A Cure for Owen

A campaign by: Lindsay Bratkowski
91 Donors
$14,135.00 Raised
$10,000.00 Goal
Raised Percent :
141.35%

141.35% Funded
Share this campaign:

PLEASE NOTE THAT YOUR CREDIT CARD WILL BE CHARGED IN US DOLLARS

Our son, Owen, was born with a neurological disorder called MECP2 Duplication Syndrome. It impacts all aspects of our lives- he is unable to walk, unable to talk, and has many complex medical issues. Most individuals that have MECP2 DS have seizures that are resistant to medications, mobility issues due to low muscle tone, intellectual disabilities, immune deficiencies, challenges with feeding, communication, and other complex health issues.

MECP2 DS is a cruel and progressive disease. Owen’s world is one where each day could be our last good day.  At 13 months of age, Owen was hospitalized in the ICU and almost died from a common cold. Since then, we have lived with the fear of losing Owen every day for the last 3 years. It is a horrible reality that he will face for the rest of his life.

Owen has seen more doctors, spent more time in hospital, had more tests, more illnesses, and more hours of therapy than most. He has to work twice as hard to do the things that most people take for granted. Despite all this, he is extremely determined, and does all of this with more grace than most adults could muster. He is loved by so many- he is such a beautiful, loving, and sweet person. When he smiles, it is with pure joy and his laugh is contagious. We are extremely proud and lucky to be Owen’s parents.

We are usually very private people, but we are putting this out into the world because tangible hope exists for Owen, and for others like him.

We’re asking you- our friends, family, and community to open your hearts and donate to give Owen, and other children just like him, the HOPE that they deserve. Hope for a long, happy, and healthy life. Hope that they will be able to run, play, and make friends. Hope for A CURE.

100% of all funds raised from this campaign will go directly towards research looking for a cure for MECP2 Duplication Syndrome. We have brilliant researchers in the U.S. and in Canada working RIGHT NOW towards clinical trials, and a REAL CURE in the very near future… IF the funds to conduct the research can be raised.

Please help us find a cure for Owen, for us, for the MECP2 families struggling every day to keep their children as happy and healthy as possible. Every little bit counts. Thank you from the bottom of our hearts, and all the best to you and your family.

“None of us, including me, ever do great things. But we can all do small things, with great love, and together we can do something wonderful”
– Mother Theresa

With love,
Lindsay and Matthew

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$1000

Owen's Hero

3 Donors

$500

Owen's Star

3 Donors

$250

Owen's Champion

10 Donors

$100

Owen's Supporter

45 Donors

$50

Owen's Advocate

26 Donors

Name Donate Amount Date
Margaret Bratkowski $1,000.00 August 21, 2020
Alice Coulson $20.00 July 29, 2020
Benita Yuan $250.00 July 23, 2020
Giancarlo Cusano $350.00 May 17, 2020
Anonymous $100.00 May 10, 2020
Nancy Clarke $50.00 March 31, 2020
Elizabeth Carscadden $50.00 March 26, 2020
Zachary Hebert $50.00 March 08, 2020
Robert Rosa $100.00 March 08, 2020
Mike Johnson $50.00 March 07, 2020
Christopher Cumming $20.00 March 06, 2020
Marilyn Block $100.00 March 04, 2020
Bonnie Lo $50.00 March 02, 2020
Bryan Burles $100.00 March 01, 2020
Antie Julie, Martin and Evan Bratkowski $170.00 February 19, 2020
June Lum $100.00 February 19, 2020
Greg & Lou Dion $250.00 February 18, 2020
Mike Taylor $100.00 February 14, 2020
Alvina & Pat Daniel $100.00 February 14, 2020
Jurgen Wolter $100.00 February 13, 2020
Ken and Cindy Bratkowski $1,500.00 February 12, 2020
Ana Despotovska $200.00 February 11, 2020
Tristan Lizanne $50.00 February 11, 2020
Allan & Sharleen Briscoe $100.00 February 11, 2020
Anonymous $25.00 February 10, 2020
Sijia Lun $50.00 February 10, 2020
Sandie Bird $100.00 February 10, 2020
Christine Millar $100.00 February 10, 2020
Dale & Gary Bird $100.00 February 10, 2020
Katie Bird $100.00 February 09, 2020
Scott Taylor $100.00 February 09, 2020
Cristin Bird $100.00 February 09, 2020
nancy clarke $50.00 February 09, 2020
Anne Kinvig $50.00 February 09, 2020
STEVE CLARKE $200.00 February 09, 2020
Shirley Thomasson $50.00 February 08, 2020
Tarryn Rudolph $75.00 February 08, 2020
Erica Eghtesad $50.00 February 08, 2020
Susan Evans $100.00 February 08, 2020
Tyson Lewis $250.00 February 08, 2020
Sarah Dungait $100.00 February 08, 2020
Maria Toner $50.00 February 08, 2020
Nancy Taylor $100.00 February 07, 2020
Julie Paul $100.00 February 07, 2020
Alison & Colin Scarlett $500.00 February 07, 2020
Peter CUTHBERT $50.00 February 07, 2020
Judith Parkes $50.00 February 07, 2020
Drew Devlin $100.00 February 07, 2020
Ashley and Harry Woodhouse $250.00 February 07, 2020
howard and Debra mccarthy $100.00 February 07, 2020
Dave/Sue & family Clarke $200.00 February 07, 2020
Kyle Boyes $50.00 February 07, 2020
Brian Rooney $50.00 February 07, 2020
Rob Catherine and Jasmine $250.00 February 07, 2020
Natalie Rosecky $50.00 February 07, 2020
Hannah Szeto $100.00 February 07, 2020
Marco Parlato $100.00 February 07, 2020
Kate & Jason Vawter $100.00 February 07, 2020
Katherine Martin $100.00 February 07, 2020
Shelby Lawrence $100.00 February 07, 2020
Baillie & Chelsea Hughes $150.00 February 06, 2020
Amninder Gill $200.00 February 06, 2020
Nick Bertolone $50.00 February 06, 2020
Reg & Jeanette Perry $100.00 February 06, 2020
Meagan Wilsdon $25.00 February 06, 2020
Leo Savino $100.00 February 06, 2020
Carol-Lee Campbell $100.00 February 06, 2020
LESLIE ABE $50.00 February 06, 2020
Dianna King $100.00 February 06, 2020
LESLIE ABE $50.00 February 06, 2020
Leanne Perry $100.00 February 06, 2020
Rosemarie Woolley $1,000.00 February 06, 2020
Anonymous $50.00 February 06, 2020
Shaun Marsden $500.00 February 06, 2020
Dayle Cross $250.00 February 06, 2020
David and Susan Smith $500.00 February 06, 2020
Andrew Lusignan $100.00 February 06, 2020
Cass Smith $50.00 February 06, 2020
Matthew Stewart $50.00 February 06, 2020
Katherine Rinald $250.00 February 06, 2020
Jon Finlayson $100.00 February 06, 2020
Karen Harris $100.00 February 06, 2020
Stephanie Suurdt $100.00 February 06, 2020
Juan Orozco $200.00 February 06, 2020
Shonna Hill $50.00 February 06, 2020
Karen & Simon Hughes $100.00 February 06, 2020
Kristina Emmott $250.00 February 06, 2020
Patrick Harris $100.00 February 06, 2020
Anonymous $50.00 February 06, 2020
Julia Payson $100.00 February 06, 2020
Spencer McLennan $250.00 February 06, 2020