The Force for Lucas

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Yes, there are boys with Rett. My grandson Lucas was recently diagnosed with Rett Syndrome, after almost a year of wondering what was wrong. He cannot eat or drink by mouth or use his arms and legs in a purposeful way. But his smiles are precious. He obviously loves his family. We need to cure this disease in his lifetime.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (13)

  1. Frank Pennington 
    1 year ago
    $100
  2. Gary Fox 
    1 year ago
    $30
  3. Benjamin Cloyd 
    1 year ago
    $50
  4. Stacey Duke 
    1 year ago
    $25
  5. Louise Flanagan 
    1 year ago
    $25
  6. Kindalin Moses 
    1 year ago
    $50
  7. Norma Jean Scrivener 
    1 year ago
    $25
  8. Therese Ljung 
    1 year ago
    $25
  9. Charlie Rodriguez 
    1 year ago
    $100
  10. Jason Pope 
    1 year ago
    $50
  11. Mary McDaniel 
    1 year ago
    $25
  12. Bernice Spurlock 
    1 year ago
    $25
  13. Debbie McCollum 
    1 year ago
    $50

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