PLEASE NOTE THAT DONATIONS ARE MADE IN USD
Welcome to the 5th McDoubles for Rett Charity Tennis Tournament. This year we have lofty fundraising goals, and to keep it social, are switching up the brackets to include men’s and women’s Doubles in lieu of Singles. The Wrap Up Party at Capilano Golf & Country Club will be the biggest yet with many opportunities to give and celebrate.
An Update on Evie Lotz:
The past 3 years have been ruthless watching our sweet Evie lose simple skills such as using her hands and saying words. As difficult as that felt, this year has brought on severe medical challenges. Now at the age of 4, she’s experiencing repeated seizures, struggling with declining movement, facing progressing scoliosis of her spine likely requiring surgery, and alarming moments when her body forgets how to breathe consistently.
Yet through it all, Evie continues to amaze us with her resilience and endeavour to be social. This year, preschool has given her an outlet to develop those joyful interactions. She has a teacher who fully “gets” her and friends that shower her with attention. Her preschool is well versed at using her eye-gaze device to teach, they do switch-adapted activities and even sourced her an adaptive bike so she can enjoy outdoor play with her classmates.
While moments like these give us hope, we know Evie’s challenges will only progress without intervention. That’s why we’re supporting the Rett Syndrome Research Trust (RSRT), an organization working tirelessly to cure Rett syndrome.
RSRT is leading the way in how Rett syndrome is approached, focusing not on symptom management but on the root cause: the MECP2 gene mutation. They fund cutting edge research on gene therapy, RNA editing, and MECP2 protein replacement aimed at correcting or even reversing the condition. RSRT’s science-backed approach offers real hope, they’re not just trying to slow down the symptoms of Rett syndrome, but are trying to cure it.
What sets RSRT apart is their relentless efficiency and focus. 96% of every dollar supports research, ensuring donations directly fuel the search for a cure. They collaborate with top scientists worldwide, creating a pipeline of promising therapeutics. These breakthroughs won’t just help those affected by Rett syndrome, they could transform treatments for other neurological disorders as well.
We dream of a future where Evie and thousands like her can live full, independent lives. With your help, that future is within reach. Every donation brings us closer to game-changing therapeutics. By supporting RSRT, you’re investing in a future where no child suffers from Rett syndrome
Thank you for being part of this journey with us. Your support means the world to us and to countless others fighting alongside us. Together, we can give Evie and all children with Rett syndrome the bright future they deserve.
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| Name | Donation Amount | Date |
|---|---|---|
| Kim Nowtash | $250 | January 03, 2025 |
| Yasmin Alibhai | $100 | January 03, 2025 |
| Mike Thompson | $150 | January 03, 2025 |
| Sunanda Saunders | $100 | January 03, 2025 |
| Chas Woodyer | $100 | January 02, 2025 |
| Murphy Tarves | $100 | January 01, 2025 |
| Nicola Campbell | $250 | January 01, 2025 |
| Bernadette Dunnigan | $250 | January 01, 2025 |
| Colleen Oneill | $200 | January 01, 2025 |
| Stacey Doran | $250 | January 01, 2025 |
| Anonymous | $100 | December 31, 2024 |
| Carly Monahan | $200 | December 31, 2024 |
| Eric Grant | $100 | December 31, 2024 |
| Bryan Henry | $250 | December 31, 2024 |
| Jillian Humphreys | $100 | December 31, 2024 |
| Anonymous | $150 | December 31, 2024 |
| Katie Drechsel | $150 | December 31, 2024 |
| Amanda Wood Cook | $150 | December 31, 2024 |
| Alex Hamilton | $250 | December 31, 2024 |
| Hunter Jordan | $100 | December 31, 2024 |
| Leah & Cameron McLeod | $500 | December 31, 2024 |