Why I Want to Cure Rett Syndrome

  • Description
  • FAQ
  • Comments
  • Supporters
Hi, I’m Ellery Lynn Dirkse. I’m 10 years old, I’m in 4th grade, I have a cat, 2 brothers, a mom, and a dad. I also have a lot of friends, one of them is named Brenna Stearns. I’ve known her since literally the day she was born. When she was like 1 ½ she was diagnosed with Rett Syndrome, an awful neurological disorder that messes up a lot of things she does, but she does not let that stop her from doing great things. So I want to help her do even more cool things by working to cure Rett. Please help me by donating money to help scientists and researchers to get the equipment and other things they need.  Bye for now.

WHY I WANT A CURE


  1. To hear her voice

  2. To hang out with her on like swings and stuff

  3. To ride bikes with her

  4. To hear what’s in her head

  5. To have sleepovers

  6. So she won’t get seizures

  7. To goof off with her

  8. To swim with her

  9. To cure other girls with Rett


Thank you!

Ellery

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (20)

  1. Anonymous 
    3 days ago
    $115
  2. Anonymous 
    1 week ago
    $1,044
  3. Michelle Dixon  
    1 week ago
    $25
  4. Michelle Dixon  
    1 week ago
    $25
  5. Michelle Dixon  
    1 week ago
    $25
  6. Danielle Filler 
    1 week ago
    $25
  7. Maggie Mosley 
    1 week ago
    $25
  8. Erin Keefe 
    1 week ago
    $25
  9. Elizabeth Kemp 
    1 week ago
    $20
  10. Kendra Vernon 
    1 week ago
    $25
  11. Erik Richardson 
    1 week ago
    $50
  12. Megan Haveman 
    1 week ago
    $50
  13. Jennifer Matuzeski  
    2 weeks ago
    $25
  14. Emily Quiney 
    2 weeks ago
    $50
  15. Becky Underwood 
    2 weeks ago
    $50
  16. Tom & Jane French 
    3 weeks ago
    $50
  17. Jenine Kent 
    3 weeks ago
    $100
  18. Amy Wilson 
    3 weeks ago
    $50
  19. Sally Mack 
    3 weeks ago
    $25
  20. Angela Rose 
    3 weeks ago
    $100

This is a unique website which will require a more modern browser to work!

Please upgrade today!