As most of you know, Colton was diagnosed with MECP2 Duplication Syndrome, a rare and severe, progressive neurological disorder, at 14 months old. There isn’t a day that goes by that I don’t think about diagnosis day and what this syndrome has robbed us of.
But, as most of you also know, there is hope. Therapeutic treatments and cures are being worked on by doctors and researchers. As long as we have hope, we will continue to fight for a better life for our son and the other children affected by this disorder. He is such a fighter, and loved by so many people; he deserves a life free of suffering.
We hope you will consider Colton and the rest of our community this Giving Tuesday.
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|Johnson & Taylor
|December 27, 2023