Quest for a Cure 2017

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The 8th annual Quest for a Cure Walkathon will be held Sunday, September 24, 2017 at VFW Park in Royal Oak, Michigan. This event is organized by nine metro Detroit-area families on behalf of their children with Rett Syndrome: the Cardinalis (Giavanna), the Casses (Ashton), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon - it's always a great day for the entire family with good food, good fun, and great raffle prizes - we hope even those who can't make it will consider making a donation in support of our event! For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (74)

  1. Funds received day of Event 
    2 years ago
    $31,820
  2. Shelley Petty 
    2 years ago
    $220
  3. SHARRON ANDERSON 
    2 years ago
    $100
  4. Rebecca Domzalski-Wilson 
    2 years ago
    $25
  5. Jeff Peterson 
    2 years ago
    $6,000
  6. Mike Dennis 
    2 years ago
    $50
  7. Barbara & Gene Dickirson 
    2 years ago
    $725
  8. Anonymous 
    2 years ago
    $1,200
  9. shari rainko 
    2 years ago
    $50
  10. Amy Dagenais 
    2 years ago
    $100
  11. Nader Jadallah 
    2 years ago
    $100
  12. Sarah Tupancy 
    2 years ago
    $50
  13. Greg Bishop 
    2 years ago
    $1,000
  14. Laura Marcy 
    2 years ago
    $20
  15. Susan Weinrauch 
    2 years ago
    $100
  16. Rosa Freestone 
    2 years ago
    $100
  17. Basic Metals 
    2 years ago
    $750
  18. Anonymous 
    2 years ago
    $50
  19. Rebecca Wozniak 
    2 years ago
    $100
  20. Heather Lang 
    2 years ago
    $25
  21. Juanette Griffin 
    2 years ago
    $50
  22. Shannon Barber 
    2 years ago
    $10
  23. Julia Bommarito 
    2 years ago
    $50
  24. Theresa Bakwer 
    2 years ago
    $50
  25. Nellie Moran 
    2 years ago
    $75
  26. Anonymous 
    2 years ago
    $50
  27. Lindsey Kirsh 
    2 years ago
    $20
  28. Margaret Woloszyk  
    2 years ago
    $50
  29. SANDRA SCARCELLA 
    2 years ago
    $125
  30. Amie Adamkiewicz 
    2 years ago
    $50
  31. Anonymous 
    2 years ago
    $50
  32. Theolene Smith  
    2 years ago
    $100
  33. Drew Roxx 
    2 years ago
    $100
  34. Jennifer Rosochacki 
    2 years ago
    $100
  35. Wendy Respondek 
    2 years ago
    $25
  36. Stephanie Oldenburg 
    2 years ago
    $10
  37. Celeste McNally 
    2 years ago
    $20
  38. Duane Pietryga 
    2 years ago
    $100
  39. Ann Eberts 
    2 years ago
    $25
  40. Sandy Dziuk 
    2 years ago
    $50
  41. Chester Wilamowski 
    2 years ago
    $100
  42. Carolyn Sustrich 
    2 years ago
    $50
  43. Gay Hilger 
    2 years ago
    $25
  44. Laura & Jeff Ziegler  
    2 years ago
    $50
  45. Anonymous 
    2 years ago
    $100
  46. Brett DeBacker  
    2 years ago
    $25
  47. Chelsea Hurttgam 
    2 years ago
    $20
  48. Elizabeth hagelstein 
    2 years ago
    $50
  49. Anonymous 
    2 years ago
    $10
  50. Andrea Brockert  
    2 years ago
    $50
  51. Erin Fahey 
    2 years ago
    $50
  52. Dianna Corbley 
    2 years ago
    $50
  53. Nicole Verniers 
    2 years ago
    $50
  54. Natalie Romano 
    2 years ago
    $15
  55. Jenica Heyza 
    2 years ago
    $20
  56. Mary Dickey 
    2 years ago
    $50
  57. Lauren Galecki 
    2 years ago
    $100
  58. Rita Papas 
    2 years ago
    $50
  59. Doug Bishop 
    2 years ago
    $100
  60. Thomas VanKuiken 
    2 years ago
    $30
  61. Lisa Shoskey 
    2 years ago
    $25
  62. Tracy Borka  
    2 years ago
    $20
  63. Krista and George Hansell 
    2 years ago
    $50
  64. Linda Kirsch 
    2 years ago
    $30
  65. Scott Popyk 
    2 years ago
    $300
  66. Kim Nowak 
    2 years ago
    $50
  67. Janice Smith 
    2 years ago
    $200
  68. Mark Hatz 
    2 years ago
    $100
  69. George Horattas 
    2 years ago
    $100
  70. Michele Kochoff Platt 
    2 years ago
    $100
  71. John Nader 
    2 years ago
    $40
  72. Cara Allen 
    2 years ago
    $100
  73. Christine Walker 
    2 years ago
    $100
  74. Michelle Wojciechowski 
    2 years ago
    $100

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