In January 2014, shortly before she turned three, our daughter Lily was diagnosed with Rett Syndrome. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities.
We believe that a cure is possible in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett.
Please. Join this fight.
Donation Amount
Minimum amount is $
Maximum amount is $100000
Donation levels
$10000
LILY'S STAR: Supports a clinical coordinator for 3 months at a Rett Syndrome clinic.
0 Donors
$5000
LILY'S CHAMP: Funds a lab technician for 3 months working on a critical Rett Syndrome trial.
0 Donors
$1000
LILY'S SUPPORTER: Supports the purchase of a biometric watch that gathers critical physiological data including seizures and stress levels.
0 Donors
$500
LILY'S FRIEND: Allows scientists to screen in a petri dish 4 compounds that could dramatically improve Rett symptoms.
0 Donors
$100
LILY'S ADVOCATE: Allows one compound to be screened in a petri dish that could be used to attack Rett Syndrome at its genetic route.
29 Donors
| Name | Donate Amount | Date |
|---|---|---|
| Beth & David Bernstein | $500.00 | January 27, 2020 |
| Ann Kelly | $100.00 | January 13, 2020 |
| Leslie Hess | $500.00 | January 13, 2020 |
| Liz Rubin | $25.00 | January 11, 2020 |
| Angela❤️ SALERNO | $100.00 | January 10, 2020 |
| Kerrian Fournier | $25.00 | January 10, 2020 |
| Karolynn Fernandez | $100.00 | January 10, 2020 |
| Angela Jirau | $50.00 | January 10, 2020 |
| ROSEMARY VOREL | $20.00 | January 10, 2020 |
| george kuzma | $100.00 | January 10, 2020 |
| Antoine Ebelle | $100.00 | January 10, 2020 |
| TIMOTHY MARKS | $20.00 | January 10, 2020 |
| Cristina Canas | $50.00 | January 10, 2020 |
| Kenneth Chu | $10.00 | December 27, 2019 |
| Kenneth Chu | $10.00 | December 27, 2019 |
| Angela Darling | $50.00 | December 24, 2019 |
| Lisa Wolff | $500.00 | December 24, 2019 |
| Bernice Vitagliano | $25.00 | December 08, 2019 |
| Miriam Salerno | $100.00 | December 07, 2019 |
| Alan Levine | $200.00 | December 05, 2019 |
| John Mahoney FB Fundraiser | $930.00 | December 04, 2019 |
| Beverly Salerno | $100.00 | December 04, 2019 |
| Daniel Johnston | $500.00 | December 04, 2019 |
| Delphine Voillemot | $100.00 | December 04, 2019 |
| David Bernstein | $858.00 | December 04, 2019 |
| Anonymous | $500.00 | December 04, 2019 |
| Ruth Katz | $100.00 | December 04, 2019 |
| Jennifer Stott | $100.00 | December 04, 2019 |
| Alejandra Blickensdorfer | $60.00 | December 04, 2019 |
| Stacy Salerno | $20.00 | December 04, 2019 |
| Laurene Benelli | $100.00 | December 04, 2019 |
| Angela Jirau | $50.00 | December 04, 2019 |
| Sarah Tyack | $50.00 | December 04, 2019 |
| Bernice Vitagliano | $50.00 | December 04, 2019 |
| Rhonda Huff | $100.00 | December 04, 2019 |
| Saman Ahsan | $100.00 | December 04, 2019 |
| Beverly Salerno | $100.00 | December 04, 2019 |
| Sara Jeffery | $30.00 | December 04, 2019 |
| Michael Shanahan | $50.00 | December 04, 2019 |
| Ainslie Vorel | $25.00 | December 04, 2019 |
| Beverly Salerno | $50.00 | December 04, 2019 |
| Suzanne Fiore | $10.00 | December 04, 2019 |
| Tanya Primiani | $50.00 | December 04, 2019 |
| Marsh & McLennan Dollars for Doers | $500.00 | December 04, 2019 |
| Andrew Wolf | $500.00 | December 04, 2019 |
| Noah Aberlin | $500.00 | December 04, 2019 |
| Carl & Laura Salerno | $30.00 | December 04, 2019 |
| $3,000.00 | December 04, 2019 | |
| Alan Levine | $200.00 | December 04, 2019 |
| Stephen Dove | $2,000.00 | December 04, 2019 |
| Previous Donors | $36,290.00 | December 04, 2019 |
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