Quest for a Cure 2018

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The 9th annual Quest for a Cure Walkathon will be held Sunday, September 30, 2018 at VFW Park in Royal Oak, Michigan.

This event is organized by eight metro Detroit-area families on behalf of their children with Rett Syndrome:  the Cardinalis (Giavanna), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon – it's always a great day for the entire family with good food, good fun, and great raffle prizes – we hope even those who can't make it will consider making a donation in support of our event!

For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (205)

  1. Katheryn Elibri Frame 
    5 months ago
    $200
  2. Joe & Cathy Willing 
    5 months ago
    $30
  3. Linda & Dennis Jablonski 
    5 months ago
    $20
  4. Loretta Chmielarczyk 
    6 months ago
    $10
  5. Stacy & Christine Peterson  
    6 months ago
    $1,000
  6. Janice Boyd & Jane Bishop 
    6 months ago
    $50
  7. Jean & Robert Winkel 
    6 months ago
    $125
  8. Jodi Schneider 
    6 months ago
    $50
  9. Angelina & Antonio Scappaticci 
    6 months ago
    $100
  10. June & Nelson Watson 
    6 months ago
    $100
  11. Betty & Bob Gunko 
    6 months ago
    $150
  12. Elizabeth Van Goethem 
    6 months ago
    $100
  13. Maureen Schlum 
    6 months ago
    $25
  14. Karen Maas 
    6 months ago
    $50
  15. Marilyn Caruso 
    6 months ago
    $25
  16. Shirley & Robert Zaetta 
    6 months ago
    $200
  17. Sharon & William O'Neill 
    6 months ago
    $80
  18. Colleen & Charles Carlson 
    6 months ago
    $5,500
  19. Wendy & Roberto Scappaticci 
    6 months ago
    $150
  20. Donna & Timothy Sutherland 
    6 months ago
    $25
  21. Thaddeus Wawrowicz 
    6 months ago
    $500
  22. Shelley & Andres Lesko 
    6 months ago
    $100
  23. Sue & Kevin Peterson 
    6 months ago
    $100
  24. Diane & Alex Afelt 
    6 months ago
    $50
  25. Claudia Pfromm 
    6 months ago
    $100
  26. Jannette & Hugh Jackson 
    6 months ago
    $50
  27. Nancy & Delno Malzahn 
    6 months ago
    $100
  28. Sharon Petty 
    6 months ago
    $200
  29. Patricia & Thomas Jakubowski 
    6 months ago
    $25
  30. Colleen Detloff 
    6 months ago
    $15
  31. Basil Nona 
    6 months ago
    $200
  32. Carole Greene 
    6 months ago
    $25
  33. Sharon & Russell Bushor 
    6 months ago
    $100
  34. Deena & William Schmidt 
    6 months ago
    $80
  35. Shirley & Robert Wojt 
    6 months ago
    $20
  36. Karen & William Weinrauch 
    6 months ago
    $250
  37. Betty Kurc 
    6 months ago
    $50
  38. Andrea & Dale Brockert 
    6 months ago
    $50
  39. Craig & Lori Walters 
    6 months ago
    $250
  40. Rhonda Green 
    6 months ago
    $200
  41. Ann & Michael Dagostino 
    6 months ago
    $250
  42. Gloria & John Clark 
    6 months ago
    $50
  43. Lisa Mary Stetter 
    6 months ago
    $40
  44. Mary & Donald Borza 
    6 months ago
    $25
  45. Lynn & Kenneth Kronner 
    6 months ago
    $50
  46. Anna & Giovanni Galati 
    6 months ago
    $100
  47. Sheryl & Kurt Bushor 
    6 months ago
    $75
  48. Amy & Jeff Rokicki  
    6 months ago
    $500
  49. Felicia & Benito Scappaticci 
    6 months ago
    $100
  50. Vera Erika & Matt LeBarre 
    6 months ago
    $300
  51. Gloria Witczak 
    6 months ago
    $60
  52. Linda & James Hayka 
    6 months ago
    $100
  53. Barbara & Richard Russ 
    6 months ago
    $100
  54. Carol Malek 
    6 months ago
    $100
  55. Alyce Zelenak 
    6 months ago
    $50
  56. Victoria & John Czarnik 
    6 months ago
    $100
  57. Connie & Charles Hayden 
    6 months ago
    $25
  58. Susan & Donald Tudethout 
    6 months ago
    $500
