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A Cure for Owen

A campaign by: Lindsay Bratkowski
133 Donors
Raised Percent :
100%

100% Funded
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PLEASE NOTE THAT YOUR CREDIT CARD WILL BE CHARGED IN US DOLLARS

Our son, Owen, was born with a neurological disorder called MECP2 Duplication Syndrome. It impacts all aspects of our lives- he is unable to walk, unable to talk, and has many complex medical issues. Most individuals that have MECP2 DS have seizures that are resistant to medications, mobility issues due to low muscle tone, intellectual disabilities, immune deficiencies, challenges with feeding, communication, and other complex health issues.

MECP2 DS is a cruel and progressive disease. Owen’s world is one where each day could be our last good day.  At 13 months of age, Owen was hospitalized in the ICU and almost died from a common cold. Since then, we have lived with the fear of losing Owen every day for the last 3 years. It is a horrible reality that he will face for the rest of his life.

Owen has seen more doctors, spent more time in hospital, had more tests, more illnesses, and more hours of therapy than most. He has to work twice as hard to do the things that most people take for granted. Despite all this, he is extremely determined, and does all of this with more grace than most adults could muster. He is loved by so many- he is such a beautiful, loving, and sweet person. When he smiles, it is with pure joy and his laugh is contagious. We are extremely proud and lucky to be Owen’s parents.

We are usually very private people, but we are putting this out into the world because tangible hope exists for Owen, and for others like him.

We’re asking you- our friends, family, and community to open your hearts and donate to give Owen, and other children just like him, the HOPE that they deserve. Hope for a long, happy, and healthy life. Hope that they will be able to run, play, and make friends. Hope for A CURE.

100% of all funds raised from this campaign will go directly towards research looking for a cure for MECP2 Duplication Syndrome. We have brilliant researchers in the U.S. and in Canada working RIGHT NOW towards clinical trials, and a REAL CURE in the very near future… IF the funds to conduct the research can be raised.

Please help us find a cure for Owen, for us, for the MECP2 families struggling every day to keep their children as happy and healthy as possible. Every little bit counts. Thank you from the bottom of our hearts, and all the best to you and your family.

“None of us, including me, ever do great things. But we can all do small things, with great love, and together we can do something wonderful”
– Mother Theresa

