As most of you know, our Princess Warrior has had a rough year – 216 days in the hospital, beginning with unstoppable seizures, 3 intubations, 2 cardiac arrests, 8 days on ECMO, and last-resort procedures which stopped the seizures but changed our little Meggers forever. Doctors told us she would likely be in a hospital and intubated forever unless she received a tracheostomy. Meghan now requires 24/7 “alert and awake” nursing care with the trach.
As we’ve said many times before, we need a cure and we need it now! The latest on the research is that they are moving into clinical trials in humans to test the effectiveness of one of the treatments proven to reverse the symptoms in mice. They have a few items to finish before moving to these trials though, including a severity study. Of course, these items require funding. Please help us again this year and advance the clinical trials for ALL of those affected by this horrible syndrome, MECP2 Duplication Syndrome. We can do this!
Thank you,
Amy, Dave, Meghan, and big sis Ashleigh
Ultimate Warrior
7 Donors
Superhero
3 Donors
Meg's Champion
8 Donors
Bub's Buddy
54 Donors
| Name | Donation Amount | Date |
|---|---|---|
| Amsted Industries Match | $1,000.00 | March 14, 2023 |
| Amsted Industries Match | $5,000.00 | March 14, 2023 |
| Frank & Terri Morrison | $1,000.00 | February 21, 2023 |
| Thomas Schommer | $70.00 | February 15, 2023 |
| Christopher & Karen Baumeister | $2,500.00 | December 29, 2022 |
| Stanley Black & Decker | $2,500.00 | December 22, 2022 |
| Sally Steelman | $50.00 | December 12, 2022 |
| Heather Rogers | $150.00 | December 10, 2022 |
| Kristen Adkins | $50.00 | December 03, 2022 |
| Amy Morrison Baker | $5,000.00 | December 02, 2022 |
| Kristi Nester | $50.00 | December 02, 2022 |
| Mary Butler | $100.00 | December 01, 2022 |
| Rosalie Gardner | $25.00 | December 01, 2022 |
| david reichenthal | $50.00 | November 30, 2022 |
| Kathleen Horan | $100.00 | November 30, 2022 |
| Sarah Parsons | $50.00 | November 30, 2022 |
| John & Kris Visco | $50.00 | November 30, 2022 |
| Jennifer Moody | $50.00 | November 30, 2022 |
| Beatrice Palma | $25.00 | November 30, 2022 |
| Kelly Jensen | $50.00 | November 30, 2022 |
| Anna Trofka Klee | $50.00 | November 30, 2022 |
| Pam Sykes | $50.00 | November 30, 2022 |
| Darlene Rehmert | $100.00 | November 30, 2022 |
| Wendy Evans | $50.00 | November 30, 2022 |
| Alison McBeth | $50.00 | November 30, 2022 |
| Bryan Bartlett | $50.00 | November 30, 2022 |
| Katherine Keefe | $50.00 | November 30, 2022 |
| Bernadette Roussel | $25.00 | November 30, 2022 |
| Maggie Shulka | $25.00 | November 30, 2022 |
| Jean & Phil Maase | $200.00 | November 29, 2022 |
| John Visco | $50.00 | November 29, 2022 |
| Courtney Visco | $50.00 | November 29, 2022 |
| Michael Dickensheets | $500.00 | November 29, 2022 |
| Heather Rogers | $100.00 | November 29, 2022 |
| Kate Roussel | $100.00 | November 29, 2022 |
| Sandy Hart-Long | $100.00 | November 29, 2022 |
| Judith Guerrieri | $50.00 | November 29, 2022 |
| Mike and Claudine Baker | $200.00 | November 29, 2022 |
| Anonymous | $2,500.00 | November 29, 2022 |
| Dave Hare | $100.00 | November 29, 2022 |
| Patti Ormiston | $50.00 | November 29, 2022 |
| Honesty Peltier | $200.00 | November 29, 2022 |
| James Weidemann | $100.00 | November 29, 2022 |
| Agnes OConnell | $25.00 | November 29, 2022 |
| Charleen E. OConnor | $50.00 | November 28, 2022 |
| Arliene R Torre | $100.00 | November 28, 2022 |
| Sheri Ewing | $50.00 | November 28, 2022 |
| Khanh Nguyen | $500.00 | November 28, 2022 |
| Michelle Palmer | $100.00 | November 27, 2022 |
| Jan & Dennis Bills | $200.00 | November 27, 2022 |
| Anonymous | $200.00 | November 27, 2022 |
| Amy Korman | $50.00 | November 27, 2022 |
| Peggy Chappell | $50.00 | November 26, 2022 |
| Ellen Snyder | $100.00 | November 25, 2022 |
| Chris Boundy | $150.00 | November 25, 2022 |
| Jill Miller | $50.00 | November 25, 2022 |
| Noreen Strylowski | $100.00 | November 24, 2022 |
| Anonymous | $500.00 | November 24, 2022 |
| Kathy Shanley | $100.00 | November 23, 2022 |
| Elizabeth Baker | $200.00 | November 23, 2022 |
| James Parsons | $50.00 | November 22, 2022 |
| Cindy Thompson | $100.00 | November 22, 2022 |
| Melinda Hinsley | $200.00 | November 22, 2022 |
| Stacey Anderson | $200.00 | November 22, 2022 |
| Evelyn Morrison | $100.00 | November 22, 2022 |
| Robert Scott | $100.00 | November 22, 2022 |
| Lisa Curtin | $50.00 | November 22, 2022 |
| Stuart Curtin | $50.00 | November 22, 2022 |
| Courtney Webster | $100.00 | November 22, 2022 |
| Anonymous | $50.00 | November 22, 2022 |
| Jenifer Peters | $100.00 | November 21, 2022 |
| Susan Galligan | $50.00 | November 20, 2022 |
| Julie Russo | $100.00 | November 20, 2022 |
| Barb Currey | $50.00 | November 20, 2022 |
| Carrie Heath | $100.00 | November 19, 2022 |
| Lauren Pierce | $50.00 | November 18, 2022 |
| June Galloway | $50.00 | November 12, 2022 |