A Cure for Charlie

A campaign by: Joe Trippodo / $15,000 Goal
65 Donors
Raised Percent :
41.67%

41.67% Funded
, United States (US)
Share this campaign:

To know Charlie is to know pure love and joy! Her eyes light up the room and it’s impossible not to fall in love with her. Her fun personality and sociability just draws you in! she is our heart and hero and we are her voice.

Charlie has had so many wonderful supporter’s since her diagnosis to help cheer her on and to help her meet her needs. xoxo Charlie’s Angels. Charlie fights every day against Rett syndrome and we need to fight hard to get our girl a cure to give her the best quality of life.

Currently there are several paths for a cure and trials going on to reduce symptoms and or reverse Rett syndrome. Scientist have been able to reverse the Mecp2 gene causing Rett syndrome in lab mice. We are so full of hope!

Charlie needs a cure as Rett syndrome continues to progress. Charlie is brilliant but is captive in the body that fails her. Rett syndrome has taken her ability to speak, use of her hands or walk. Despite this she persists with a smile, grace and unthinkable strength.

Charlie update: Like most of us, this has been a difficult year and extra hard on Charlie due to her fragile health. She has missed school, peers and being out in the world. She was hospitalized for tonic seizures that started this year and diagnosed with scoliosis. Unfortunately this is par for the course with the progression of Rett syndrome. Charlie continues to work hours a day in occupational therapy, physical therapy, speech, swim and horse therapy and has been able to not decline in these skills this year. (which is remarkable!) She continues to improve her communication skills on her Tobii eye gaze device and tells us “I am smart”, “I love you more” and directs us and jokes with us.

Please consider donating – if we had one wish it would be for a cure, she is our world.

Donation Amount Minimum amount is $ Maximum amount is $10000
Donation levels

$1000

Charlie's Superhero

1 Donor

$500

Charlie's Hero

3 Donors

$75

Charlie's Star

21 Donors

$50

Charlie's Warrior

14 Donors

$20

Charlie's Angel (ticket price)

25 Donors

Name Donate Amount Date
Mike McGhee $100.00 October 23, 2021
Shawn Delgado $20.00 October 21, 2021
Ayden/Jaxson Fritzler $50.00 October 14, 2021
Hollis Gabriel $50.00 October 12, 2021
Kevin Matthews $50.00 October 12, 2021
Kathie Barker $40.00 October 11, 2021
Anonymous $50.00 October 10, 2021
Julie Funderburk $75.00 October 10, 2021
Anonymous $20.00 October 10, 2021
Erik Getty $20.00 October 10, 2021
Terri Burkart $20.00 October 10, 2021
Emily Ingle $20.00 October 10, 2021
Olivia Burkart $20.00 October 10, 2021
Kristine Barnette $20.00 October 10, 2021
Anonymous $500.00 October 10, 2021
Robert Wright $35.00 October 10, 2021
Lara Ring $50.00 October 10, 2021
Judy Caldwell $20.00 October 10, 2021
Anonymous $75.00 October 10, 2021
Robert Whetstone $75.00 October 10, 2021
Megan Stevens $40.00 October 10, 2021
Tara Forrest $20.00 October 10, 2021
Anonymous $200.00 October 10, 2021
Jane McCann $20.00 October 10, 2021
Connor Smith $20.00 October 10, 2021
Eileen Packer $50.00 October 10, 2021
Heather Hogan $100.00 October 10, 2021
Emily Rieder $20.00 October 10, 2021
Terry Kennedy $20.00 October 09, 2021
Christine Motsinger $20.00 October 09, 2021
Anonymous $500.00 October 09, 2021
Karen Hirsch $50.00 October 09, 2021
Karen Hirsch $0.00 October 09, 2021
Anonymous $50.00 October 08, 2021
John Mann $75.00 October 08, 2021
scott/karen Romine $50.00 October 08, 2021
Steve Cushman $50.00 October 08, 2021
Rob and Sherrie Harmon $100.00 October 08, 2021
Joseph Trippodo $100.00 October 07, 2021
Doug Denny $50.00 October 07, 2021
Kathleen Trippodo $100.00 October 07, 2021
Terry Smith $75.00 October 07, 2021
Jeanne Tuders $50.00 October 07, 2021
Linda Coppola $20.00 October 07, 2021
Terry Kennedy $20.00 October 05, 2021
Christine McPEAK $100.00 October 05, 2021
Leigh McPeak $20.00 October 05, 2021
Patrick Forbis $1,000.00 October 05, 2021
william johnston $500.00 October 04, 2021
Susan Van Steenbergen $100.00 October 02, 2021
Victor Cruz $75.00 October 01, 2021
Joanna Lower $20.00 October 01, 2021
Skyler Light $20.00 October 01, 2021
Michael Gaspeny $200.00 September 30, 2021
Christine Lee $20.00 September 30, 2021
Misty Kicinskk $120.00 September 28, 2021
daniele clark $200.00 September 28, 2021
Lauren Atkinson $20.00 September 28, 2021
Colleen Callahan $50.00 September 27, 2021
Alice Hallinan $50.00 September 27, 2021
Marc&siobhan Trippodo $200.00 September 27, 2021
George Wike Huger $100.00 September 26, 2021
Anonymous $250.00 September 26, 2021
Luanne Mossa $75.00 September 23, 2021
Lucy Trippodo $20.00 September 22, 2021

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