Hunter travels his own development path, but after the inability to sit up during his first year, our pediatrician sent us to a neurologist. We were originally devastated when, just days before adopting Hunter at 17 months old, Jennifer and I received genetic testing results revealing that he had MECP2 Duplication Syndrome (MDS). We now seek to live each day in the moment. In doing so, 3-year-old Hunter has learned to eat, crawl, walk, communicate, and learn. However, we want what every parent wants for Hunter – a long, fruitful, and mostly struggle free life. But MDS creates challenges to that due to its numerous disabilities and symptoms – poor motor skills, immune system dysfunction, gastro reflux, hypotonia, feeding difficulties, seizures, intellectual disabilities, and autism – the list goes on. The work of researchers and interested pharmaceutical companies provides us hope and is driving us to do everything we can for Hunter and all children with MDS.
Our goal is to raise $30,000 between now and the new year to support furthering research efforts that deliver on the hope that MDS parents have been given for their children. We plan to do this by offering to match the first $15,000 in donations.
Hunter's Hero
6 Donors
Hunter's Star
2 Donors
Hunter's Champion
17 Donors
Hunter's Supporter
43 Donors
Hunter's Advocate
20 Donors
Hunter's Devotee
23 Donors
| Name | Donation Amount | Date |
|---|---|---|
| Thomas Behrens | $100 | February 14, 2023 |
| Ashley Wills | $10 | February 03, 2023 |
| Liberty Mutual | $1,000 | February 03, 2023 |
| Jennifer Friel | $250 | February 03, 2023 |
| Phillip Schulte | $250 | January 10, 2023 |
| Tod Parrella | $100 | January 06, 2023 |
| Teresa Mastrorilli | $100 | January 03, 2023 |
| David Hudson | $3,319 | December 26, 2022 |
| Kirk McGahey | $100 | December 22, 2022 |
| David Covini | $50 | December 21, 2022 |
| James Hall | $500 | December 20, 2022 |
| Mary Tinsley | $100 | December 19, 2022 |
| Sarah McAleese | $150 | December 18, 2022 |
| Katherine Da Costa | $200 | December 18, 2022 |
| Joseph Pierpaoli | $100 | December 16, 2022 |
| Anonymous | $100 | December 15, 2022 |
| Rebeccca Cookson | $50 | December 14, 2022 |
| Keith & Kristin Steger | $25 | December 14, 2022 |
| Donna Kimball | $25 | December 07, 2022 |
| Melissa Booth | $25 | December 07, 2022 |
| marie evangelista | $50 | December 06, 2022 |
| Anonymous | $30 | December 06, 2022 |
| Sandra Hebert | $25 | December 04, 2022 |
| Veronica Rudd | $50 | December 04, 2022 |
| Jennifer Mundy | $250 | December 04, 2022 |
| Anonymous | $2,000 | December 03, 2022 |
| Susannah Krenn | $50 | December 03, 2022 |
| Craig Letourneau | $50 | December 03, 2022 |
| Anonymous | $4,126 | December 03, 2022 |
| Cindy Rosenshein | $100 | December 02, 2022 |
| Kristen Umlah | $25 | December 02, 2022 |
| Lauren Delaney | $100 | December 02, 2022 |
| Ashley Wills | $100 | December 02, 2022 |
| Hayley Childs | $25 | December 02, 2022 |
| Cathi Stetson | $25 | December 02, 2022 |
| Alexander Elling-wilson | $25 | December 02, 2022 |
| Deirdre Sullivan | $25 | December 02, 2022 |
| Angie Leddin | $50 | December 02, 2022 |
| Dennis Carter | $250 | December 01, 2022 |
| Nola Todd | $100 | December 01, 2022 |
| Anonymous | $25 | December 01, 2022 |
