The Force for Lucas

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Yes, there are boys with Rett. My grandson Lucas was recently diagnosed with Rett Syndrome, after almost a year of wondering what was wrong. He cannot eat or drink by mouth or use his arms and legs in a purposeful way. But his smiles are precious. He obviously loves his family. We need to cure this disease in his lifetime.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (13)

  1. Frank Pennington 
    2 years ago
    $100
  2. Gary Fox 
    2 years ago
    $30
  3. Benjamin Cloyd 
    2 years ago
    $50
  4. Stacey Duke 
    2 years ago
    $25
  5. Louise Flanagan 
    2 years ago
    $25
  6. Kindalin Moses 
    2 years ago
    $50
  7. Norma Jean Scrivener 
    2 years ago
    $25
  8. Therese Ljung 
    2 years ago
    $25
  9. Charlie Rodriguez 
    2 years ago
    $100
  10. Jason Pope 
    2 years ago
    $50
  11. Mary McDaniel 
    2 years ago
    $25
  12. Bernice Spurlock 
    2 years ago
    $25
  13. Debbie McCollum 
    2 years ago
    $50

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