Colly was born healthy after an uneventful pregnancy in January 2021. She was developing right on track and very similar to her three older siblings who came before her. She rolled, smiled, sat, and crawled all on time. It wasn’t until a little after her first birthday that we started questioning why she wasn’t making any efforts to pull herself up off the ground to stand. We were told by her pediatrician not to worry and everything was fine, but a few more months went on and we knew something was off. We sought early intervention for physical therapy and they mentioned she should be seen by a neurologist to make sure nothing else was going on other than low tone. In September 2022, we did genetic testing to find she was positive for one of the mutations that cause Rett Syndrome.
Our lives have been forever changed by this news. Rett is rare, but even more so, it is extremely cruel and can affect every single function our bodies + organs do for us. Colly has a warrior spirit and is such a light to our family and everyone she meets. We will continue to advocate for her and be her voice while she doesn’t have the words. We are believing that with the cure on the horizon, she has a chance at a life with more opportunities and freedoms than she would without this.
All of the money we raise here goes directly to research done through the Rett Syndrome Research Trust to close in on the cure. Thank you for your support and helping us fight for our Colly Girl!!!
Make a Donation
|Sean Manning||$500.00||January 18, 2023|
|Mark Manning||$250.00||January 17, 2023|
|Ashley Gildea||$50.00||January 09, 2023|
|Stacey Wilcox||$250.00||January 06, 2023|
|Anonymous||$100.00||January 05, 2023|
|Heather Quinn||$50.00||January 01, 2023|
|Anonymous||$50.00||January 01, 2023|
|Mark Goodfellow Jr||$100.00||December 31, 2022|