PLEASE NOTE THAT YOUR CREDIT CARD WILL BE CHARGED IN US DOLLARS
Our son, Owen, was born with a neurological disorder called MECP2 Duplication Syndrome. It impacts all aspects of our lives- he is unable to walk, unable to talk, and has many complex medical issues. Most individuals that have MECP2 DS have seizures that are resistant to medications, mobility issues due to low muscle tone, intellectual disabilities, immune deficiencies, challenges with feeding, communication, and other complex health issues.
MECP2 DS is a cruel and progressive disease. Owen’s world is one where each day could be our last good day. At 13 months of age, Owen was hospitalized in the ICU and almost died from a common cold. Since then, we have lived with the fear of losing Owen every day for the last 3 years. It is a horrible reality that he will face for the rest of his life.
Owen has seen more doctors, spent more time in hospital, had more tests, more illnesses, and more hours of therapy than most. He has to work twice as hard to do the things that most people take for granted. Despite all this, he is extremely determined, and does all of this with more grace than most adults could muster. He is loved by so many- he is such a beautiful, loving, and sweet person. When he smiles, it is with pure joy and his laugh is contagious. We are extremely proud and lucky to be Owen’s parents.
We are usually very private people, but we are putting this out into the world because tangible hope exists for Owen, and for others like him.
We’re asking you- our friends, family, and community to open your hearts and donate to give Owen, and other children just like him, the HOPE that they deserve. Hope for a long, happy, and healthy life. Hope that they will be able to run, play, and make friends. Hope for A CURE.
100% of all funds raised from this campaign will go directly towards research looking for a cure for MECP2 Duplication Syndrome. We have brilliant researchers in the U.S. and in Canada working RIGHT NOW towards clinical trials, and a REAL CURE in the very near future… IF the funds to conduct the research can be raised.
Please help us find a cure for Owen, for us, for the MECP2 families struggling every day to keep their children as happy and healthy as possible. Every little bit counts. Thank you from the bottom of our hearts, and all the best to you and your family.
“None of us, including me, ever do great things. But we can all do small things, with great love, and together we can do something wonderful”
– Mother Theresa
With love,
Lindsay and Matthew
| Name | Donation Amount | Date |
|---|---|---|
| Ken and Cindy Bratkowski | $366 | October 08, 2024 |
| Cindy Bratkowski | $255 | October 09, 2023 |
| Sarah Browne | $100 | August 30, 2023 |
| Gael Chivas | $250 | September 08, 2022 |
| Timothy Freeman | $10 | September 02, 2022 |
| Anonymous | $25 | May 21, 2022 |
| Erica Robertson | $500 | May 20, 2022 |
| Sarah Browne | $50 | December 02, 2021 |
| Ken and Cindy Bratkowski | $500 | November 30, 2021 |
| Bob & Karen Bryant | $500 | June 15, 2021 |
| Bob & Karen Bryant | $0 | June 15, 2021 |
| Christopher Hussell | $100 | February 24, 2021 |
| Susan Evans | $50 | February 15, 2021 |
| Shirley Thomasson | $50 | January 12, 2021 |
| Judith Parkes | $50 | December 31, 2020 |
| Colleen and Kevin O’Brien | $100 | December 31, 2020 |
| Laurie Manning | $100 | December 31, 2020 |
| Ian Wood | $1,000 | December 31, 2020 |
| Therese Milis | $50 | December 31, 2020 |
| Joyce Nasu | $100 | December 30, 2020 |
| Cindy Bratkowski | $1,000 | December 25, 2020 |
| Christopher Witoski | $100 | December 11, 2020 |
| Sarah Canning | $100 | December 05, 2020 |
| Rosemarie Woolley | $500 | December 04, 2020 |
| Jennifer Goyer | $50 | December 03, 2020 |
| Bruce Wood Jr | $100 | December 03, 2020 |
| Laurie Cross | $100 | December 02, 2020 |
| Kate Vawter | $100 | December 02, 2020 |
| Laura McCarthy | $50 | December 01, 2020 |
| Bryan Burles | $100 | December 01, 2020 |
| Karen Harris | $100 | December 01, 2020 |
| Ben Colangelo | $50 | December 01, 2020 |
| Alice Coulson | $30 | December 01, 2020 |
| Ashlee Patrick | $25 | December 01, 2020 |
| Angie Glikson | $50 | December 01, 2020 |
| Heather Way | $50 | December 01, 2020 |
| Jill Dalton | $150 | December 01, 2020 |