With love,
Lindsay and Matthew

Make a Donation

Donation Amount
Minimum amount is $ Maximum amount is $100000
$
Name Donation Amount Date
Cindy Bratkowski $255 October 09, 2023
Sarah Browne $100 August 30, 2023
Gael Chivas $250 September 08, 2022
Timothy Freeman $10 September 02, 2022
Anonymous $25 May 21, 2022
Erica Robertson $500 May 20, 2022
Sarah Browne $50 December 02, 2021
Ken and Cindy Bratkowski $500 November 30, 2021
Bob & Karen Bryant $500 June 15, 2021
Bob & Karen Bryant $0 June 15, 2021
Christopher Hussell $100 February 24, 2021
Susan Evans $50 February 15, 2021
Shirley Thomasson $50 January 12, 2021
Judith Parkes $50 December 31, 2020
Colleen and Kevin O’Brien $100 December 31, 2020
Laurie Manning $100 December 31, 2020
Ian Wood $1,000 December 31, 2020
Therese Milis $50 December 31, 2020
Joyce Nasu $100 December 30, 2020
Cindy Bratkowski $1,000 December 25, 2020
Christopher Witoski $100 December 11, 2020
Sarah Canning $100 December 05, 2020
Rosemarie Woolley $500 December 04, 2020
Jennifer Goyer $50 December 03, 2020
Bruce Wood Jr $100 December 03, 2020
Laurie Cross $100 December 02, 2020
Kate Vawter $100 December 02, 2020
Laura McCarthy $50 December 01, 2020
Bryan Burles $100 December 01, 2020
Karen Harris $100 December 01, 2020
Ben Colangelo $50 December 01, 2020
Alice Coulson $30 December 01, 2020
Ashlee Patrick $25 December 01, 2020
Angie Glikson $50 December 01, 2020
Heather Way $50 December 01, 2020
Jill Dalton $150 December 01, 2020
Arnold Leung $100 December 01, 2020
Alex Hansen $100 November 25, 2020
Anonymous $20 October 14, 2020
Margaret Bratkowski $1,000 August 21, 2020
Alice Coulson $20 July 29, 2020
Benita Yuan $250 July 23, 2020
Giancarlo Cusano $350 May 17, 2020
Anonymous $100 May 10, 2020
Nancy Clarke $50 March 31, 2020
Elizabeth Carscadden $50 March 26, 2020
Zachary Hebert $50 March 08, 2020
Robert Rosa $100 March 08, 2020
Mike Johnson $50 March 07, 2020
Christopher Cumming $20 March 06, 2020
Marilyn Block $100 March 04, 2020
Bonnie Lo $50 March 02, 2020
Bryan Burles $100 March 01, 2020
Antie Julie, Martin and Evan Bratkowski $170 February 19, 2020
June Lum $100 February 19, 2020
Greg & Lou Dion $250 February 18, 2020
Mike Taylor $100 February 14, 2020
Alvina & Pat Daniel $100 February 14, 2020
Jurgen Wolter $100 February 13, 2020
Ken and Cindy Bratkowski $1,500 February 12, 2020
Ana Despotovska $200 February 11, 2020
Tristan Lizanne $50 February 11, 2020
Allan & Sharleen Briscoe $100 February 11, 2020
Anonymous $25 February 10, 2020
Sijia Lun $50 February 10, 2020
Sandie Bird $100 February 10, 2020
Christine Millar $100 February 10, 2020
Dale & Gary Bird $100 February 10, 2020
Katie Bird $100 February 09, 2020
Scott Taylor $100 February 09, 2020
Cristin Bird $100 February 09, 2020
nancy clarke $50 February 09, 2020
Anne Kinvig $50 February 09, 2020
STEVE CLARKE $200 February 09, 2020
Shirley Thomasson $50 February 08, 2020
Tarryn Rudolph $75 February 08, 2020
Erica Eghtesad $50 February 08, 2020
Susan Evans $100 February 08, 2020
Tyson Lewis $250 February 08, 2020
Sarah Dungait $100 February 08, 2020
Maria Toner $50 February 08, 2020
Nancy Taylor $100 February 07, 2020
Julie Paul $100 February 07, 2020
Alison & Colin Scarlett $500 February 07, 2020
Peter CUTHBERT $50 February 07, 2020
Judith Parkes $50 February 07, 2020
Drew Devlin $100 February 07, 2020
Ashley and Harry Woodhouse $250 February 07, 2020
howard and Debra mccarthy $100 February 07, 2020
Dave/Sue & family Clarke $200 February 07, 2020
Kyle Boyes $50 February 07, 2020
Brian Rooney $50 February 07, 2020
Rob Catherine and Jasmine $250 February 07, 2020
Natalie Rosecky $50 February 07, 2020
Hannah Szeto $100 February 07, 2020
Marco Parlato $100 February 07, 2020
Kate & Jason Vawter $100 February 07, 2020
Katherine Martin $100 February 07, 2020
Shelby Lawrence $100 February 07, 2020
Baillie & Chelsea Hughes $150 February 06, 2020
Amninder Gill $200 February 06, 2020
Nick Bertolone $50 February 06, 2020
Reg & Jeanette Perry $100 February 06, 2020
Meagan Wilsdon $25 February 06, 2020
Leo Savino $100 February 06, 2020
Carol-Lee Campbell $100 February 06, 2020
LESLIE ABE $50 February 06, 2020
Dianna King $100 February 06, 2020
LESLIE ABE $50 February 06, 2020
Leanne Perry $100 February 06, 2020
Rosemarie Woolley $1,000 February 06, 2020
Anonymous $50 February 06, 2020
Shaun Marsden $500 February 06, 2020
Dayle Cross $250 February 06, 2020
David and Susan Smith $500 February 06, 2020
Andrew Lusignan $100 February 06, 2020
Cass Smith $50 February 06, 2020
Matthew Stewart $50 February 06, 2020
Katherine Rinald $250 February 06, 2020
Jon Finlayson $100 February 06, 2020
Karen Harris $100 February 06, 2020
Stephanie Suurdt $100 February 06, 2020
Juan Orozco $200 February 06, 2020
Shonna Hill $50 February 06, 2020
Karen & Simon Hughes $100 February 06, 2020
Kristina Emmott $250 February 06, 2020
Patrick Harris $100 February 06, 2020
Anonymous $50 February 06, 2020
Julia Payson $100 February 06, 2020
Spencer McLennan $250 February 06, 2020