Alice’s Voice

A campaign by: Allen & Kelsey Chu
68 Donors
$74,006.00 Raised
$75,000.00 Goal
Raised Percent :
98.67%

98.67% Funded
Share this campaign:

Nearly a year and a half has passed since Alice was diagnosed with Rett Syndrome, a rare genetic neurological disorder. While she’s made positive strides, the past year has not come without stark challenges and further regression. It’s hard to ignore her daily struggle with basic movements that we take for granted like using our hands, walking, and speaking. Imagine not being able to express essentials like thirst or pain, hoping someone will guess your need and help. We are frequently reminded that even the simple things are hard.

Despite the obstacles in her way, Alice’s joy, energy, and radiant smile has been a constant. Her daily positive attitude is a key part to her taking the steps toward improvement. Always working to further her development, she recently started a preschool program for children with special needs (which she loves) and is also learning to use an eye-gaze device to assist in her communication. Additionally, she has regular speech, occupational, hippo- (therapy on a horse), and aquatic therapies. She is by far the busiest person in our family!

While therapy will go a long way toward helping Alice, it is no substitute for a fundamental cure. Advancements in Rett Syndrome research continue by and large because of the generous donations made by yourself and others. These contributions directly fund 5 priority approaches to address the genetic core of Rett Syndrome: gene therapy, DNA editing, MECP2 reactivation, RNA modification, and protein replacement. These approaches are underway at 15 elite labs around the world offering the possibility of a profound reversal of symptoms, and perhaps an outright cure.  We are extremely hopeful that one of these will work!

While our hopes are high, fundraising is the necessary foundation to change the lives of our Alice and 350,000 others living with Rett Syndrome. Last year, all of your overwhelming generosity raised nearly $75,000. This was invaluable to the Rett Syndrome Research Trust (RSRT) to fund lab equipment and a world-class research team making important advancements in each of the priority approaches. We are mere years away from something incredible reaching clinical trials, but to get there, we need your help once again. Please consider donating to open up a world where Alice can be whoever and whatever she wants to be.

(RSRT is a non-profit organization and all donations are 100% tax deductible.)

Thank you from the bottom of our hearts!
Love,
Allen, Kelsey, & Alice

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$5000

Alice's Hero

6 Donors

$2500

Alice's Warrior

0 Donors

$1000

Alice's Star

2 Donors

$500

Alice's Champion

11 Donors

$250

Alice's Supporter

14 Donors

$100

Alice's Advocate

21 Donors

Name Donate Amount Date
Ann Fuller $10.00 May 14, 2020
Reema Sareen $250.00 April 28, 2020
Cecile Pitts $60.00 March 30, 2020
Ann Fuller $10.00 March 16, 2020
Rita O’Dwyer $150.00 February 19, 2020
Brian Oveson $250.00 February 19, 2020
Ann Fuller $10.00 February 13, 2020
Cecile Pitts $30.00 January 29, 2020
Nike, Inc. $300.00 January 27, 2020
Anna Schoborg $300.00 January 27, 2020
Microsoft $5,000.00 January 27, 2020
Janice Liebler $40.00 January 22, 2020
Dorothy & William Rector $25.00 January 17, 2020
Deckers Outdoor Corporation $100.00 January 14, 2020
Richard Eacker $100.00 January 06, 2020
Cecile Pitts $330.00 January 06, 2020
Erinne Dilworth $100.00 January 01, 2020
Anonymous $150.00 January 01, 2020
Mr. and Mrs. Kartik Lamba $250.00 December 27, 2019
Marilyn Morrish $100.00 December 27, 2019
Terry Ferrucci $100.00 December 25, 2019
Ron Johnson $200.00 December 25, 2019
John Domreis $100.00 December 25, 2019
Mary Savage $250.00 December 25, 2019
Anonymous $500.00 December 25, 2019
Nimaljeet Tarango $101.00 December 24, 2019
Debra Fish $100.00 December 24, 2019
Ian Steiner $500.00 December 21, 2019
Sadie Johnson $500.00 December 20, 2019
Robin Rogers $50.00 December 19, 2019
Leuning Lathara $1,000.00 December 18, 2019
Dorothy Reisbord $500.00 December 18, 2019
William Lowery $100.00 December 18, 2019
Susan Cota $100.00 December 18, 2019
Chu family $10,000.00 December 16, 2019
Ruth & Jeffrey Franz $100.00 December 16, 2019
Kate Dewein $300.00 December 16, 2019
Marnie Kumakura $100.00 December 15, 2019
Anonymous $5,000.00 December 13, 2019
Kenneth Chu $1,000.00 December 10, 2019
Laura House $50.00 December 07, 2019
Jessica Madsen $50.00 December 07, 2019
Diana Ecker $300.00 December 06, 2019
Anne Freeman $500.00 December 05, 2019
Chris Freeman $100.00 December 05, 2019
Ali Trinh $25.00 December 04, 2019
Troy Wallin $100.00 December 04, 2019
Roberta Horne $250.00 December 04, 2019
Amy Morse $100.00 December 04, 2019
David Amiton $50.00 December 04, 2019
Andrew Burkemper $250.00 December 04, 2019
Caitlin White $100.00 December 03, 2019
David Domreis $500.00 December 03, 2019
Anonymous $500.00 December 03, 2019
Lynn E Oveson $10,000.00 December 03, 2019
Will Johnston $100.00 December 03, 2019
Cyrus Press $500.00 December 03, 2019
Shubham Mukherjee $500.00 December 03, 2019
Suraj Sengupta $500.00 December 03, 2019
Jasper Shen $250.00 December 03, 2019
Carl Press $100.00 December 02, 2019
Lindsay MacLarty $250.00 December 02, 2019
Martin Rowland $500.00 December 02, 2019
Carrie Foote $250.00 December 02, 2019
$10,000.00 November 26, 2019
Kelsey & Allen Chu $20,000.00 November 26, 2019
Edrian Colina $5.00 November 25, 2019
Tim Freeman $10.00 November 25, 2019