A Cure for Lily

A campaign by: Christine Salerno
33 Donors
$47,353.00 Raised
$100,000.00 Goal
Raised Percent :
47.35%

98 Days to go
47.35% Funded
Share this campaign:
In January 2014, shortly before she turned three, our daughter Lily was diagnosed with Rett Syndrome. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities.
We believe that a cure is possible in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett.
Please. Join this fight.
Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$10000

LILY'S STAR: Supports a clinical coordinator for 3 months at a Rett Syndrome clinic.

0 Donors

$5000

LILY'S CHAMP: Funds a lab technician for 3 months working on a critical Rett Syndrome trial.

0 Donors

$1000

LILY'S SUPPORTER: Supports the purchase of a biometric watch that gathers critical physiological data including seizures and stress levels.

0 Donors

$500

LILY'S FRIEND: Allows scientists to screen in a petri dish 4 compounds that could dramatically improve Rett symptoms.

0 Donors

$100

LILY'S ADVOCATE: Allows one compound to be screened in a petri dish that could be used to attack Rett Syndrome at its genetic route.

21 Donors

Name Donate Amount Date
Miriam Salerno $100.00 December 07, 2019
Alan Levine $200.00 December 05, 2019
John Mahoney FB Fundraiser $930.00 December 04, 2019
Beverly Salerno $100.00 December 04, 2019
Daniel Johnston $500.00 December 04, 2019
Delphine Voillemot $100.00 December 04, 2019
David Bernstein $858.00 December 04, 2019
Anonymous $500.00 December 04, 2019
Ruth Katz $100.00 December 04, 2019
Jennifer Stott $100.00 December 04, 2019
Alejandra Blickensdorfer $60.00 December 04, 2019
Stacy Salerno $20.00 December 04, 2019
Laurene Benelli $100.00 December 04, 2019
Angela Jirau $50.00 December 04, 2019
Sarah Tyack $50.00 December 04, 2019
Bernice Vitagliano $50.00 December 04, 2019
Rhonda Huff $100.00 December 04, 2019
Saman Ahsan $100.00 December 04, 2019
Beverly Salerno $100.00 December 04, 2019
Sara Jeffery $30.00 December 04, 2019
Michael Shanahan $50.00 December 04, 2019
Ainslie Vorel $25.00 December 04, 2019
Beverly Salerno $50.00 December 04, 2019
Suzanne Fiore $10.00 December 04, 2019
Tanya Primiani $50.00 December 04, 2019
Marsh & McLennan Dollars for Doers $500.00 December 04, 2019
Andrew Wolf $500.00 December 04, 2019
Noah Aberlin $500.00 December 04, 2019
Carl & Laura Salerno $30.00 December 04, 2019
Google $3,000.00 December 04, 2019
Alan Levine $200.00 December 04, 2019
Stephen Dove $2,000.00 December 04, 2019
Previous Donors $36,290.00 December 04, 2019