In August of this year, our 2 year old beautiful daughter, Sloane, was diagnosed with Rett Syndrome. Sloane was a seemingly healthy baby but started to miss developmental milestones such as walking, climbing, and talking. With the help of PT, Sloane was able to walk and we are extremely thankful that she has maintained this skill and sometimes even runs, although unsteadily. She has lost the ability to use her hands to feed herself but she remains a little foodie that loves her vegetables and almost anything that is put on her plate. Her ability to play with the toys she previously loved has diminished and social interaction with other kids has waned. She still loves to be included and loves being surrounded by family. Sloane hasn’t been able to speak to us or tell her sister how much she loves her. She loves snuggling and riding in the wagon with her big sister Carter, loves following every move of her dog Murphy, loves the outdoors, and loves spinning, bouncing, swinging and sliding. Even without speech/language, we all make sure to let her know how much she is loved. She’ll tell you a story with her eyes and facial expressions. Her laugh and smile will make a bad day turn good. We continue to focus on all the amazing things Sloane CAN do and not the things Rett syndrome doesn’t allow her to do.
Our family was devastated by Sloane’s Rett Syndrome diagnosis but the amazing work of the Rett Syndrome Research Trust and all the companies and universities involved in researching/developing a cure give us hope that one day, Sloane can be given all those things that Rett has taken away. We have often been told, “if there is anything we can do, just let us know” but we didn’t know how best to give those wanting to help, an avenue to do so. This campaign provides that avenue. 100% of any donation made to this campaign goes to fund the research that we whole-heartedly believe will lead to a cure for Sloane and all the other amazing children and families that have been affected by Rett Syndrome. No donation is too small.
We are unexplainably grateful for any contribution.
Sincerely,
Sloane, Carter, Allie, and Tim Swanson
Sloane's Hero
0 Donors
Sloane's Champion
5 Donors
Sloane's Supporter
3 Donors
Sloane's Advocate
27 Donors
Sloane's Friend
17 Donors
| Name | Donation Amount | Date |
|---|---|---|
| Anonymous | $50 | March 22, 2022 |
| Jennifer Storment | $50 | January 30, 2022 |
| Kimberly Flores | $100 | January 23, 2022 |
| Bryce Walter | $100 | January 22, 2022 |
| Anonymous | $100 | January 20, 2022 |
| Robin Patterson | $100 | January 19, 2022 |
| Mary Chau-Nguyen | $500 | January 19, 2022 |
| Jessica Brown | $50 | January 19, 2022 |
| Sarah Loza | $50 | January 18, 2022 |
| Matt Dalpini | $100 | January 18, 2022 |
| Jennifer Tran-Huynh | $50 | January 17, 2022 |
| Cheri Adams | $50 | January 17, 2022 |
| Nertil Gjoza | $50 | January 17, 2022 |
| Rodney Winter | $1,000 | January 17, 2022 |
| Daniel Hammarlund | $100 | January 17, 2022 |
| Tom Clark | $50 | January 17, 2022 |
| Kayla Orindgreff | $50 | January 17, 2022 |
| Schwanke Tenille | $10 | January 17, 2022 |
| Tyler Thornton | $10 | January 16, 2022 |
| Cori Mosiman | $100 | January 16, 2022 |
| Kerry Pike | $100 | January 16, 2022 |
| Linda Innes | $50 | January 16, 2022 |
| Gina Hall | $50 | January 16, 2022 |
| Peter Newby | $100 | January 16, 2022 |
| Cody Hollister | $300 | January 16, 2022 |
| Renee Ford | $25 | January 16, 2022 |
| Michael Newby | $50 | January 16, 2022 |
| Timothy Hageman | $50 | January 16, 2022 |
| Sara Goodall | $15 | January 16, 2022 |
| Bilel Labidi | $100 | January 16, 2022 |
| Jillian Lamm | $25 | January 16, 2022 |
| Shelby Keller | $50 | January 16, 2022 |
| Mallory Ebers | $30 | January 16, 2022 |
| Lindsey Rangel | $100 | January 16, 2022 |
| Travis Tracy | $100 | January 16, 2022 |
| Summer Stephen | $25 | January 16, 2022 |
| Chelsea Breen | $25 | January 16, 2022 |
| Amanda Scheufler | $25 | January 16, 2022 |
| April Carron | $100 | January 16, 2022 |
| Sabrina Pfeifer | $25 | January 16, 2022 |
| Shailey Innes | $100 | January 16, 2022 |
| Stacey Howell | $1,000 | December 26, 2021 |
| Matthew Howell | $1,000 | December 26, 2021 |
| Anonymous | $100 | December 26, 2021 |
| Marsha Olmsted | $100 | December 26, 2021 |
| Anonymous | $5 | December 25, 2021 |
| Tiffany Adams | $100 | December 25, 2021 |
| Pam Olmsted | $100 | December 24, 2021 |
| Jamie Buster | $50 | December 24, 2021 |
| Katie Finkeldei | $50 | December 24, 2021 |
| Mid-America Orthopedics | $1,000 | November 11, 2021 |
| Michael Ray | $300 | November 06, 2021 |
| Jane Owens | $100 | November 02, 2021 |
| Leesa Barton | $50 | October 27, 2021 |
| Maggie Warner | $500 | October 26, 2021 |
| Brent Melroy | $250 | October 25, 2021 |
| Doug Gibb | $100 | October 23, 2021 |
| Stephen Gibb | $500 | October 23, 2021 |
| Virginia Swanson | $1,000 | October 22, 2021 |
| Cheryl Swanson | $100 | October 21, 2021 |
| Karen McAllaster | $100 | October 21, 2021 |
| Anonymous | $100 | October 21, 2021 |
| Timothy Freeman | $100 | October 20, 2021 |