Quest for a Cure 2019

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The 10th annual Quest for a Cure Walkathon will be held Sunday, September 22, 2019 at VFW Park in Royal Oak, Michigan.

This event is organized by a group of Michigan families on behalf of their children with Rett Syndrome, including the Cardinalis (Gia), the Ficanos (Daphne), MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), and the Weinrauchs (Emily).

While we certainly encourage everyone to attend the walkathon – it's always a great day for the entire family with good food, good fun, and great raffle prizes – we hope even those who can't make it will consider making a donation in support of our event!

For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (88)

  1. Cara Allen 
    4 days ago
    $50
  2. Lindsey Kirsh  
    2 weeks ago
    $25
  3. Amie Adamkiewicz 
    3 weeks ago
    $30
  4. Deena Schmidt  
    3 weeks ago
    $100
  5. Michelle Pedersen 
    4 weeks ago
    $20
  6. Judi Miller 
    4 weeks ago
    $25
  7. Judi Miller 
    4 weeks ago
    $25
  8. melissa chunn 
    4 weeks ago
    $150
  9. Kevin Peterson 
    4 weeks ago
    $100
  10. Lisa Onica 
    4 weeks ago
    $25
  11. Mary Deon 
    4 weeks ago
    $50
  12. John Nader 
    4 weeks ago
    $25
  13. Mark Hatz 
    4 weeks ago
    $100
  14. Ameet Vyas 
    4 weeks ago
    $50
  15. Lisa Shoskey 
    4 weeks ago
    $25
  16. Wendy DiJanni 
    4 weeks ago
    $50
  17. Barbara Bushor 
    4 weeks ago
    $25
  18. Heather Lilley 
    4 weeks ago
    $100
  19. Gerald and Rita Rademacher 
    4 weeks ago
    $50
  20. Vicki Reetz 
    4 weeks ago
    $50
  21. Greg Root 
    4 weeks ago
    $100
  22. Corey Plumb 
    4 weeks ago
    $250
  23. June Windt 
    1 month ago
    $100
  24. Jammie Kincaid 
    1 month ago
    $25
  25. Jim Finney 
    1 month ago
    $100
  26. Lorri Martin 
    1 month ago
    $50
  27. Lauren Burns 
    1 month ago
    $150
  28. Anonymous 
    1 month ago
    $40
  29. Kenneth Kronner  
    1 month ago
    $50
  30. Jo Ann Johnson 
    1 month ago
    $25
  31. Jane Kolmetz 
    1 month ago
    $100
  32. Nancy McPherson 
    1 month ago
    $50
  33. Barbara Trippe 
    1 month ago
    $25
  34. Joe and Pauia Ferus 
    1 month ago
    $75
  35. Randi Armer 
    1 month ago
    $100
  36. Dloug & Michelle Bishop 
    1 month ago
    $100
  37. Sarah Padgett 
    1 month ago
    $50
  38. Jeff Peterson 
    1 month ago
    $6,000
  39. Erica Davis-Hernandez 
    1 month ago
    $40
  40. Rebecca Wilson  
    1 month ago
    $25
  41. Ann Pangori  
    1 month ago
    $50
  42. Michelle Byers 
    1 month ago
    $30
  43. Brett Carte 
    1 month ago
    $100
  44. Tarra Pitcock 
    1 month ago
    $50
  45. Carolyn Sustrich 
    1 month ago
    $50
  46. Pamela Wilcox  
    1 month ago
    $50
  47. Kristi Pogoda 
    1 month ago
    $10
  48. Melissa Eckoff 
    1 month ago
    $20
  49. Joseph Muck 
    1 month ago
    $20
  50. Nicole Prillwitz 
    1 month ago
    $250
  51. Craig Baldwin 
    1 month ago
    $100
  52. Elisabeth Cardinali 
    1 month ago
    $500
  53. Denise Pond 
    1 month ago
    $40
  54. Maureen Kijek 
    1 month ago
    $150
  55. Sandra Scarcella 
    1 month ago
    $150
  56. Mary White 
    1 month ago
    $50
  57. Dianna Corbley 
    1 month ago
    $40
  58. Jill Pinkston-Bonner 
    1 month ago
    $40
  59. Gary Docks 
    1 month ago
    $20
  60. Melissa Jacobsen  
    1 month ago
    $100
  61. Kristie Cholewa 
    1 month ago
    $100
  62. Katheryn Elibri Frame 
    1 month ago
    $200
  63. Sharon Roy-Krahner 
    1 month ago
    $35
  64. David Giera 
    1 month ago
    $50
  65. Renee Fischman 
    1 month ago
    $50
  66. Nicole Coon 
    1 month ago
    $50
  67. Julia Wittkopp 
    1 month ago
    $100
  68. John & Janet Kowal 
    1 month ago
    $100
  69. Laura Ziegler  
    1 month ago
    $50
  70. Christine Walker 
    1 month ago
    $100
  71. Nicole Lenox 
    1 month ago
    $50
  72. Karen Caylor 
    1 month ago
    $200
  73. Denise Harris 
    1 month ago
    $100
  74. Michelle Wojciechowski 
    1 month ago
    $50
  75. Judith Beyer 
    1 month ago
    $50
  76. Debra Gilbert 
    1 month ago
    $100
  77. David-Jan Boyd 
    2 months ago
    $50
  78. Thomas R VanKuiken 
    2 months ago
    $25
  79. Elaine & Dan Kozlowski 
    2 months ago
    $35
  80. gail hool 
    2 months ago
    $1,500
  81. Jennifer Rosochacki 
    2 months ago
    $75
  82. Mary Borza 
    2 months ago
    $25
  83. Betty Bezy 
    2 months ago
    $200
  84. Helane and Blair Koehler 
    2 months ago
    $50
  85. Susan weinrauch 
    2 months ago
    $200
  86. Robert Ficano 
    2 months ago
    $150
  87. Margery Sorbilli 
    3 months ago
    $20
  88. Greg Bishop 
    3 months ago
    $500

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