In July 2019 Jackson was diagnosed with a very rare genetic disorder called MECP2 Duplication Syndrome. This boy has the best smile ever and the sweetest voice you will ever hear. He brings joy to everyone around him.
The future is very uncertain, but there is a glimmer of hope. A cure is in the making, and our dream is that he will see a cure in his lifetime.
For now, we continue to take things one day at a time. We soak in every little smile and laugh. And pray that they never go away. Every day is another opportunity to fight and remind this little guy just how special and loved he is.