| Arnold Leung | $100 | December 01, 2020 |
| Alex Hansen | $100 | November 25, 2020 |
| Anonymous | $20 | October 14, 2020 |
| Margaret Bratkowski | $1,000 | August 21, 2020 |
| Alice Coulson | $20 | July 29, 2020 |
| Benita Yuan | $250 | July 23, 2020 |
| Giancarlo Cusano | $350 | May 17, 2020 |
| Anonymous | $100 | May 10, 2020 |
| Nancy Clarke | $50 | March 31, 2020 |
| Elizabeth Carscadden | $50 | March 26, 2020 |
| Zachary Hebert | $50 | March 08, 2020 |
| Robert Rosa | $100 | March 08, 2020 |
| Mike Johnson | $50 | March 07, 2020 |
| Christopher Cumming | $20 | March 06, 2020 |
| Marilyn Block | $100 | March 04, 2020 |
| Bonnie Lo | $50 | March 02, 2020 |
| Bryan Burles | $100 | March 01, 2020 |
| Antie Julie, Martin and Evan Bratkowski | $170 | February 19, 2020 |
| June Lum | $100 | February 19, 2020 |
| Greg & Lou Dion | $250 | February 18, 2020 |
| Mike Taylor | $100 | February 14, 2020 |
| Alvina & Pat Daniel | $100 | February 14, 2020 |
| Jurgen Wolter | $100 | February 13, 2020 |
| Ken and Cindy Bratkowski | $1,500 | February 12, 2020 |
| Ana Despotovska | $200 | February 11, 2020 |
| Tristan Lizanne | $50 | February 11, 2020 |
| Allan & Sharleen Briscoe | $100 | February 11, 2020 |
| Anonymous | $25 | February 10, 2020 |
| Sijia Lun | $50 | February 10, 2020 |
| Sandie Bird | $100 | February 10, 2020 |
| Christine Millar | $100 | February 10, 2020 |
| Dale & Gary Bird | $100 | February 10, 2020 |
| Katie Bird | $100 | February 09, 2020 |
| Scott Taylor | $100 | February 09, 2020 |
| Cristin Bird | $100 | February 09, 2020 |
| nancy clarke | $50 | February 09, 2020 |
| Anne Kinvig | $50 | February 09, 2020 |
| STEVE CLARKE | $200 | February 09, 2020 |
| Shirley Thomasson | $50 | February 08, 2020 |
| Tarryn Rudolph | $75 | February 08, 2020 |
| Erica Eghtesad | $50 | February 08, 2020 |
| Susan Evans | $100 | February 08, 2020 |
| Tyson Lewis | $250 | February 08, 2020 |
| Sarah Dungait | $100 | February 08, 2020 |
| Maria Toner | $50 | February 08, 2020 |
| Nancy Taylor | $100 | February 07, 2020 |
| Julie Paul | $100 | February 07, 2020 |
| Alison & Colin Scarlett | $500 | February 07, 2020 |
| Peter CUTHBERT | $50 | February 07, 2020 |
| Judith Parkes | $50 | February 07, 2020 |
| Drew Devlin | $100 | February 07, 2020 |
| Ashley and Harry Woodhouse | $250 | February 07, 2020 |
| howard and Debra mccarthy | $100 | February 07, 2020 |
| Dave/Sue & family Clarke | $200 | February 07, 2020 |
| Kyle Boyes | $50 | February 07, 2020 |
| Brian Rooney | $50 | February 07, 2020 |
| Rob Catherine and Jasmine | $250 | February 07, 2020 |
| Natalie Rosecky | $50 | February 07, 2020 |
| Hannah Szeto | $100 | February 07, 2020 |
| Marco Parlato | $100 | February 07, 2020 |
| Kate & Jason Vawter | $100 | February 07, 2020 |
| Katherine Martin | $100 | February 07, 2020 |
| Shelby Lawrence | $100 | February 07, 2020 |
| Baillie & Chelsea Hughes | $150 | February 06, 2020 |
| Amninder Gill | $200 | February 06, 2020 |
| Nick Bertolone | $50 | February 06, 2020 |
| Reg & Jeanette Perry | $100 | February 06, 2020 |
| Meagan Wilsdon | $25 | February 06, 2020 |
| Leo Savino | $100 | February 06, 2020 |
| Carol-Lee Campbell | $100 | February 06, 2020 |
| LESLIE ABE | $50 | February 06, 2020 |
| Dianna King | $100 | February 06, 2020 |
| LESLIE ABE | $50 | February 06, 2020 |
| Leanne Perry | $100 | February 06, 2020 |
| Rosemarie Woolley | $1,000 | February 06, 2020 |
| Anonymous | $50 | February 06, 2020 |
| Shaun Marsden | $500 | February 06, 2020 |
| Dayle Cross | $250 | February 06, 2020 |
| David and Susan Smith | $500 | February 06, 2020 |
| Andrew Lusignan | $100 | February 06, 2020 |
| Cass Smith | $50 | February 06, 2020 |
| Matthew Stewart | $50 | February 06, 2020 |
| Katherine Rinald | $250 | February 06, 2020 |
| Jon Finlayson | $100 | February 06, 2020 |
| Karen Harris | $100 | February 06, 2020 |
| Stephanie Suurdt | $100 | February 06, 2020 |
| Juan Orozco | $200 | February 06, 2020 |
| Shonna Hill | $50 | February 06, 2020 |
| Karen & Simon Hughes | $100 | February 06, 2020 |
| Kristina Emmott | $250 | February 06, 2020 |
| Patrick Harris | $100 | February 06, 2020 |
| Anonymous | $50 | February 06, 2020 |
| Julia Payson | $100 | February 06, 2020 |
| Spencer McLennan | $250 | February 06, 2020 |