Quest for a Cure 2017

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The 8th annual Quest for a Cure Walkathon will be held Sunday, September 24, 2017 at VFW Park in Royal Oak, Michigan. This event is organized by nine metro Detroit-area families on behalf of their children with Rett Syndrome: the Cardinalis (Giavanna), the Casses (Ashton), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon - it's always a great day for the entire family with good food, good fun, and great raffle prizes - we hope even those who can't make it will consider making a donation in support of our event! For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (74)

  1. Funds received day of Event 
    10 months ago
    $31,820
  2. Shelley Petty 
    10 months ago
    $220
  3. SHARRON ANDERSON 
    10 months ago
    $100
  4. Rebecca Domzalski-Wilson 
    10 months ago
    $25
  5. Jeff Peterson 
    11 months ago
    $6,000
  6. Mike Dennis 
    11 months ago
    $50
  7. Barbara & Gene Dickirson 
    11 months ago
    $725
  8. Anonymous 
    11 months ago
    $1,200
  9. shari rainko 
    11 months ago
    $50
  10. Amy Dagenais 
    11 months ago
    $100
  11. Nader Jadallah 
    11 months ago
    $100
  12. Sarah Tupancy 
    11 months ago
    $50
  13. Greg Bishop 
    11 months ago
    $1,000
  14. Laura Marcy 
    11 months ago
    $20
  15. Susan Weinrauch 
    11 months ago
    $100
  16. Rosa Freestone 
    11 months ago
    $100
  17. Basic Metals 
    11 months ago
    $750
  18. Anonymous 
    11 months ago
    $50
  19. Rebecca Wozniak 
    11 months ago
    $100
  20. Heather Lang 
    11 months ago
    $25
  21. Juanette Griffin 
    11 months ago
    $50
  22. Shannon Barber 
    11 months ago
    $10
  23. Julia Bommarito 
    11 months ago
    $50
  24. Theresa Bakwer 
    11 months ago
    $50
  25. Nellie Moran 
    11 months ago
    $75
  26. Anonymous 
    11 months ago
    $50
  27. Lindsey Kirsh 
    11 months ago
    $20
  28. Margaret Woloszyk  
    11 months ago
    $50
  29. SANDRA SCARCELLA 
    11 months ago
    $125
  30. Amie Adamkiewicz 
    11 months ago
    $50
  31. Anonymous 
    11 months ago
    $50
  32. Theolene Smith  
    11 months ago
    $100
  33. Drew Roxx 
    11 months ago
    $100
  34. Jennifer Rosochacki 
    11 months ago
    $100
  35. Wendy Respondek 
    11 months ago
    $25
  36. Stephanie Oldenburg 
    11 months ago
    $10
  37. Celeste McNally 
    11 months ago
    $20
  38. Duane Pietryga 
    11 months ago
    $100
  39. Ann Eberts 
    11 months ago
    $25
  40. Sandy Dziuk 
    11 months ago
    $50
  41. Chester Wilamowski 
    11 months ago
    $100
  42. Carolyn Sustrich 
    11 months ago
    $50
  43. Gay Hilger 
    11 months ago
    $25
  44. Laura & Jeff Ziegler  
    11 months ago
    $50
  45. Anonymous 
    11 months ago
    $100
  46. Brett DeBacker  
    11 months ago
    $25
  47. Chelsea Hurttgam 
    11 months ago
    $20
  48. Elizabeth hagelstein 
    11 months ago
    $50
  49. Anonymous 
    11 months ago
    $10
  50. Andrea Brockert  
    11 months ago
    $50
  51. Erin Fahey 
    11 months ago
    $50
  52. Dianna Corbley 
    11 months ago
    $50
  53. Nicole Verniers 
    11 months ago
    $50
  54. Natalie Romano 
    11 months ago
    $15
  55. Jenica Heyza 
    11 months ago
    $20
  56. Mary Dickey 
    11 months ago
    $50
  57. Lauren Galecki 
    11 months ago
    $100
  58. Rita Papas 
    11 months ago
    $50
  59. Doug Bishop 
    11 months ago
    $100
  60. Thomas VanKuiken 
    11 months ago
    $30
  61. Lisa Shoskey 
    11 months ago
    $25
  62. Tracy Borka  
    11 months ago
    $20
  63. Krista and George Hansell 
    11 months ago
    $50
  64. Linda Kirsch 
    11 months ago
    $30
  65. Scott Popyk 
    11 months ago
    $300
  66. Kim Nowak 
    11 months ago
    $50
  67. Janice Smith 
    11 months ago
    $200
  68. Mark Hatz 
    11 months ago
    $100
  69. George Horattas 
    11 months ago
    $100
  70. Michele Kochoff Platt 
    11 months ago
    $100
  71. John Nader 
    11 months ago
    $40
  72. Cara Allen 
    11 months ago
    $100
  73. Christine Walker 
    11 months ago
    $100
  74. Michelle Wojciechowski 
    11 months ago
    $100

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