Jaycee is a 10 year old girl who has been battling Rett syndrome since she was 12 months old. She is bubbly and has an amazing personality and when she laughs and smiles it brings sunshine to the cloudiest of days. Jaycee, like everyone else, has good days and bad days. Her good days are spent laughing and smiling. Her bad days are spent being frustrated. Unfortunately, Jaycee can’t communicate. She has lost the ability to speak, walk, and use her arms and hands in a purposeful manner. She must have all of her food puréed and is unable to feed herself. We cherish these bad days just as much as the good days, because we know that without a cure her symptoms could, and probably will, get worse.
We look forward to hopefully seeing everyone at an in-person event next year.
We will move mountains to make sure that the resources for finding a cure are obtainable. Thanks to support from so many people, remarkable research progress has been made over the last several years. Two gene therapy clinical trials for Rett syndrome are now moving forward. This is an approach that could lead to a cure, and it’s so important that we help keep the momentum going. Funding for this research comes only from us, the friends and families of little girls with Rett syndrome. Thank you so much for helping us change Jaycee’s life.
Sincerely,
Jaycee Rose’s loving family and friends
| Name | Donation Amount | Date |
|---|---|---|
| gary allard | $25 | July 18, 2024 |
| Christian Everett-Scherr | $50 | July 14, 2024 |
| Jason nurmi | $100 | July 12, 2024 |
| Tony Trzcinka | $50 | July 11, 2024 |
| Mike & Tina Stewart | $500 | July 11, 2024 |
| Lou Eisenman | $500 | November 02, 2023 |
| Mary Stewart | $500 | October 30, 2023 |
| Anonymous | $300 | October 30, 2023 |