Our daughter Hattie is 4. She loves music, dancing with her mom, playing guitar with her dad, Barbie, and her doting brother Cooper. Her smile and laugh are infectious, and she lights up every room.
At 12 months old Hattie began to plateau developmentally. She was not crawling and was not pulling herself to a sitting position. She had lost the use of her left hand and all the language she had acquired. We began to search for a reason. We saw multiple specialists and waited for answers.
In December 2022, we received a call that changed our lives forever. Our daughter Hattie was diagnosed with Rett syndrome. Rett syndrome is a rare and devastating condition that predominantly affects girls. The prognosis is heart wrenching: Hattie may never walk or talk, and she will require assistance throughout her shortened life. She will most likely lose the use of her hands. She is also likely to experience seizures, cardiac abnormalities, and breathing difficulties. As parents, the weight of this diagnosis was almost unbearable, but instead of succumbing to grief, we’ve chosen to embrace hope.
We implore you to join us in the fight to find a cure for Hattie and all the girls with this cruel disease. Your contribution, no matter the size, is a beacon of hope in our journey. We are deeply grateful for your willingness to stand with us in this fight. Thank you from the bottom of our hearts for your kindness and support.
Hattie's Hero
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Hattie's Star
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Hattie's Champion
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Hattie's Supporter
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Hattie's Friend
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