| Amy Duffy | $20 | December 01, 2022 |
| Nancy Berquist | $50 | December 01, 2022 |
| Janine Evangelista | $50 | November 30, 2022 |
| Gregory Friel | $250 | November 30, 2022 |
| Karen Tuozzo | $50 | November 30, 2022 |
| Tyler Sharp | $20 | November 30, 2022 |
| Anonymous | $25 | November 30, 2022 |
| Sarah Clausen | $50 | November 30, 2022 |
| Stefany Shaheen | $100 | November 30, 2022 |
| Michael Martin | $100 | November 30, 2022 |
| Jim Koenig | $100 | November 29, 2022 |
| Mary Weil | $250 | November 29, 2022 |
| KE Hall | $250 | November 29, 2022 |
| Kate Otis | $100 | November 29, 2022 |
| Kimberly Sherman | $25 | November 29, 2022 |
| Anonymous | $50 | November 29, 2022 |
| Ken & Cindy Bratkowski | $250 | November 29, 2022 |
| lynnelle mclane | $250 | November 29, 2022 |
| Jen Lamy | $200 | November 29, 2022 |
| Christina Hill | $100 | November 29, 2022 |
| Karen McLaughlin | $100 | November 28, 2022 |
| Greta Friel | $250 | November 28, 2022 |
| Kelle Walsh | $25 | November 27, 2022 |
| Robyn Gallagher | $50 | November 27, 2022 |
| Jennifer Louloudes | $100 | November 26, 2022 |
| Colleen Whitham | $100 | November 26, 2022 |
| Andrea Barhydt | $50 | November 26, 2022 |
| Anonymous | $25 | November 26, 2022 |
| Brooke Baker | $100 | November 26, 2022 |
| Sarah Jackson | $100 | November 25, 2022 |
| Sue Yeatts | $100 | November 25, 2022 |
| Anonymous | $25 | November 25, 2022 |
| Devony Coley | $25 | November 25, 2022 |
| Marie Lenane | $25 | November 25, 2022 |
| Deborah Rearick-Curran | $100 | November 25, 2022 |
| Tara McLellan | $25 | November 25, 2022 |
| Anonymous | $250 | November 25, 2022 |
| Elizabeth Schocklin | $50 | November 25, 2022 |
| Laura Lifland | $100 | November 25, 2022 |
| Neil Johnson | $150 | November 25, 2022 |
| Paul Mouland | $150 | November 24, 2022 |
| Kelly Finneran | $100 | November 23, 2022 |
| Anonymous | $4,000 | November 23, 2022 |
| Anonymous | $50 | November 23, 2022 |
| Joe Tegnander | $100 | November 23, 2022 |
| Carol Smyth | $50 | November 23, 2022 |
| Jilliane Martin | $250 | November 23, 2022 |
| Nanci Ernst | $100 | November 22, 2022 |
| Matthew Sprissler | $25 | November 22, 2022 |
| Patricia Poole | $30 | November 22, 2022 |
| Michael Mullen | $100 | November 22, 2022 |
| Stephanie Schubert | $50 | November 21, 2022 |
| Brendan Friel | $100 | November 21, 2022 |
| Jacob Michaels | $36 | November 21, 2022 |
| Keith Friel | $250 | November 21, 2022 |
| Molly Capron | $25 | November 21, 2022 |
| Jamie Morris | $250 | November 21, 2022 |
| KJ Cardinal | $100 | November 21, 2022 |
| Jessica Baker | $200 | November 21, 2022 |
| Kathleen Connolly | $100 | November 20, 2022 |
| Laura Higginson | $150 | November 20, 2022 |
| Sara McNabb | $100 | November 20, 2022 |
| Anonymous | $100 | November 20, 2022 |
| Tania Conlon | $100 | November 20, 2022 |
| Colin McKean | $50 | November 19, 2022 |
| Matt Henry | $20 | November 19, 2022 |
| Deborah Minori | $400 | November 19, 2022 |
| Taylor Saul | $250 | November 19, 2022 |
| Jeremy Friel | $250 | November 19, 2022 |
| Janice Mondalto | $100 | November 18, 2022 |
| Joan Friel | $500 | November 18, 2022 |
| Jane Merli | $50 | November 18, 2022 |
| Jen Mcnally | $100 | November 18, 2022 |
| Anonymous | $1,000 | November 18, 2022 |