Beggin’ for Meghan 2020

A campaign by: Amy & Dave Baker
33 Donors
$4,920.00 Raised
$10,000.00 Goal
Raised Percent :
49.20%

49.20% Funded
Share this campaign:

Unfortunately, our little Megs started having seizures a few weeks ago. We are hopeful that medicine will help control them, but we know that time is not on her side. We need to act now to get the drug that can potentially cure Meghan and thousands of others who suffer from MECP2 Duplication Syndrome tested and approved. Coincidentally, there is a very promising research project being done at UMass that is testing the drug treatment in primates. They need $330,000 to continue testing in primates and then humans.

Before Meghan even started having seizures, we knew we wanted to make a significant contribution to research in 2020. This project at UMass is it! But we need your help to raise $330,000! Scientists don’t know exactly what a cure will look like for these kids, but they do know one thing – the older you are, the less likely it will reverse the negative symptoms of the syndrome. So, please help us end 2020 on a high note and contribute to this project! We can do this!

Thank you,
Amy, Dave, Meghan, and big sis Ashleigh

If you are interested in learning more details about this project and the research being done at UMass by Dr. Khvorova and her lab, check out the following webinar. We are mentioned at minute 45.

MECP2 Duplication Syndrome Webinar October 6, 2020

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$1000

Meghan's Hero

1 Donor

$500

Meghan's Star

0 Donors

$250

Meghan's Champion

6 Donors

$100

Meghan's Buddy

19 Donors

Name Donate Amount Date
John & Johna Weber $150.00 October 24, 2020
Christine Werneke $100.00 October 22, 2020
Jean Maase $200.00 October 22, 2020
Anita Pierce $100.00 October 21, 2020
John and Willie DiLaura $300.00 October 21, 2020
Julie Russo $100.00 October 20, 2020
Darlene Jones $20.00 October 19, 2020
Anonymous $25.00 October 17, 2020
Evelyn Morrison $250.00 October 17, 2020
James Parsons $100.00 October 17, 2020
Jeffrey Snyder $75.00 October 16, 2020
Kelly Jensen $100.00 October 16, 2020
James Weidemann $100.00 October 15, 2020
David Webster $100.00 October 15, 2020
Caitlin Kearns $250.00 October 14, 2020
Sarah Ridgway $100.00 October 14, 2020
Anonymous $250.00 October 14, 2020
Patricia King $100.00 October 14, 2020
Daniel Pierce-Woodward $100.00 October 13, 2020
Phyllis Longhi $50.00 October 13, 2020
Connie Hiegel $50.00 October 12, 2020
Mary Healey $100.00 October 12, 2020
Arliene Torre $100.00 October 12, 2020
Laurie Persh $100.00 October 12, 2020
Michael Mills $100.00 October 12, 2020
Allison Robillard $50.00 October 12, 2020
Kate Roussel $100.00 October 12, 2020
Elizabeth Baker $1,000.00 October 12, 2020
Helen Kirby $50.00 October 12, 2020
Anonymous $250.00 October 11, 2020
Melinda Hinsley $100.00 October 11, 2020
Judith Guerrieri $100.00 October 11, 2020
Anonymous $250.00 October 11, 2020