Quest for a Cure 2018

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The 9th annual Quest for a Cure Walkathon will be held Sunday, September 30, 2018 at VFW Park in Royal Oak, Michigan.

This event is organized by eight metro Detroit-area families on behalf of their children with Rett Syndrome:  the Cardinalis (Giavanna), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon – it's always a great day for the entire family with good food, good fun, and great raffle prizes – we hope even those who can't make it will consider making a donation in support of our event!

For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (36)

  1. Amie Adamkiewicz 
    2 hours ago
    $50
  2. Marguerite Natoli 
    9 hours ago
    $20
  3. Pamela Wilcox 
    13 hours ago
    $100
  4. Drew Kanevsky 
    1 day ago
    $20
  5. James Blasi 
    2 days ago
    $100
  6. Chester Wilamowski 
    2 days ago
    $120
  7. Nathaniel Yake 
    2 days ago
    $20
  8. Anonymous 
    2 days ago
    $5
  9. Anonymous 
    2 days ago
    $5
  10. Karen Caylor 
    2 days ago
    $200
  11. Michelle Wojciechowski  
    2 days ago
    $50
  12. Carolyn Sustrich 
    3 days ago
    $50
  13. gail hool 
    3 days ago
    $500
  14. Randi Armer 
    3 days ago
    $100
  15. Krista Hansell  
    4 days ago
    $50
  16. Debra Gilbert 
    4 days ago
    $100
  17. Anonymous 
    5 days ago
    $50
  18. Heather Lang 
    5 days ago
    $25
  19. Denise Harris 
    6 days ago
    $100
  20. William Petty Jr 
    6 days ago
    $50
  21. Jason Bandy 
    6 days ago
    $20
  22. George Horattas 
    6 days ago
    $100
  23. Tom VanKuiken 
    6 days ago
    $25
  24. Elisabeth Cardinali  
    6 days ago
    $500
  25. Julia Wittkopp 
    6 days ago
    $100
  26. Robert VanKuiken 
    6 days ago
    $30
  27. Theresa Baker 
    1 week ago
    $100
  28. David Bailey 
    1 week ago
    $20
  29. Jan and David Boyd 
    2 weeks ago
    $50
  30. Christine Walker 
    2 weeks ago
    $100
  31. Chris Reineke 
    2 weeks ago
    $25
  32. Angela Gusmano 
    2 weeks ago
    $50
  33. Gail Allevato 
    2 weeks ago
    $213
  34. Laura Ziegler  
    2 weeks ago
    $50
  35. gail hool 
    2 weeks ago
    $1,000
  36. Elisabeth Cardinali  
    3 weeks ago
    $50

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