Believe in Blaire!
Blaire, born in November 2022, initially developed like any other infant, hitting most milestones and bringing immense joy to our lives. However, around 9 months old, we noticed changes in her gross motor skills. This led to a whirlwind of weekly physical therapy sessions, neurologist visits, a brain MRI, and genetic testing. Just after Blaire’s first birthday in November 2023, we received the devastating diagnosis: Rett syndrome. This news shook our world in ways we can’t even describe, the past year has been a rollercoaster of emotions as we grapple with the implications for Blaire and our family.
Despite these challenges, Blaire’s spirit shines brightly! Her resilience and infectious happiness continue to touch everyone she meets. As her parents, we’re dedicated to finding a cure for Rett syndrome, hoping to pave the way for Blaire and other children like her to lead full and more independent lives.
Through it all, Blaire remains our greatest source of strength and inspiration. Her journey has only just begun, and we’re committed to supporting her every step of the way.
The Rett Syndrome Research Trust (RSRT) was founded with the singular goal of finding cures for Rett syndrome. Founded and operated by parents affected by their loved one’s Rett syndrome diagnosis, RSRT has made incredible progress in advancing groundbreaking research. Their initiatives have directly influenced two gene therapy clinical trials now underway: Neurogene and Taysha. This research is driving scientific advancements that will have benefits beyond Rett syndrome. RSRT has an ambitious roadmap with a fundraising goal of $40 million in 4 years to advance these promising approaches.
Learn more about the cause here:
Blaire's Hero
3 Donors
Blaire's Star
3 Donors
Blaire's Champion
11 Donors
Blaire's Supporter
46 Donors
Blaire's Advocate
31 Donors
| Name | Donation Amount | Date |
|---|---|---|
| B's Hive Merchandise Profits - $10 per T Shirt Match in October for Rett Syndrome Awareness Month | $670 | December 20, 2024 |
| B's Hive Merchandise Profits ! | $630 | December 20, 2024 |
| Daisy Urbieta | $25 | December 20, 2024 |
| Qwintrel Arrington | $25 | December 20, 2024 |
| Benjamin Norman | $250 | December 04, 2024 |
| Kaitlin O’Shaughnessy | $100 | December 04, 2024 |
| Elizabeth Toland | $50 | December 04, 2024 |
| maxine jones | $100 | November 08, 2024 |
| Anonymous | $200 | November 02, 2024 |
| Anonymous | $100 | November 02, 2024 |
| Anonymous | $100 | November 02, 2024 |
| Andrew Sohnen | $100 | October 31, 2024 |
| Jillian Brabant | $100 | October 30, 2024 |
| Andrea Baranowski | $50 | October 30, 2024 |
| Mira Norman | $100 | October 30, 2024 |
| Carolyn Bjork | $50 | October 29, 2024 |
| Molly Matthew | $100 | October 29, 2024 |
| Jennifer Gabrielsen | $100 | October 29, 2024 |
| Amanda Vath | $50 | October 29, 2024 |
| Erica Worden | $250 | October 29, 2024 |
| Emily Hurrle | $50 | October 29, 2024 |
| Alexis Marshall | $100 | October 29, 2024 |
| Maggie Barrett | $100 | October 29, 2024 |
| Anonymous | $100 | October 29, 2024 |
| Jesse Moss | $250 | October 29, 2024 |
| Pam Moeller | $20 | October 26, 2024 |
| Andrew Dieckelman | $250 | October 25, 2024 |
| Lynn Cocchiola | $50 | October 25, 2024 |
