Thankfully, life seems to be resembling some form of “normalcy” again as we try to recover post pandemic. We sure are glad those times are behind us and hope that you all are doing well. With the start of a new school year for Alice this past week and the exciting advancements in gene therapy for Rett this year, we wanted to reach out and share.
Alice started 2nd grade last week and she is ecstatic to be back in her general education classroom with her friends! She was able to attend a summer school program this year so she was able to spend more time in a place she loves.
Alice’s therapies are all back in person thankfully and she is working hard every week in speech, occupational therapy, and physical therapy. She is trying a new form of robot-assisted PT, which is incredible. We are very excited to see the gains she continues to make in her walking and hopefully will see more in communication this upcoming year as well.
There were three incredibly exciting advancements in Rett research this past year:
We are incredibly hopeful for the improvements these drugs could make for Alice and her future!!! The outlook has never looked so promising and in large part due to your past contributions to Alice’s campaign in support of RSRT. We are overwhelmingly appreciative of the support that we have and continue to receive from each of you. As we are kicking off a new campaign, we want to emphasize that every little bit has enabled the Rett Syndrome Research Trust (RSRT) to deliver on their mission of finding a cure. Through their pipeline of ground-breaking therapeutic approaches, we are hopeful that Alice will be able to have life-changing treatment within a few years. This wouldn’t be possible without you all and we are grateful for the daily support you give Alice.
Thank you.
With love,
Allen & Kelsey Chu
| Name | Donation Amount | Date |
|---|---|---|
| Florence Seelig | $500 | September 09, 2024 |
| Marie Roome | $250 | June 15, 2024 |
| Lynn Oveson | $6,000 | January 01, 2024 |
| Kevin Rompala | $250 | December 31, 2023 |
| Rita Odwyer | $100 | December 30, 2023 |
| Lynn and Jim Oveson/pruitt | $10,000 | December 28, 2023 |
| Lynn and Jim Oveson/pruitt | $10,000 | December 28, 2023 |
| Caitlin White | $100 | December 26, 2023 |
| Anonymous | $500 | December 26, 2023 |
| Karen Griffith | $100 | December 23, 2023 |
| Martha Savage | $200 | November 28, 2023 |
| Anonymous | $500 | November 14, 2023 |
| Anonymous | $1,000 | October 31, 2023 |
| Florence Seelig | $200 | October 17, 2023 |
| Thomas Bravo Match of Carl Press | $150 | October 12, 2023 |
| Suraj Sengupta | $500 | October 12, 2023 |
| Anonymous | $500 | October 01, 2023 |
| Troy Wallin | $100 | September 29, 2023 |
| Anonymous | $100 | September 29, 2023 |
| Anne Freeman | $500 | September 26, 2023 |
| Mel Sebot | $500 | September 23, 2023 |
| Andrew Burkemper | $250 | September 23, 2023 |
| Lisa Spelman | $500 | September 21, 2023 |
| Carl Press | $150 | September 20, 2023 |
| Will Johnston | $100 | September 20, 2023 |
| David Domreis | $250 | September 19, 2023 |
| florence hausler | $250 | September 19, 2023 |
| Jane & Jack Bierwirth | $20,000 | September 19, 2023 |
| Chris Freeman | $50 | September 19, 2023 |
| Cyrus Press | $500 | September 19, 2023 |
| Debra Fish | $50 | September 18, 2023 |
| Family Chu | $10,000 | September 18, 2023 |
| Jessica Madsen | $25 | September 18, 2023 |
| Dave Hill | $300 | September 18, 2023 |
| Fran Folkman | $50 | September 18, 2023 |
| Shubham Mukherjee | $500 | September 17, 2023 |
| Roberta Horne | $100 | September 17, 2023 |
| Dotti Reisbord | $1,000 | September 17, 2023 |
| Dotti Reisbord | $0 | September 17, 2023 |
| Richard Eacker | $100 | September 17, 2023 |
| Intel Corporation | $20,000 | September 13, 2023 |
| Kelsey & Allen Chu | $35,000 | September 13, 2023 |