200 December 22, 2023
Edwin & Mona Strassburger $250 December 19, 2023
Mary McKenna $150 December 18, 2023
David and Colleen OBrien $100 December 18, 2023
Marie Hinchliffe $100 December 18, 2023
Larry & Julia Ondako $300 December 18, 2023
Donald & Arleen Wagner $250 December 18, 2023
Ryan McKenna $250 December 16, 2023
Chris Gillotti $100 December 16, 2023
Roberta Lucchino $200 December 15, 2023
Susan & Jim Herald $250 December 15, 2023
DAN SCHREIBEIS $125 December 14, 2023
Linda Cochran $100 December 13, 2023
J. and Raymond Smith $200 December 13, 2023
Erika Staff & Jordan Strassburger $250 December 13, 2023
Dolly Gee $100 December 13, 2023
Kathy Laboon $50 December 13, 2023
karen/joe Kelley $200 December 12, 2023
Jane Waller $100 December 12, 2023
Anne Grignon $50 December 11, 2023
Poth Family Poth Jr $500 December 11, 2023
Hugh & Carole Curtin $500 December 11, 2023
Roslyn Segall $100 December 11, 2023
Barbara Milton $100 December 11, 2023
Paul & Penny McKenna $250 December 11, 2023
Donna Timcho $100 December 11, 2023
Margaret Runnette $100 December 11, 2023
Kristen Hatch $100 December 11, 2023
Anonymous $250 December 10, 2023
Timothy Freeman $100 December 10, 2023
Malvina Epstein $100 December 09, 2023
Dorothy Cloherty $50 December 08, 2023
Linda Thier $100 December 07, 2023
Joseph Stuligross $250 December 04, 2023
Kate & Al Lewis $50 December 04, 2023
Beth & Chris Petersen $2,500 December 04, 2023
Eleanor Heger $100 December 02, 2023
Deb Heppner $50 December 02, 2023
Lynn Detrick $250 December 01, 2023
Ted & Carol Payne $100 December 01, 2023
Lynn A Lagomarsino $100 December 01, 2023
bruce fickman $150 December 01, 2023
Anonymous $50 December 01, 2023
Louis Certo $100 December 01, 2023
Charlotte Zuschlag $100 December 01, 2023
Janet & John Conomos $250 December 01, 2023
Richard Findlan $500 December 01, 2023
Carol Robinson $300 November 30, 2023
Carolyn Morris $50 November 30, 2023
DAVID EHRENWERTH $50 November 30, 2023
Elaine McKenna $25 November 30, 2023
Ronald Dean $100 November 30, 2023
Edward Ifft Jr $250 November 30, 2023
Naomi Herman $50 November 30, 2023
Richard Rosenblatt $250 November 30, 2023
Tila and Paul Cohen $50 November 30, 2023
Gaylen Westfall $50 November 30, 2023
Ann Fromm & Bill Payne $20,000 November 28, 2023