Beggin’ for Meghan

A campaign by: Amy Morrison Baker
17 Donors
$11,575.00 Raised
$2,000.00 Goal
Raised Percent :
578.75%

578.75% Funded
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At 4 months old, Meghan was diagnosed with MECP2 Duplication Syndrome. This neurological disorder is characterized by global developmental delay, limited or absent speech, constipation, reflux, low muscle tone, recurrent respiratory infections, gastrointestinal issues, epilepsy, and developmental regression. Children with MECP2 Duplication Syndrome can suffer greatly from a common cold. And, most children don’t live past 18 years old.

As any parent can imagine, the diagnosis was devastating. Meghan cannot walk or talk and is fed through a tube that goes directly into her stomach. She needs extensive physical therapy, occupational therapy, speech therapy, feeding therapy, and supplemental oxygen when she is sleeping. She has battled through pneumonia and other infections that keep her in the hospital for several days, even months. Despite all of this, she remains a happy, go-lucky kid and has a smile that will melt your heart.

This is a particularly exciting time for the MECP2 Duplication community because the Rett Syndrome Research Trust recently committed to funding two extremely promising new projects, both of which attack the root cause of the disorder. These two projects have a total budget of $1 million. RSRT’s MECP2 Duplication Fund has $300,000 that has been raised that can be used towards those costs. We are helping RSRT raise the additional $700,000 needed for these potentially curative projects. Every dollar gets us closer to meeting that budget need. We ask for your support to help change Meghan’s life and the lives of all who struggle with this debilitating and life-threatening disorder.

Thank you,

Amy, Dave, and Ashleigh (big sis)

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$500

Superhero

4 Donors

$250

Hero

2 Donors

$100

Champ

2 Donors

$50

Friend

5 Donors

$25

Supporter

4 Donors

Name Donate Amount Date
Julie & Shaun Papperman $50.00 March 05, 2020
Danielle & Garrett Vangosen $50.00 March 05, 2020
Stephen Zidek $50.00 March 05, 2020
Terri & Frank Morrison $500.00 March 05, 2020
Thomas Schommer $100.00 March 05, 2020
Deborah Leister $40.00 March 05, 2020
Lynda & James Sillers $35.00 March 05, 2020
Beth & Bruce Riley $50.00 March 05, 2020
Julie & Stephen Wright $25.00 March 05, 2020
Cheryl & Wayne Storie $50.00 March 05, 2020
Susan Kotra $25.00 March 05, 2020
Karen & Stanley Higgins $250.00 March 05, 2020
Amy & David Baker $4,500.00 March 05, 2020
$5,000.00 February 24, 2020
$500.00 February 24, 2020
Khanh Nguyen $250.00 February 13, 2020
Jean Maase $100.00 February 05, 2020