Team Emma Runs Disneyland

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Emma and I are running our first 1/2 marathon on September 3rd and we're trying to raise $1,300 ($100 for every mile we're running) to find the cure for Rett! Will you help?

Emma and I are both 14 years old and have been friends since 2013. We have been running 5ks together since 2016 and the Disneyland 1/2 will be our first half marathon together! Emma always inspires me to work harder whether it be the way she continually exceeds the expectations of the people around her or the way that she looks at me letting me know, "Lucy, you need to run faster!" Each dollar helps us get closer to a cure, and closer to the day Emma can run across the finish line without any help.

Lucy Lundell


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (48)

  1. Brandi Gilbert 
    10 months ago
    $5
  2. Anonymous 
    10 months ago
    $135
  3. Kathi Welsh 
    11 months ago
    $250
  4. Danica & Bryan Newon 
    11 months ago
    $100
  5. Catherine Mentillo 
    11 months ago
    $5
  6. Joe and Sarah Graziani 
    11 months ago
    $50
  7. Todd Lundell 
    11 months ago
    $40
  8. Sandy Cairelli 
    11 months ago
    $25
  9. Jing Hua 
    11 months ago
    $25
  10. Lori Hawkins 
    11 months ago
    $25
  11. Elizabeth Weldon 
    11 months ago
    $50
  12. William O\'Hare 
    11 months ago
    $50
  13. Jessica Labbe 
    11 months ago
    $25
  14. Valarie Dennis 
    11 months ago
    $25
  15. Danielle Disanto 
    11 months ago
    $10
  16. Audrey Sweet 
    11 months ago
    $36
  17. Carissa Howard 
    11 months ago
    $50
  18. Jeffrey Lewis 
    11 months ago
    $13.10
  19. Jonathan Frank 
    11 months ago
    $25
  20. Charlotee Lundell 
    11 months ago
    $51
  21. Anonymous 
    11 months ago
    $75
  22. Laurie De Freitas 
    11 months ago
    $25
  23. Anonymous 
    11 months ago
    $50
  24. Jim Hull 
    11 months ago
    $100
  25. Irma Nelson 
    11 months ago
    $25
  26. James Mortensen  
    11 months ago
    $50
  27. Benjamin Chambless 
    11 months ago
    $30.90
  28. Kelly Privett  
    11 months ago
    $50
  29. George Urrutia  
    11 months ago
    $25
  30. Jonita Mortensen 
    11 months ago
    $50
  31. Dianne Teichrieb 
    11 months ago
    $50
  32. Dana Watkins 
    11 months ago
    $100
  33. Kaitlyn Holl 
    11 months ago
    $40
  34. David Greding  
    11 months ago
    $50
  35. Kim & Dan Davis 
    11 months ago
    $50
  36. Bonnie Klein 
    11 months ago
    $100
  37. Jill Green 
    11 months ago
    $25
  38. Kids Lemonade stand 
    11 months ago
    $116
  39. Kelly Lewis 
    11 months ago
    $100
  40. Emily Allwardt 
    11 months ago
    $50
  41. Jesseca Smith 
    11 months ago
    $100
  42. Allison Foley 
    11 months ago
    $100
  43. Ellen Fleming  
    11 months ago
    $100
  44. Debra Begando 
    11 months ago
    $20
  45. Ann Owens 
    11 months ago
    $100
  46. Carlee Padot McClurg 
    11 months ago
    $13.10
  47. Marianne Bates 
    11 months ago
    $25
  48. Paulina Mata 
    11 months ago
    $5

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