In the fall of 2021 our oldest daughter, Chloe, was diagnosed with a MECP2 mutation which is responsible for her epilepsy diagnosis, her cognitive delays along with some physical & mental challenges. As a family, we want to bring as much awareness to the Rett Syndrome Research Trust to assist in finding a cure for syndromes associated with the MECP2 mutation, specifically, Rett syndrome. Chloe is a beautiful and vivacious 9-year-old girl who loves to play with her cousins & has always had an eye for fashion! Chloe wishes to be a pediatric doctor when she grows up, and we have no doubt that she will do everything possible to make that dream a reality. Chloe is very strong willed and with early intervention, she has worked so hard to change the trajectory of her future.
Within this past year, there has been extensive genetic research & trials dedicated to finding a treatment & cure for syndromes associated with the MECP2 mutation. This research has been funded by the supporters of the RSRT and we so greatly appreciate your generous donations towards our campaign.
We love Chloe endlessly and know she will do amazing things in this world. Please help us and the Rett Syndrome Research Trust find a cure!
Love always,
The Clancy Family
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Chloe's Advocate
13 Donors
Name | Donation Amount | Date |
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Patricia Fuccile | $250 | September 16, 2024 |
Megan Quinn | $100 | September 13, 2024 |
Brenda Sumner | $100 | September 13, 2024 |
Natalie Sessa | $100 | September 13, 2024 |
Margot Horvitz | $50 | September 13, 2024 |
Dani Echarte | $50 | September 13, 2024 |
Benjamin Schulze | $100 | September 13, 2024 |
David Campbell | $50 | September 12, 2024 |
Lauren Mahoney | $100 | September 12, 2024 |
Jon Andress | $50 | September 12, 2024 |
Jessica Sastre | $50 | September 12, 2024 |
Noreen Commella | $25 | September 12, 2024 |
Amanda Oloughlin | $50 | September 12, 2024 |
Meredith Doerr | $100 | September 12, 2024 |
Nicola Henry | $500 | September 12, 2024 |
Kimberly Norton | $50 | September 12, 2024 |
Victoria Ilitch | $100 | September 12, 2024 |
Michael McGuire | $100 | September 12, 2024 |
Michael McGuire | $50 | November 30, 2023 |
annalisa bruno | $50 | November 29, 2023 |
Kimberly Norton | $50 | November 28, 2023 |
Noreen Commella | $50 | November 28, 2023 |
Meredith Doerr | $50 | October 03, 2023 |
Lisa Rischar | $50 | October 02, 2023 |
Jenny Zalkin | $150 | October 02, 2023 |
Michele Lipsky | $100 | October 02, 2023 |
Kimberly Ciano | $100 | September 23, 2023 |
Teresa murphy | $100 | July 24, 2023 |
Margaret Margaret | $30 | March 15, 2023 |