Quest for a Cure 2017

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The 8th annual Quest for a Cure Walkathon will be held Sunday, September 24, 2017 at VFW Park in Royal Oak, Michigan. This event is organized by nine metro Detroit-area families on behalf of their children with Rett Syndrome: the Cardinalis (Giavanna), the Casses (Ashton), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon - it's always a great day for the entire family with good food, good fun, and great raffle prizes - we hope even those who can't make it will consider making a donation in support of our event! For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (74)

  1. Funds received day of Event 
    4 weeks ago
    $31,820
  2. Shelley Petty 
    1 month ago
    $220
  3. SHARRON ANDERSON 
    2 months ago
    $100
  4. Rebecca Domzalski-Wilson 
    2 months ago
    $25
  5. Jeff Peterson 
    2 months ago
    $6,000
  6. Mike Dennis 
    2 months ago
    $50
  7. Barbara & Gene Dickirson 
    2 months ago
    $725
  8. Anonymous 
    2 months ago
    $1,200
  9. shari rainko 
    2 months ago
    $50
  10. Amy Dagenais 
    2 months ago
    $100
  11. Nader Jadallah 
    2 months ago
    $100
  12. Sarah Tupancy 
    2 months ago
    $50
  13. Greg Bishop 
    2 months ago
    $1,000
  14. Laura Marcy 
    2 months ago
    $20
  15. Susan Weinrauch 
    2 months ago
    $100
  16. Rosa Freestone 
    2 months ago
    $100
  17. Basic Metals 
    2 months ago
    $750
  18. Anonymous 
    2 months ago
    $50
  19. Rebecca Wozniak 
    2 months ago
    $100
  20. Heather Lang 
    2 months ago
    $25
  21. Juanette Griffin 
    2 months ago
    $50
  22. Shannon Barber 
    2 months ago
    $10
  23. Julia Bommarito 
    2 months ago
    $50
  24. Theresa Bakwer 
    2 months ago
    $50
  25. Nellie Moran 
    2 months ago
    $75
  26. Anonymous 
    2 months ago
    $50
  27. Lindsey Kirsh 
    2 months ago
    $20
  28. Margaret Woloszyk  
    2 months ago
    $50
  29. SANDRA SCARCELLA 
    2 months ago
    $125
  30. Amie Adamkiewicz 
    2 months ago
    $50
  31. Anonymous 
    2 months ago
    $50
  32. Theolene Smith  
    2 months ago
    $100
  33. Drew Roxx 
    2 months ago
    $100
  34. Jennifer Rosochacki 
    2 months ago
    $100
  35. Wendy Respondek 
    2 months ago
    $25
  36. Stephanie Oldenburg 
    2 months ago
    $10
  37. Celeste McNally 
    2 months ago
    $20
  38. Duane Pietryga 
    2 months ago
    $100
  39. Ann Eberts 
    2 months ago
    $25
  40. Sandy Dziuk 
    2 months ago
    $50
  41. Chester Wilamowski 
    2 months ago
    $100
  42. Carolyn Sustrich 
    2 months ago
    $50
  43. Gay Hilger 
    2 months ago
    $25
  44. Laura & Jeff Ziegler  
    2 months ago
    $50
  45. Anonymous 
    2 months ago
    $100
  46. Brett DeBacker  
    2 months ago
    $25
  47. Chelsea Hurttgam 
    2 months ago
    $20
  48. Elizabeth hagelstein 
    2 months ago
    $50
  49. Anonymous 
    2 months ago
    $10
  50. Andrea Brockert  
    2 months ago
    $50
  51. Erin Fahey 
    2 months ago
    $50
  52. Dianna Corbley 
    2 months ago
    $50
  53. Nicole Verniers 
    2 months ago
    $50
  54. Natalie Romano 
    2 months ago
    $15
  55. Jenica Heyza 
    2 months ago
    $20
  56. Mary Dickey 
    2 months ago
    $50
  57. Lauren Galecki 
    2 months ago
    $100
  58. Rita Papas 
    2 months ago
    $50
  59. Doug Bishop 
    2 months ago
    $100
  60. Thomas VanKuiken 
    2 months ago
    $30
  61. Lisa Shoskey 
    2 months ago
    $25
  62. Tracy Borka  
    2 months ago
    $20
  63. Krista and George Hansell 
    2 months ago
    $50
  64. Linda Kirsch 
    2 months ago
    $30
  65. Scott Popyk 
    2 months ago
    $300
  66. Kim Nowak 
    2 months ago
    $50
  67. Janice Smith 
    2 months ago
    $200
  68. Mark Hatz 
    2 months ago
    $100
  69. George Horattas 
    2 months ago
    $100
  70. Michele Kochoff Platt 
    2 months ago
    $100
  71. John Nader 
    2 months ago
    $40
  72. Cara Allen 
    2 months ago
    $100
  73. Christine Walker 
    2 months ago
    $100
  74. Michelle Wojciechowski 
    2 months ago
    $100

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