  59. Amy & Stephen Raggio 
    6 months ago
    $50
  60. Lynnea & David Baron 
    6 months ago
    $80
  61. Catherine Roberts 
    6 months ago
    $15
  62. Nellie & John Moran 
    6 months ago
    $75
  63. Michael O'Laughlin 
    6 months ago
    $500
  64. Kathleen O'Neill 
    6 months ago
    $800
  65. Jamie & Adam Daniels 
    6 months ago
    $20
  66. Andrea & Eric Bushrow 
    6 months ago
    $50
  67. Monique Sweetland 
    6 months ago
    $100
  68. Claudia & Patrick Cassidy 
    6 months ago
    $100
  69. Deborah & Ken Bearre 
    6 months ago
    $200
  70. Noreen & Curtis Owens 
    6 months ago
    $100
  71. Jules Constantinou 
    6 months ago
    $250
  72. Ellen & Steven Wickham 
    6 months ago
    $150
  73. Lynnette Macieczni 
    6 months ago
    $100
  74. Lona Ryding 
    6 months ago
    $25
  75. Janet Figlioli 
    6 months ago
    $50
  76. Sally & Kevin Powers 
    6 months ago
    $25
  77. June & Richard McIntyre 
    6 months ago
    $100
  78. Laura & Anthony Martell 
    6 months ago
    $50
  79. Gayle & Gino Lamberti 
    6 months ago
    $50
  80. Sophie Kidd 
    6 months ago
    $75
  81. Margaret & Charles Jones 
    6 months ago
    $50
  82. Tracey & Scott Ward 
    6 months ago
    $100
  83. Walkathon Donors 
    6 months ago
    $5,111
  84. Georgia Scappaticci 
    6 months ago
    $50
  85. Jean & Dale Avery 
    6 months ago
    $150
  86. Karen Bremenkampf 
    6 months ago
    $50
  87. Nicole & James Lenox 
    6 months ago
    $50
  88. Robert Franczak 
    6 months ago
    $100
  89. Karen & David Anderson 
    6 months ago
    $50
  90. Marcella & Robert Rokicki 
    6 months ago
    $50
  91. Cheri & David Herr 
    6 months ago
    $100
  92. Silvio & Cynthia Scappaticci 
    6 months ago
    $100
  93. Nancy & Michael Young 
    6 months ago
    $600
  94. Vicki & David Reetz 
    6 months ago
    $50
  95. William Leimbach 
    6 months ago
    $25
  96. Robert Bronstein 
    6 months ago
    $50
  97. Cheryl & Keith Klemm, Jr. 
    6 months ago
    $50
  98. Maria & Peter Mannino 
    6 months ago
    $75
  99. Patritia & John Bonner 
    6 months ago
    $100
  100. Andrew & Kristie Cardinali 
    6 months ago
    $1,500
  101. Michelle Pedersen 
    6 months ago
    $20
  102. Nancy Scappaticci 
    6 months ago
    $200
  103. Nora & Lawrence Dominick 
    6 months ago
    $200
  104. Ann Campbell 
    6 months ago
    $25
  105. Susan & David Bojanowski 
    6 months ago
    $50
  106. Renata & Thomas Rossi, Jr. 
    6 months ago
    $75
  107. Kathleen Vokes 
    6 months ago
    $25
  108. Edith St. Peter 
    6 months ago
    $100
  109. Margery & David Sorbilli 
    6 months ago
    $100
  110. Theresa Pate 
    6 months ago
    $25
  111. Carol & Ronald Zachwieja 
    6 months ago
    $100
  112. Tonya & Tony Petty 
    6 months ago
    $50
  113. Maria & Jon Ulinski 
    6 months ago
    $200
  114. James & Janice Trubak 
    6 months ago
    $100
  115. Christine Olson 
    6 months ago
    $50
  116. Kristian Konke 
    6 months ago
    $30
  117. Judy MacDonlad 
    6 months ago
    $500
  118. Janice & David Smith 
    6 months ago
    $150
  119. Evelyn Gordon 
    6 months ago
    $200
  120. Gethsemane Lutheran Church 
    6 months ago
    $200
  121. Christine Zamarra 
    6 months ago
    $30
  122. Gene & Barbara Dickirson 
    6 months ago
    $1,450
  123. Scott Popyk Health Dimensions 
    6 months ago
    $300
  124. Ciera Foster 
    6 months ago
    $20
  125. Ameet Vyas 
    6 months ago
    $50
  126. Greg & Denise Bishop 
    6 months ago
    $500
  127. Anonymous 
    7 months ago
    $400
  128. Brenda Michaux  
    7 months ago
    $50
  129. Lisa Shoskey 
    7 months ago
