Team Emma Runs Disneyland

  • Description
  • FAQ
  • Comments
  • Supporters

Emma and I are running our first 1/2 marathon on September 3rd and we're trying to raise $1,300 ($100 for every mile we're running) to find the cure for Rett! Will you help?

Emma and I are both 14 years old and have been friends since 2013. We have been running 5ks together since 2016 and the Disneyland 1/2 will be our first half marathon together! Emma always inspires me to work harder whether it be the way she continually exceeds the expectations of the people around her or the way that she looks at me letting me know, "Lucy, you need to run faster!" Each dollar helps us get closer to a cure, and closer to the day Emma can run across the finish line without any help.

Lucy Lundell


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (48)

  1. Brandi Gilbert 
    3 months ago
    $5
  2. Anonymous 
    3 months ago
    $135
  3. Kathi Welsh 
    3 months ago
    $250
  4. Danica & Bryan Newon 
    3 months ago
    $100
  5. Catherine Mentillo 
    3 months ago
    $5
  6. Joe and Sarah Graziani 
    3 months ago
    $50
  7. Todd Lundell 
    4 months ago
    $40
  8. Sandy Cairelli 
    4 months ago
    $25
  9. Jing Hua 
    4 months ago
    $25
  10. Lori Hawkins 
    4 months ago
    $25
  11. Elizabeth Weldon 
    4 months ago
    $50
  12. William O\'Hare 
    4 months ago
    $50
  13. Jessica Labbe 
    4 months ago
    $25
  14. Valarie Dennis 
    4 months ago
    $25
  15. Danielle Disanto 
    4 months ago
    $10
  16. Audrey Sweet 
    4 months ago
    $36
  17. Carissa Howard 
    4 months ago
    $50
  18. Jeffrey Lewis 
    4 months ago
    $13.10
  19. Jonathan Frank 
    4 months ago
    $25
  20. Charlotee Lundell 
    4 months ago
    $51
  21. Anonymous 
    4 months ago
    $75
  22. Laurie De Freitas 
    4 months ago
    $25
  23. Anonymous 
    4 months ago
    $50
  24. Jim Hull 
    4 months ago
    $100
  25. Irma Nelson 
    4 months ago
    $25
  26. James Mortensen  
    4 months ago
    $50
  27. Benjamin Chambless 
    4 months ago
    $30.90
  28. Kelly Privett  
    4 months ago
    $50
  29. George Urrutia  
    4 months ago
    $25
  30. Jonita Mortensen 
    4 months ago
    $50
  31. Dianne Teichrieb 
    4 months ago
    $50
  32. Dana Watkins 
    4 months ago
    $100
  33. Kaitlyn Holl 
    4 months ago
    $40
  34. David Greding  
    4 months ago
    $50
  35. Kim & Dan Davis 
    4 months ago
    $50
  36. Bonnie Klein 
    4 months ago
    $100
  37. Jill Green 
    4 months ago
    $25
  38. Kids Lemonade stand 
    4 months ago
    $116
  39. Kelly Lewis 
    4 months ago
    $100
  40. Emily Allwardt 
    4 months ago
    $50
  41. Jesseca Smith 
    4 months ago
    $100
  42. Allison Foley 
    4 months ago
    $100
  43. Ellen Fleming  
    4 months ago
    $100
  44. Debra Begando 
    4 months ago
    $20
  45. Ann Owens 
    4 months ago
    $100
  46. Carlee Padot McClurg 
    4 months ago
    $13.10
  47. Marianne Bates 
    4 months ago
    $25
  48. Paulina Mata 
    4 months ago
    $5

This is a unique website which will require a more modern browser to work!

Please upgrade today!