Quest for a Cure 2017

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  • FAQ
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  • Supporters

The 8th annual Quest for a Cure Walkathon will be held Sunday, September 24, 2017 at VFW Park in Royal Oak, Michigan. This event is organized by nine metro Detroit-area families on behalf of their children with Rett Syndrome: the Cardinalis (Giavanna), the Casses (Ashton), the MacDonalds (Annie), the Petersons (Jillian), the Pettys (Hailey), the Rokickis (Olivia), the Scappaticcis (Isabella), the Weinrauchs (Emily), and the Zerials (Mia).

While we certainly encourage everyone to attend the walkathon - it's always a great day for the entire family with good food, good fun, and great raffle prizes - we hope even those who can't make it will consider making a donation in support of our event! For more information on the event and how to participate, click here to visit the website.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (82)

  1. Greg Bishop 
    2 weeks ago
    $1,000
  2. Lorri Martin 
    2 weeks ago
    $100
  3. Lauren Burns 
    3 weeks ago
    $100
  4. Jennifer Rosochacki 
    3 weeks ago
    $100
  5. David Giera 
    3 weeks ago
    $75
  6. Karen Haas 
    4 weeks ago
    $25
  7. Yvonne Schroeder 
    4 weeks ago
    $50
  8. Julia Bommarito 
    4 weeks ago
    $50
  9. Funds received day of Event 
    12 months ago
    $31,820
  10. Shelley Petty 
    1 year ago
    $220
  11. SHARRON ANDERSON 
    1 year ago
    $100
  12. Rebecca Domzalski-Wilson 
    1 year ago
    $25
  13. Jeff Peterson 
    1 year ago
    $6,000
  14. Mike Dennis 
    1 year ago
    $50
  15. Barbara & Gene Dickirson 
    1 year ago
    $725
  16. Anonymous 
    1 year ago
    $1,200
  17. shari rainko 
    1 year ago
    $50
  18. Amy Dagenais 
    1 year ago
    $100
  19. Nader Jadallah 
    1 year ago
    $100
  20. Sarah Tupancy 
    1 year ago
    $50
  21. Greg Bishop 
    1 year ago
    $1,000
  22. Laura Marcy 
    1 year ago
    $20
  23. Susan Weinrauch 
    1 year ago
    $100
  24. Rosa Freestone 
    1 year ago
    $100
  25. Basic Metals 
    1 year ago
    $750
  26. Anonymous 
    1 year ago
    $50
  27. Rebecca Wozniak 
    1 year ago
    $100
  28. Heather Lang 
    1 year ago
    $25
  29. Juanette Griffin 
    1 year ago
    $50
  30. Shannon Barber 
    1 year ago
    $10
  31. Julia Bommarito 
    1 year ago
    $50
  32. Theresa Bakwer 
    1 year ago
    $50
  33. Nellie Moran 
    1 year ago
    $75
  34. Anonymous 
    1 year ago
    $50
  35. Lindsey Kirsh 
    1 year ago
    $20
  36. Margaret Woloszyk  
    1 year ago
    $50
  37. SANDRA SCARCELLA 
    1 year ago
    $125
  38. Amie Adamkiewicz 
    1 year ago
    $50
  39. Anonymous 
    1 year ago
    $50
  40. Theolene Smith  
    1 year ago
    $100
  41. Drew Roxx 
    1 year ago
    $100
  42. Jennifer Rosochacki 
    1 year ago
    $100
  43. Wendy Respondek 
    1 year ago
    $25
  44. Stephanie Oldenburg 
    1 year ago
    $10
  45. Celeste McNally 
    1 year ago
    $20
  46. Duane Pietryga 
    1 year ago
    $100
  47. Ann Eberts 
    1 year ago
    $25
  48. Sandy Dziuk 
    1 year ago
    $50
  49. Chester Wilamowski 
    1 year ago
    $100
  50. Carolyn Sustrich 
    1 year ago
    $50
  51. Gay Hilger 
    1 year ago
    $25
  52. Laura & Jeff Ziegler  
    1 year ago
    $50
  53. Anonymous 
    1 year ago
    $100
  54. Brett DeBacker  
    1 year ago
    $25
  55. Chelsea Hurttgam 
    1 year ago
    $20
  56. Elizabeth hagelstein 
    1 year ago
    $50
  57. Anonymous 
    1 year ago
    $10
  58. Andrea Brockert  
    1 year ago
    $50
  59. Erin Fahey 
    1 year ago
    $50
  60. Dianna Corbley 
    1 year ago
    $50
  61. Nicole Verniers 
    1 year ago
    $50
  62. Natalie Romano 
    1 year ago
    $15
  63. Jenica Heyza 
    1 year ago
    $20
  64. Mary Dickey 
    1 year ago
    $50
  65. Lauren Galecki 
    1 year ago
    $100
  66. Rita Papas 
    1 year ago
    $50
  67. Doug Bishop 
    1 year ago
    $100
  68. Thomas VanKuiken 
    1 year ago
    $30
  69. Lisa Shoskey 
    1 year ago
    $25
  70. Tracy Borka  
    1 year ago
    $20
  71. Krista and George Hansell 
    1 year ago
    $50
  72. Linda Kirsch 
    1 year ago
    $30
  73. Scott Popyk 
    1 year ago
    $300
  74. Kim Nowak 
    1 year ago
    $50
  75. Janice Smith 
    1 year ago
    $200
  76. Mark Hatz 
    1 year ago
    $100
  77. George Horattas 
    1 year ago
    $100
  78. Michele Kochoff Platt 
    1 year ago
    $100
  79. John Nader 
    1 year ago
    $40
  80. Cara Allen 
    1 year ago
    $100
  81. Christine Walker 
    1 year ago
    $100
  82. Michelle Wojciechowski 
    1 year ago
    $100

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