Team Emma Runs Disneyland

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Emma and I are running our first 1/2 marathon on September 3rd and we're trying to raise $1,300 ($100 for every mile we're running) to find the cure for Rett! Will you help?

Emma and I are both 14 years old and have been friends since 2013. We have been running 5ks together since 2016 and the Disneyland 1/2 will be our first half marathon together! Emma always inspires me to work harder whether it be the way she continually exceeds the expectations of the people around her or the way that she looks at me letting me know, "Lucy, you need to run faster!" Each dollar helps us get closer to a cure, and closer to the day Emma can run across the finish line without any help.

Lucy Lundell


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (48)

  1. Brandi Gilbert 
    2 years ago
    $5
  2. Anonymous 
    2 years ago
    $135
  3. Kathi Welsh 
    2 years ago
    $250
  4. Danica & Bryan Newon 
    2 years ago
    $100
  5. Catherine Mentillo 
    2 years ago
    $5
  6. Joe and Sarah Graziani 
    2 years ago
    $50
  7. Todd Lundell 
    2 years ago
    $40
  8. Sandy Cairelli 
    2 years ago
    $25
  9. Jing Hua 
    2 years ago
    $25
  10. Lori Hawkins 
    2 years ago
    $25
  11. Elizabeth Weldon 
    2 years ago
    $50
  12. William O\'Hare 
    2 years ago
    $50
  13. Jessica Labbe 
    2 years ago
    $25
  14. Valarie Dennis 
    2 years ago
    $25
  15. Danielle Disanto 
    2 years ago
    $10
  16. Audrey Sweet 
    2 years ago
    $36
  17. Carissa Howard 
    2 years ago
    $50
  18. Jeffrey Lewis 
    2 years ago
    $13.10
  19. Jonathan Frank 
    2 years ago
    $25
  20. Charlotee Lundell 
    2 years ago
    $51
  21. Anonymous 
    2 years ago
    $75
  22. Laurie De Freitas 
    2 years ago
    $25
  23. Anonymous 
    2 years ago
    $50
  24. Jim Hull 
    2 years ago
    $100
  25. Irma Nelson 
    2 years ago
    $25
  26. James Mortensen  
    2 years ago
    $50
  27. Benjamin Chambless 
    2 years ago
    $30.90
  28. Kelly Privett  
    2 years ago
    $50
  29. George Urrutia  
    2 years ago
    $25
  30. Jonita Mortensen 
    2 years ago
    $50
  31. Dianne Teichrieb 
    2 years ago
    $50
  32. Dana Watkins 
    2 years ago
    $100
  33. Kaitlyn Holl 
    2 years ago
    $40
  34. David Greding  
    2 years ago
    $50
  35. Kim & Dan Davis 
    2 years ago
    $50
  36. Bonnie Klein 
    2 years ago
    $100
  37. Jill Green 
    2 years ago
    $25
  38. Kids Lemonade stand 
    2 years ago
    $116
  39. Kelly Lewis 
    2 years ago
    $100
  40. Emily Allwardt 
    2 years ago
    $50
  41. Jesseca Smith 
    2 years ago
    $100
  42. Allison Foley 
    2 years ago
    $100
  43. Ellen Fleming  
    2 years ago
    $100
  44. Debra Begando 
    2 years ago
    $20
  45. Ann Owens 
    2 years ago
    $100
  46. Carlee Padot McClurg 
    2 years ago
    $13.10
  47. Marianne Bates 
    2 years ago
    $25
  48. Paulina Mata 
    2 years ago
    $5

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