On February 13th 2017 our family was introduced to the devastating disorder, Rett Syndrome. We often struggle remembering the rollercoaster of emotions we felt that specific day, which may seem odd to most. After all it was a day our family was informed that our daughter will never speak, will slowly deteriorate in eating and all gross motor skills and that she will most likely have an abridged life. What we do remember, like it was yesterday, was how we responded to this news…Diving head first into a fight for a cure!
There are endless options we have as parents when news like this is given to us, especially about our children. Our response, our attitude and our ultimate promise is that… We will Never stop fighting, Never Stop raising awareness and funds. Never stop giving Lily the best quality of life we can give. To those new to the “Rett Community” you are not alone. Our promise is to you as well. We look forward to celebrating with you on that special day where our promise is fulfilled and Rett is eradicated.
Juliann & Andrew Edwards
| Name | Donation Amount | Date |
|---|---|---|
| Larry & Dixie Edwards | $1,000 | July 16, 2024 |
| Jack Martin | $100 | April 20, 2024 |
| Susan Korn | $1,000 | December 24, 2023 |
| Larry & Dixie Edwards | $1,000 | December 15, 2023 |
| Stephanie Paris | $100 | October 16, 2023 |
| Vince Bilovsky | $250 | September 28, 2023 |
| JOHN FOSTER | $250 | May 23, 2023 |
| Martha Gomez | $250 | May 22, 2023 |
| Lia Maffett | $100 | February 07, 2023 |
| Susan Mazzella | $25 | January 24, 2023 |
| Larry & Dixie Edwards | $1,000 | December 29, 2022 |
| Beau Boudreaux | $5,000 | December 29, 2022 |
| $10,000 | December 01, 2022 | |
| Nhu Chung | $80 | November 29, 2022 |
| Anonymous | $141 | November 09, 2022 |
| Anonymous | $18 | November 09, 2022 |
| Wendell | $18 | November 09, 2022 |
| Trevor | $71 | November 09, 2022 |
| Leanne | $35 | November 09, 2022 |
| Anonymous | $575 | November 09, 2022 |
| Jay Earnest | $25 | November 09, 2022 |
| Renee Gunnels | $100 | November 09, 2022 |
| Norma Vasquez | $25 | November 09, 2022 |
| Jun Gao | $25 | November 09, 2022 |
| Fabio Alberto Rodriguez | $10 | November 09, 2022 |
| James Towry | $25 | November 09, 2022 |
| Kessia Alue | $24 | November 09, 2022 |
| Renee Moodle | $49 | November 09, 2022 |
| Gary Thornburg | $25 | November 09, 2022 |
| Amy Martinez | $25 | November 09, 2022 |
| Erika Valle | $25 | November 09, 2022 |
| Dale Scott | $25 | November 09, 2022 |
| Daniel Jones | $25 | November 09, 2022 |
| Hector Villasenor | $25 | November 09, 2022 |
| Jana Williams | $25 | November 09, 2022 |
| Dustin Kimble | $16 | November 09, 2022 |
| Fantasia Marks | $25 | November 09, 2022 |
| Scott Depuy | $25 | November 09, 2022 |
| Paul Jurovcik | $25 | November 09, 2022 |
| Clayton Swainhart | $25 | November 09, 2022 |
| Richard Vyhane | $25 | November 09, 2022 |
| Matthew Dunlap | $25 | November 09, 2022 |
| Malik Baker | $25 | November 09, 2022 |
| Scott Currier | $25 | November 09, 2022 |
| Ashley Boutte | $25 | November 09, 2022 |
| Phillip Wooten | $25 | November 09, 2022 |
| Luis Lopez | $25 | November 09, 2022 |
| Carlos Humberto Pizano | $25 | November 09, 2022 |
| Melissa Ladd | $15 | November 09, 2022 |
| Armando Prestegui | $25 | November 09, 2022 |
| Austin Winn | $25 | November 09, 2022 |
| Ayda Banos | $25 | November 09, 2022 |
| Adolfo Macias | $25 | November 09, 2022 |
| Nathan Plumbar | $25 | November 09, 2022 |
| Karla Hernandez | $25 | November 09, 2022 |
| Stefania Rossi | $25 | November 09, 2022 |
| Theresa Villarreal | $25 | November 09, 2022 |
| Andrew Castella | $25 | November 09, 2022 |
| Andrew Newsom | $25 | November 09, 2022 |
| Jonathan Frazier | $25 | November 09, 2022 |
| Michael Bagale | $25 | November 09, 2022 |
| Dana Coates | $25 | November 09, 2022 |
| Glover Houston | $25 | November 09, 2022 |
| Andrew & Juliann Edwards | $25 | November 09, 2022 |
| Areli Ramirez | $31 | November 09, 2022 |
| Anthony Shults | $25 | November 09, 2022 |
| Rachid Medarhi | $25 | November 09, 2022 |
| Jose Trevino | $25 | November 09, 2022 |
| Hugo Marquez | $57 | November 09, 2022 |
| $20,000 | November 09, 2022 | |
| $900 | November 09, 2022 | |
| Juliann and Andrew Edwards | $10,000 | September 28, 2022 |