Uma Cura Para Melissa

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Melissa tem 2 anos e 6 meses. Gosta muito de assistir desenhos. E adora dar risada. Há 5 semanas descobri que ela tem Síndrome de Rett. Foi um susto.  Fiquei super mal. Antes era um bebê normal. Depois de 9 meses começou a ter fraquezas nas pernas, não olhar quando eu chamo, não falar... Achei estranho e procurei a pediatra, que encaminhou para a Apae. Lá ela faz fisioterapia, terapia ocupacional e fono. E ainda precisa de muito mais:  fisioterapia, hidroterapia e equoterapia. Não encontro em minha cidade Pilar do Sul... estou procurando em Sorocaba.

Estou fazendo essa campanha para encontrar uma cura para a minha filha e para as outras meninas que tem essa doença. Para que tenham uma vida normal.

Agradeço muito sua doação! Que Deus te abençoe!

OBS: as doações são em dólares

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (1)

    2 years ago

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