Quest for a Cure 2018

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The 9th annual Quest for a Cure Walkathon will be held Sunday, September 30, 2018 at VFW Park in Royal Oak, Michigan.

This event is organized by eight metro Detroit-area families on behalf of their children with Rett Syndrome:  the Cardinalis (Giavanna), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon – it's always a great day for the entire family with good food, good fun, and great raffle prizes – we hope even those who can't make it will consider making a donation in support of our event!

For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (206)

  1. Greg Bishop 
    2 months ago
    $500
  2. Katheryn Elibri Frame 
    9 months ago
    $200
  3. Joe & Cathy Willing 
    9 months ago
    $30
  4. Linda & Dennis Jablonski 
    9 months ago
    $20
  5. Loretta Chmielarczyk 
    10 months ago
    $10
  6. Stacy & Christine Peterson  
    10 months ago
    $1,000
  7. Janice Boyd & Jane Bishop 
    10 months ago
    $50
  8. Jean & Robert Winkel 
    10 months ago
    $125
  9. Jodi Schneider 
    10 months ago
    $50
  10. Angelina & Antonio Scappaticci 
    10 months ago
    $100
  11. June & Nelson Watson 
    10 months ago
    $100
  12. Betty & Bob Gunko 
    10 months ago
    $150
  13. Elizabeth Van Goethem 
    10 months ago
    $100
  14. Maureen Schlum 
    10 months ago
    $25
  15. Karen Maas 
    10 months ago
    $50
  16. Marilyn Caruso 
    10 months ago
    $25
  17. Shirley & Robert Zaetta 
    10 months ago
    $200
  18. Sharon & William O'Neill 
    10 months ago
    $80
  19. Colleen & Charles Carlson 
    10 months ago
    $5,500
  20. Wendy & Roberto Scappaticci 
    10 months ago
    $150
  21. Donna & Timothy Sutherland 
    10 months ago
    $25
  22. Thaddeus Wawrowicz 
    10 months ago
    $500
  23. Shelley & Andres Lesko 
    10 months ago
    $100
  24. Sue & Kevin Peterson 
    10 months ago
    $100
  25. Diane & Alex Afelt 
    10 months ago
    $50
  26. Claudia Pfromm 
    10 months ago
    $100
  27. Jannette & Hugh Jackson 
    10 months ago
    $50
  28. Nancy & Delno Malzahn 
    10 months ago
    $100
  29. Sharon Petty 
    10 months ago
    $200
  30. Patricia & Thomas Jakubowski 
    10 months ago
    $25
  31. Colleen Detloff 
    10 months ago
    $15
  32. Basil Nona 
    10 months ago
    $200
  33. Carole Greene 
    10 months ago
    $25
  34. Sharon & Russell Bushor 
    10 months ago
    $100
  35. Deena & William Schmidt 
    10 months ago
    $80
  36. Shirley & Robert Wojt 
    10 months ago
    $20
  37. Karen & William Weinrauch 
    10 months ago
    $250
  38. Betty Kurc 
    10 months ago
    $50
  39. Andrea & Dale Brockert 
    10 months ago
    $50
  40. Craig & Lori Walters 
    10 months ago
    $250
  41. Rhonda Green 
    10 months ago
    $200
  42. Ann & Michael Dagostino 
    10 months ago
    $250
  43. Gloria & John Clark 
    10 months ago
    $50
  44. Lisa Mary Stetter 
    10 months ago
    $40
  45. Mary & Donald Borza 
    10 months ago
    $25
  46. Lynn & Kenneth Kronner 
    10 months ago
    $50
  47. Anna & Giovanni Galati 
    10 months ago
    $100
  48. Sheryl & Kurt Bushor 
    10 months ago
    $75
  49. Amy & Jeff Rokicki  
    10 months ago
    $500
  50. Felicia & Benito Scappaticci 
    10 months ago
    $100
  51. Vera Erika & Matt LeBarre 
    10 months ago
    $300
  52. Gloria Witczak 
    10 months ago
    $60
  53. Linda & James Hayka 
    10 months ago
    $100
  54. Barbara & Richard Russ 
    10 months ago
    $100
  55. Carol Malek 
    10 months ago
    $100
  56. Alyce Zelenak 
    10 months ago
    $50
  57. Victoria & John Czarnik 
    10 months ago
    $100
  58. Connie & Charles Hayden 
    10 months ago
    $25
