For 13 years I and over 25 professional doctors in 5 children’s hospitals across 3 different states could not find a proper diagnosis for my son Liam’s illness. The frustration and stress was unconceivable.
My son, Liam, left this world October 20, 2020. He had just turned 13 a week before. During Liam’s lifetime we never knew the cause of all his symptoms which progressed and eventually affected the functioning of most of his body.
The relentless search for a diagnosis was so challenging because without it we could not find a cure. During Liam’s lifetime, science was not advanced to the point where we could find it. Without a diagnosis we couldn’t even begin to search for a cure.
In July of 2024, I finally learned that Liam’s diagnosis was Rett Syndrome.
Unfortunately, I can’t help find a cure for Liam. As Liam’s mother, in his memory, I am determined to find a cure for all other children with Rett Syndrome. I know, intimately, the challenges of living with Rett syndrome and hope that one day no child will have to live with such challenges.
Liam was so very strong, brave, patient, silly, sweet, innocent, calm, and just amazing. He loved music, his mom and dad, all the people who cared for and loved him, getting his hair washed, laughing, holding hands, and vocalizing.
There could be a cure. Help make it happen!
If you’re interested in learning more about Rett syndrome and a cure, Check out these links:
Liam's Hero
0 Donors
Liam's Star
1 Donor
Liam's Champion
2 Donors
Liam's Supporter
2 Donors
Liam's Advocate
1 Donor
Liam's Friend
5 Donors
| Name | Donation Amount | Date |
|---|---|---|
| Amanda Weinberg | $25 | October 15, 2024 |
| Sarah Brown | $25 | October 14, 2024 |
| Denise Pelletier | $100 | October 14, 2024 |
| Tanya Rudenjak | $400 | October 14, 2024 |
| Linda Peacock | $100 | October 04, 2024 |
| Francis Lumpkin | $25 | September 27, 2024 |
| Anonymous | $500 | September 23, 2024 |
| Barbara Katz | $15 | September 19, 2024 |
| Anonymous | $20 | September 16, 2024 |
| Andrea Sutherland | $50 | September 16, 2024 |
| Rose Ross | $25 | September 14, 2024 |
| Estelle Rattner | $25 | September 14, 2024 |
| Anonymous | $250 | September 12, 2024 |