| Cindy Gaskins | $250 | October 24, 2024 |
| Sheila Ballen | $100 | October 21, 2024 |
| Lloyd & Lynn Lazin Thompson | $1,000 | October 20, 2024 |
| Anonymous | $100 | October 19, 2024 |
| Melissa Ott | $100 | October 19, 2024 |
| Theresa Mond | $200 | October 19, 2024 |
| Heather Sherman | $50 | October 19, 2024 |
| Alexander Hern | $100 | October 19, 2024 |
| Maggie Lambert | $250 | October 19, 2024 |
| Macy Babcock | $100 | October 18, 2024 |
| Wini Lauer | $100 | October 18, 2024 |
| Rebecca Lee | $100 | October 18, 2024 |
| Anthony Carvano | $100 | October 18, 2024 |
| Cameron Altman | $100 | October 18, 2024 |
| Dana Dietrich | $50 | October 18, 2024 |
| Alex Schrager | $25 | October 18, 2024 |
| Anonymous | $50 | October 18, 2024 |
| Robert Krajecki | $500 | October 18, 2024 |
| Cristal Cherubini | $50 | October 18, 2024 |
| Matt Hall | $50 | October 18, 2024 |
| Amanda Toner | $50 | October 18, 2024 |
| Kaitlynn Hoff | $50 | October 18, 2024 |
| Nick Fisher | $50 | October 18, 2024 |
| Tim Gilhooly | $100 | October 18, 2024 |
| Charlotte Hooker | $50 | October 18, 2024 |
| Alexa Hayes | $100 | October 18, 2024 |
| Gillian Zucker | $100 | October 18, 2024 |
| Scott Levine | $250 | October 18, 2024 |
| Kamani Smith | $100 | October 18, 2024 |
| Hannah McAlister | $25 | October 18, 2024 |
| Melissa Shelbrick | $100 | October 18, 2024 |
| Jen Schwendener | $100 | October 18, 2024 |
| Tim MacDonough | $100 | October 18, 2024 |
| Ann Scott | $250 | October 18, 2024 |
| Robert Renner | $1,000 | October 18, 2024 |
| Anonymous | $100 | October 18, 2024 |
| Carol Kaminski | $100 | October 18, 2024 |
| Sloan-Taylor rabinor | $25 | October 17, 2024 |
| Julianne Jacob | $250 | October 17, 2024 |
| Marcia Fisch | $10 | October 17, 2024 |
| Malcolm Lazin | $250 | October 17, 2024 |
| Patrycja Ferenc | $50 | October 17, 2024 |
| Elizabeth Brouwer | $100 | October 17, 2024 |
| Maria Rapson | $25 | October 17, 2024 |
| Brenda Lazin | $100 | October 17, 2024 |
| Lindsay Ray | $50 | October 17, 2024 |
| Tammy Piety | $50 | October 17, 2024 |
| alyssia lazin kapic | $250 | October 17, 2024 |
| Lindsey Schwartz | $50 | October 17, 2024 |
| Kathleen O Sullivan | $50 | October 17, 2024 |
| Jamie Stern | $100 | October 17, 2024 |
| Gary Renner | $1,000 | October 17, 2024 |
| Rachel Ripani | $50 | October 17, 2024 |
| David Fisch | $100 | October 17, 2024 |
| Jen Shane | $50 | October 17, 2024 |
| Amy Berardini | $100 | October 17, 2024 |
| Erin Rae Dobrez | $100 | October 17, 2024 |
| Lauren Smith | $50 | October 17, 2024 |
| Emily Magee | $100 | October 17, 2024 |
| Alexis Stimac | $50 | October 16, 2024 |
| Teresa Bruce | $50 | October 16, 2024 |
| Anonymous | $50 | October 16, 2024 |
| Daniel Sherrard | $100 | October 16, 2024 |
| Christine Carlin | $50 | October 16, 2024 |
| JR De Los Reyes | $50 | October 16, 2024 |
| Kimberly S Gilliam | $100 | October 16, 2024 |
| Matt Wick | $100 | October 16, 2024 |
| Kristina Eisenhart | $50 | October 16, 2024 |
| Kristen Mitchell | $100 | October 16, 2024 |
| Ashley Tischer Sacia | $50 | October 16, 2024 |
| Maria Beck | $100 | October 16, 2024 |
| Valerie Renner | $100 | October 16, 2024 |
| Anonymous | $50 | October 16, 2024 |
| Anonymous | $100 | October 16, 2024 |