  59. Susan & Donald Tudethout 
    10 months ago
    $500
  60. Amy & Stephen Raggio 
    10 months ago
    $50
  61. Lynnea & David Baron 
    10 months ago
    $80
  62. Catherine Roberts 
    10 months ago
    $15
  63. Nellie & John Moran 
    10 months ago
    $75
  64. Michael O'Laughlin 
    10 months ago
    $500
  65. Kathleen O'Neill 
    10 months ago
    $800
  66. Jamie & Adam Daniels 
    10 months ago
    $20
  67. Andrea & Eric Bushrow 
    10 months ago
    $50
  68. Monique Sweetland 
    10 months ago
    $100
  69. Claudia & Patrick Cassidy 
    10 months ago
    $100
  70. Deborah & Ken Bearre 
    10 months ago
    $200
  71. Noreen & Curtis Owens 
    10 months ago
    $100
  72. Jules Constantinou 
    10 months ago
    $250
  73. Ellen & Steven Wickham 
    10 months ago
    $150
  74. Lynnette Macieczni 
    10 months ago
    $100
  75. Lona Ryding 
    10 months ago
    $25
  76. Janet Figlioli 
    10 months ago
    $50
  77. Sally & Kevin Powers 
    10 months ago
    $25
  78. June & Richard McIntyre 
    10 months ago
    $100
  79. Laura & Anthony Martell 
    10 months ago
    $50
  80. Gayle & Gino Lamberti 
    10 months ago
    $50
  81. Sophie Kidd 
    10 months ago
    $75
  82. Margaret & Charles Jones 
    10 months ago
    $50
  83. Tracey & Scott Ward 
    10 months ago
    $100
  84. Walkathon Donors 
    10 months ago
    $5,111
  85. Georgia Scappaticci 
    10 months ago
    $50
  86. Jean & Dale Avery 
    10 months ago
    $150
  87. Karen Bremenkampf 
    10 months ago
    $50
  88. Nicole & James Lenox 
    10 months ago
    $50
  89. Robert Franczak 
    10 months ago
    $100
  90. Karen & David Anderson 
    10 months ago
    $50
  91. Marcella & Robert Rokicki 
    10 months ago
    $50
  92. Cheri & David Herr 
    10 months ago
    $100
  93. Silvio & Cynthia Scappaticci 
    10 months ago
    $100
  94. Nancy & Michael Young 
    10 months ago
    $600
  95. Vicki & David Reetz 
    10 months ago
    $50
  96. William Leimbach 
    10 months ago
    $25
  97. Robert Bronstein 
    10 months ago
    $50
  98. Cheryl & Keith Klemm, Jr. 
    10 months ago
    $50
  99. Maria & Peter Mannino 
    10 months ago
    $75
  100. Patritia & John Bonner 
    10 months ago
    $100
  101. Andrew & Kristie Cardinali 
    10 months ago
    $1,500
  102. Michelle Pedersen 
    10 months ago
    $20
  103. Nancy Scappaticci 
    10 months ago
    $200
  104. Nora & Lawrence Dominick 
    10 months ago
    $200
  105. Ann Campbell 
    10 months ago
    $25
  106. Susan & David Bojanowski 
    10 months ago
    $50
  107. Renata & Thomas Rossi, Jr. 
    10 months ago
    $75
  108. Kathleen Vokes 
    10 months ago
    $25
  109. Edith St. Peter 
    10 months ago
    $100
  110. Margery & David Sorbilli 
    10 months ago
    $100
  111. Theresa Pate 
    10 months ago
    $25
  112. Carol & Ronald Zachwieja 
    10 months ago
    $100
  113. Tonya & Tony Petty 
    10 months ago
    $50
  114. Maria & Jon Ulinski 
    10 months ago
    $200
  115. James & Janice Trubak 
    10 months ago
    $100
  116. Christine Olson 
    10 months ago
    $50
  117. Kristian Konke 
    10 months ago
    $30
  118. Judy MacDonlad 
    10 months ago
    $500
  119. Janice & David Smith 
    10 months ago
    $150
  120. Evelyn Gordon 
    10 months ago
    $200
  121. Gethsemane Lutheran Church 
    10 months ago
    $200
  122. Christine Zamarra 
    10 months ago
    $30
  123. Gene & Barbara Dickirson 
    10 months ago
    $1,450
  124. Scott Popyk Health Dimensions 
    10 months ago
    $300
  125. Ciera Foster 
    10 months ago
    $20
  126. Ameet Vyas 
    10 months ago
    $50
  127. Greg & Denise Bishop 
    10 months ago
    $500
  128. Anonymous 
    11 months ago
    $400
  129. Brenda Michaux  