    $25
  130. Anonymous 
    7 months ago
    $25
  131. Tracy White 
    7 months ago
    $25
  132. Shelley Petty 
    7 months ago
    $250
  133. Melissa Jacobsen 
    7 months ago
    $75
  134. Heather Lilley 
    7 months ago
    $100
  135. Shelley Garland 
    7 months ago
    $30
  136. Lauren Leaman 
    7 months ago
    $50
  137. Jeff Peterson 
    7 months ago
    $6,000
  138. Jennifer Brown 
    8 months ago
    $2,000
  139. Mary Zimmerman 
    8 months ago
    $50
  140. Barbara Bushor 
    8 months ago
    $25
  141. Erica Davis-Hernandez 
    8 months ago
    $30
  142. Greg Bishop 
    8 months ago
    $1,000
  143. Anonymous 
    8 months ago
    $12
  144. Rebecca Wozniak 
    8 months ago
    $100
  145. Sandra Scarcella 
    8 months ago
    $123
  146. Darryl Reitmeyer 
    8 months ago
    $25
  147. Lorri Martin 
    8 months ago
    $100
  148. Nancy Malzahn 
    8 months ago
    $100
  149. Irene Hatz 
    8 months ago
    $100
  150. wendy respondek 
    8 months ago
    $25
  151. Elaine & Dan Kozlowski 
    8 months ago
    $35
  152. Lauren Burns 
    8 months ago
    $100
  153. karen gregorich 
    8 months ago
    $100
  154. Sharon Brignall 
    8 months ago
    $100
  155. Jennifer Rosochacki 
    8 months ago
    $100
  156. Susan Weinrauch 
    8 months ago
    $100
  157. JOHN & Janet Kowal 
    8 months ago
    $100
  158. Sandra Pulice 
    8 months ago
    $25
  159. Anonymous 
    8 months ago
    $10
  160. Sharon Roy-Krahner 
    8 months ago
    $35
  161. Kristie Cholewa 
    8 months ago
    $100
  162. Judi Miller 
    8 months ago
    $25
  163. Anonymous 
    8 months ago
    $20
  164. Doug & Michelle Bishop 
    8 months ago
    $200
  165. Amie Adamkiewicz 
    8 months ago
    $50
  166. Marguerite Natoli 
    8 months ago
    $20
  167. Pamela Wilcox 
    8 months ago
    $100
  168. Drew Kanevsky 
    8 months ago
    $20
  169. James Blasi 
    8 months ago
    $100
  170. Chester Wilamowski 
    8 months ago
    $120
  171. David Giera 
    8 months ago
    $75
  172. Nathaniel Yake 
    8 months ago
    $20
  173. Anonymous 
    8 months ago
    $5
  174. Anonymous 
    8 months ago
    $5
  175. Karen Caylor 
    8 months ago
    $200
  176. Michelle Wojciechowski  
    8 months ago
    $50
  177. Carolyn Sustrich 
    8 months ago
    $50
  178. gail hool 
    8 months ago
    $500
  179. Randi Armer 
    8 months ago
    $100
  180. Krista Hansell  
    8 months ago
    $50
  181. Karen Haas 
    8 months ago
    $25
  182. Debra Gilbert 
    8 months ago
    $100
  183. Yvonne Schroeder 
    8 months ago
    $0
  184. Anonymous 
    8 months ago
    $50
  185. Heather Lang 
    8 months ago
    $25
  186. Denise Harris 
    8 months ago
    $100
  187. Julia Bommarito 
    8 months ago
    $50
  188. William Petty Jr 
    8 months ago
    $50
  189. Jason Bandy 
    8 months ago
    $20
  190. George Horattas 
    8 months ago
    $100
  191. Tom VanKuiken 
    8 months ago
    $25
  192. Elisabeth Cardinali  
    8 months ago
    $500
  193. Julia Wittkopp 
    8 months ago
    $100
  194. Robert VanKuiken 
    8 months ago
    $30
  195. Theresa Baker 
    8 months ago
    $100
  196. David Bailey 
    8 months ago
    $20
  197. Jan and David Boyd 
    8 months ago
    $50
  198. Christine Walker 
    8 months ago
    $100
  199. Chris Reineke 
    8 months ago
    $25
  200. Angela Gusmano 
    8 months ago
    $50
  201. Gail Allevato 
    8 months ago
    $213
  202. Ron Balow 
    6 months ago
    $50
  203. Laura Ziegler  
    8 months ago
    $50
  204. gail hool 
    8 months ago
    $1,000
  205. Elisabeth Cardinali  
    9 months ago
    $50

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