Team Emma Runs Disneyland

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Emma and I are running our first 1/2 marathon on September 3rd and we're trying to raise $1,300 ($100 for every mile we're running) to find the cure for Rett! Will you help?

Emma and I are both 14 years old and have been friends since 2013. We have been running 5ks together since 2016 and the Disneyland 1/2 will be our first half marathon together! Emma always inspires me to work harder whether it be the way she continually exceeds the expectations of the people around her or the way that she looks at me letting me know, "Lucy, you need to run faster!" Each dollar helps us get closer to a cure, and closer to the day Emma can run across the finish line without any help.

Lucy Lundell


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (48)

  1. Brandi Gilbert 
    1 year ago
    $5
  2. Anonymous 
    1 year ago
    $135
  3. Kathi Welsh 
    1 year ago
    $250
  4. Danica & Bryan Newon 
    1 year ago
    $100
  5. Catherine Mentillo 
    1 year ago
    $5
  6. Joe and Sarah Graziani 
    1 year ago
    $50
  7. Todd Lundell 
    1 year ago
    $40
  8. Sandy Cairelli 
    1 year ago
    $25
  9. Jing Hua 
    1 year ago
    $25
  10. Lori Hawkins 
    1 year ago
    $25
  11. Elizabeth Weldon 
    1 year ago
    $50
  12. William O\'Hare 
    1 year ago
    $50
  13. Jessica Labbe 
    1 year ago
    $25
  14. Valarie Dennis 
    1 year ago
    $25
  15. Danielle Disanto 
    1 year ago
    $10
  16. Audrey Sweet 
    1 year ago
    $36
  17. Carissa Howard 
    1 year ago
    $50
  18. Jeffrey Lewis 
    1 year ago
    $13.10
  19. Jonathan Frank 
    1 year ago
    $25
  20. Charlotee Lundell 
    1 year ago
    $51
  21. Anonymous 
    1 year ago
    $75
  22. Laurie De Freitas 
    1 year ago
    $25
  23. Anonymous 
    1 year ago
    $50
  24. Jim Hull 
    1 year ago
    $100
  25. Irma Nelson 
    1 year ago
    $25
  26. James Mortensen  
    1 year ago
    $50
  27. Benjamin Chambless 
    1 year ago
    $30.90
  28. Kelly Privett  
    1 year ago
    $50
  29. George Urrutia  
    1 year ago
    $25
  30. Jonita Mortensen 
    1 year ago
    $50
  31. Dianne Teichrieb 
    1 year ago
    $50
  32. Dana Watkins 
    1 year ago
    $100
  33. Kaitlyn Holl 
    1 year ago
    $40
  34. David Greding  
    1 year ago
    $50
  35. Kim & Dan Davis 
    1 year ago
    $50
  36. Bonnie Klein 
    1 year ago
    $100
  37. Jill Green 
    1 year ago
    $25
  38. Kids Lemonade stand 
    1 year ago
    $116
  39. Kelly Lewis 
    1 year ago
    $100
  40. Emily Allwardt 
    1 year ago
    $50
  41. Jesseca Smith 
    1 year ago
    $100
  42. Allison Foley 
    1 year ago
    $100
  43. Ellen Fleming  
    1 year ago
    $100
  44. Debra Begando 
    1 year ago
    $20
  45. Ann Owens 
    1 year ago
    $100
  46. Carlee Padot McClurg 
    1 year ago
    $13.10
  47. Marianne Bates 
    1 year ago
    $25
  48. Paulina Mata 
    1 year ago
    $5

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