    11 months ago
    $50
  130. Lisa Shoskey 
    11 months ago
    $25
  131. Anonymous 
    11 months ago
    $25
  132. Tracy White 
    11 months ago
    $25
  133. Shelley Petty 
    11 months ago
    $250
  134. Melissa Jacobsen 
    11 months ago
    $75
  135. Heather Lilley 
    11 months ago
    $100
  136. Shelley Garland 
    11 months ago
    $30
  137. Lauren Leaman 
    11 months ago
    $50
  138. Jeff Peterson 
    11 months ago
    $6,000
  139. Jennifer Brown 
    12 months ago
    $2,000
  140. Mary Zimmerman 
    12 months ago
    $50
  141. Barbara Bushor 
    12 months ago
    $25
  142. Erica Davis-Hernandez 
    12 months ago
    $30
  143. Greg Bishop 
    12 months ago
    $1,000
  144. Anonymous 
    12 months ago
    $12
  145. Rebecca Wozniak 
    12 months ago
    $100
  146. Sandra Scarcella 
    12 months ago
    $123
  147. Darryl Reitmeyer 
    12 months ago
    $25
  148. Lorri Martin 
    12 months ago
    $100
  149. Nancy Malzahn 
    12 months ago
    $100
  150. Irene Hatz 
    12 months ago
    $100
  151. wendy respondek 
    12 months ago
    $25
  152. Elaine & Dan Kozlowski 
    12 months ago
    $35
  153. Lauren Burns 
    12 months ago
    $100
  154. karen gregorich 
    12 months ago
    $100
  155. Sharon Brignall 
    12 months ago
    $100
  156. Jennifer Rosochacki 
    12 months ago
    $100
  157. Susan Weinrauch 
    12 months ago
    $100
  158. JOHN & Janet Kowal 
    12 months ago
    $100
  159. Sandra Pulice 
    12 months ago
    $25
  160. Anonymous 
    12 months ago
    $10
  161. Sharon Roy-Krahner 
    12 months ago
    $35
  162. Kristie Cholewa 
    12 months ago
    $100
  163. Judi Miller 
    12 months ago
    $25
  164. Anonymous 
    12 months ago
    $20
  165. Doug & Michelle Bishop 
    12 months ago
    $200
  166. Amie Adamkiewicz 
    12 months ago
    $50
  167. Marguerite Natoli 
    12 months ago
    $20
  168. Pamela Wilcox 
    12 months ago
    $100
  169. Drew Kanevsky 
    12 months ago
    $20
  170. James Blasi 
    12 months ago
    $100
  171. Chester Wilamowski 
    12 months ago
    $120
  172. David Giera 
    12 months ago
    $75
  173. Nathaniel Yake 
    12 months ago
    $20
  174. Anonymous 
    12 months ago
    $5
  175. Anonymous 
    12 months ago
    $5
  176. Karen Caylor 
    12 months ago
    $200
  177. Michelle Wojciechowski  
    1 year ago
    $50
  178. Carolyn Sustrich 
    1 year ago
    $50
  179. gail hool 
    1 year ago
    $500
  180. Randi Armer 
    1 year ago
    $100
  181. Krista Hansell  
    1 year ago
    $50
  182. Karen Haas 
    1 year ago
    $25
  183. Debra Gilbert 
    1 year ago
    $100
  184. Yvonne Schroeder 
    1 year ago
    $0
  185. Anonymous 
    1 year ago
    $50
  186. Heather Lang 
    1 year ago
    $25
  187. Denise Harris 
    1 year ago
    $100
  188. Julia Bommarito 
    1 year ago
    $50
  189. William Petty Jr 
    1 year ago
    $50
  190. Jason Bandy 
    1 year ago
    $20
  191. George Horattas 
    1 year ago
    $100
  192. Tom VanKuiken 
    1 year ago
    $25
  193. Elisabeth Cardinali  
    1 year ago
    $500
  194. Julia Wittkopp 
    1 year ago
    $100
  195. Robert VanKuiken 
    1 year ago
    $30
  196. Theresa Baker 
    1 year ago
    $100
  197. David Bailey 
    1 year ago
    $20
  198. Jan and David Boyd 
    1 year ago
    $50
  199. Christine Walker 
    1 year ago
    $100
  200. Chris Reineke 
    1 year ago
    $25
  201. Angela Gusmano 
    1 year ago
    $50
  202. Gail Allevato 
    1 year ago
    $213
  203. Ron Balow 
    10 months ago
    $50
  204. Laura Ziegler  
    1 year ago
    $50
  205. gail hool 
    1 year ago
    $1,000
  206. Elisabeth Cardinali  
    1 year ago
    $50

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