Relay for Rett

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Join us on the 21st of October to help raise funds and awareness of Rett Syndrome. A donation of $25 or more automatically registers you to participate. All support goes to a non-profit in the U.S. called the Rett Syndrome Research Trust that is working hard to reverse this cruel disorder that afflicts Kitti Wadsworth and 350,000 other girls and women. A cure is possible if the research is funded.

We are walking or running for Rett starting at Cudgen Leaugues Club with a 7:30 am registration time NSW (6:30 am QLD) to head north at 8 am on Dreamtime Beach North Kingscliff. It's only an 8 kilometer walk. You can go as far as you like, and enjoy a sausage sizzle, raffles, silent auction and a live jazz band on return. We have set this page for you, our Rett girls family and friends who can't make the relay day and would like to donate in support of reversing this disease.

Here is more about Kitti:

I am 5-years old and I have Rett Syndrome. With enough funding for research, a cure for Rett is just around the corner. With your help, I could one day walk, talk and use my hands just like other girls my age.

I have two big brothers who adore me. Their names are Marcus and Leo. I also have a cat called Jinxy. My favorite colour is pink, but my Mum and Dad tell me it should be purple because purple is the colour for Rett Syndrome. I really like playing with my friends but because I have Rett, I sometimes can’t. Rett has taken my ability to walk, use my hands and communicate using words, but luckily I can use my eyes. If you want to talk to me, you just need to look into my eyes and concentrate and you will understand what I am saying. I cry sometimes because I cannot do what other girls my age do. Even though this makes me sad sometimes, I am mostly happy. I cannot eat lumpy or crunchy food because I find it hard to chew. That’s ok though, because my Mum purees all of my food so it makes it easy for me to eat.

Thank you for helping me and all the other girls and women who have Rett Syndrome.

**Please note that the donation levels to the right are U.S. dollars.**

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (5)

  1. Richard Flanagan  
    4 hours ago
  2. Belinda Gwynne 
    18 hours ago
  3. Doreen Parsons 
    2 days ago
  4. Lesley Spencer 
    2 days ago
  5. Natalie Gemmell 
    7 days ago

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