Quest for a Cure 2017

  • Description
  • FAQ
  • Comments
  • Supporters

The 8th annual Quest for a Cure Walkathon will be held Sunday, September 24, 2017 at VFW Park in Royal Oak, Michigan. This event is organized by nine metro Detroit-area families on behalf of their children with Rett Syndrome: the Cardinalis (Giavanna), the Casses (Ashton), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon - it's always a great day for the entire family with good food, good fun, and great raffle prizes - we hope even those who can't make it will consider making a donation in support of our event! For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (65)

  1. Amy Dagenais 
    17 hours ago
    $100
  2. Nader Jadallah 
    18 hours ago
    $100
  3. Sarah Tupancy 
    18 hours ago
    $50
  4. Greg Bishop 
    19 hours ago
    $1,000
  5. Laura Marcy 
    19 hours ago
    $20
  6. Susan Weinrauch 
    1 day ago
    $100
  7. Rosa Freestone 
    1 day ago
    $100
  8. Basic Metals 
    1 day ago
    $750
  9. Anonymous 
    1 day ago
    $50
  10. Rebecca Wozniak 
    1 day ago
    $100
  11. Heather Lang 
    1 day ago
    $25
  12. Juanette Griffin 
    1 day ago
    $50
  13. Shannon Barber 
    1 day ago
    $10
  14. Julia Bommarito 
    1 day ago
    $50
  15. Theresa Bakwer 
    2 days ago
    $50
  16. Nellie Moran 
    2 days ago
    $75
  17. Anonymous 
    2 days ago
    $50
  18. Lindsey Kirsh 
    2 days ago
    $20
  19. Margaret Woloszyk  
    2 days ago
    $50
  20. SANDRA SCARCELLA 
    2 days ago
    $125
  21. Amie Adamkiewicz 
    2 days ago
    $50
  22. Anonymous 
    2 days ago
    $50
  23. Theolene Smith  
    2 days ago
    $100
  24. Drew Roxx 
    3 days ago
    $100
  25. Jennifer Rosochacki 
    3 days ago
    $100
  26. Wendy Respondek 
    4 days ago
    $25
  27. Stephanie Oldenburg 
    4 days ago
    $10
  28. Celeste McNally 
    4 days ago
    $20
  29. Duane Pietryga 
    4 days ago
    $100
  30. Ann Eberts 
    4 days ago
    $25
  31. Sandy Dziuk 
    4 days ago
    $50
  32. Chester Wilamowski 
    4 days ago
    $100
  33. Carolyn Sustrich 
    4 days ago
    $50
  34. Gay Hilger 
    4 days ago
    $25
  35. Laura & Jeff Ziegler  
    4 days ago
    $50
  36. Anonymous 
    5 days ago
    $100
  37. Brett DeBacker  
    5 days ago
    $25
  38. Chelsea Hurttgam 
    5 days ago
    $20
  39. Elizabeth hagelstein 
    5 days ago
    $50
  40. Anonymous 
    5 days ago
    $10
  41. Andrea Brockert  
    5 days ago
    $50
  42. Erin Fahey 
    5 days ago
    $50
  43. Dianna Corbley 
    5 days ago
    $50
  44. Nicole Verniers 
    5 days ago
    $50
  45. Natalie Romano 
    5 days ago
    $15
  46. Jenica Heyza 
    5 days ago
    $20
  47. Mary Dickey 
    6 days ago
    $50
  48. Lauren Galecki 
    6 days ago
    $100
  49. Rita Papas 
    6 days ago
    $50
  50. Doug Bishop 
    6 days ago
    $100
  51. Thomas VanKuiken 
    6 days ago
    $30
  52. Lisa Shoskey 
    6 days ago
    $25
  53. Tracy Borka  
    6 days ago
    $20
  54. Krista and George Hansell 
    6 days ago
    $50
  55. Linda Kirsch 
    7 days ago
    $30
  56. Scott Popyk 
    7 days ago
    $300
  57. Kim Nowak 
    1 week ago
    $50
  58. Janice Smith 
    1 week ago
    $200
  59. Mark Hatz 
    1 week ago
    $100
  60. George Horattas 
    1 week ago
    $100
  61. Michele Kochoff Platt 
    1 week ago
    $100
  62. John Nader 
    1 week ago
    $40
  63. Cara Allen 
    2 weeks ago
    $100
  64. Christine Walker 
    2 weeks ago
    $100
  65. Michelle Wojciechowski 
    3 weeks ago
    $100

This is a unique website which will require a more modern browser to work!

Please upgrade today!