Our 4th Birthday

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UPDATE | 更新 06.09.2016


Our goal was $5,000 but we have been overwhelmed by your support and we are so excited to keep going past the goal to help develop treatments and a cure for Audrey and others with Rett Syndrome. Thank you so much!

我们的目标是5000美元,然而大家的支持是如此有力。我们非常兴奋这个设定的目标如此快地达到并超越了,并向着为治愈象丹丹一样的雷特女孩继续迈进。非常感谢大家!




Audrey and Adalyn are twins. You may have noticed a difference between them. Audrey always sits. Audrey always wears a pair of sleeves. Yes, Audrey is special. Audrey suffers from a neurological disorder called Rett Syndrome. Three years ago, just after her first birthday, Audrey was diagnosed with Rett. Audrey’s beauty, strength, and good nature in spite of Rett Syndrome inspire us to take action to help change her life.

丹丹和青青是一对双胞胎。你们可能已经注意到她们两人之间的不同。丹丹总是坐着,总是戴着一副袖套。是的,丹丹是一名特殊儿童。她罹患一种叫做雷特综合征得神经系统疾病。三年前,她刚刚过完一岁生日,就被确诊了。丹丹的美丽,坚强和单纯的天性激励着我们去帮助她改变她的命运。


We are excited to announce that we are launching a crowdfunding campaign for the Rett Syndrome Research Trust in honor of Audrey’s and Adalyn’s 4th birthdays. There is no better birthday present for our twins than your help in advancing the research on Rett Syndrome. One day we hope that Audrey, like her sister, is no longer trapped in a body that is constantly under the siege of Rett Syndrome.

我们激动地宣布,以丹丹和青青四岁生日的名义,参与Rett Syndrome Research Trust组织的众筹项目。没有比来自你们的推动雷特综合征研究的帮助更好的生日礼物了。我们希望有一天,丹丹和她的双胞胎妹妹,青青一样,不再受困于雷特综合征的牢笼。


With support from you and others, there is great hope and promise that this can be accomplished. Rett stands apart from other neurological disorders because it has been proven to be reversible in mouse models. RSRT, a non-profit, is leading the charge to translate a reversal in mice to a reversal in girls. We have complete trust in and admiration for this organization. An average of 96% of every dollar donated goes directly to research. RSRT has made possible clinical trials of drugs that could improve symptoms of Rett, as well as approaches such as gene therapy that attack the disease at its root and offer the possibility of a reversal.

有来自你们的支持,这个愿望得以有极大的希望和承诺得以达成。雷特综合征和其他神经系统疾病有所区别在于它在老鼠模型上是可逆转的,这也就预示着在这些雷特女孩的身上也可以逆转。我们对RSRT有完全的信任。它所募捐的96%的善款都捐助给了相关研究。RSRT促成了一些改善雷特综合征症状的药物临床试验,同时也有像基因治疗这样一些手段来进行根治以使逆转成为可能。


RSRT is not funded by the government or by foundations. It relies on support from affected families and their networks of friends, colleagues, and family. That’s where you come in. We hope very much that you will contribute to RSRT in honor of our twins’ 4th birthdays.

RSRT并不是由政府或者基金会资助的。它主要依靠患者家庭及其朋友,同事和亲人的支持。这就是你们看见这个网页的目的。我们非常希望你们能以丹丹青青四岁生日的名义为RSRT捐赠。


We are so grateful for your support. We will personally match dollar for dollar the first $1,000 contributed to our campaign. Every dollar makes a difference to the research and to Audrey.

我们也非常感激所有你们的支持。我们个人将会比捐头1000美元。每一分捐款都会为研究以及丹丹带来改变。



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


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  1. Longfei Yu 
    11 months ago
    $250
  2. T-Mobile USA Employee Matching Gifts 
    1 year ago
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  3. Microsoft Employee Matching Gifts 
    1 year ago
    $400
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    $500
  5. Jin Wu 
    1 year ago
    $100
  6. Jin Wu 
    1 year ago
    $1,000
  7. Quan Zhou 
    1 year ago
    $250
  8. Bin Shao 
    1 year ago
    $50
  9. Wei Zhuang 
    1 year ago
    $100
  10. Lihua Yuan 
    1 year ago
    $400
  11. Wendi Chen 
    1 year ago
    $100
  12. Xin Dong 
    1 year ago
    $500
  13. Yan Xiao 
    1 year ago
    $50
  14. 永鑫 白 
    1 year ago
    $149.25
  15. 毅 董 
    1 year ago
    $149.25
  16. 晓山 张 
    1 year ago
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  17. 鲲鹏 梁 
    1 year ago
    $44.78
  18. 挺秀 王 
    1 year ago
    $29.85
  19. Jing Zhang 
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    $100
  20. zhiching kwok 
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    $50
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    $84
  22. Hui Luo 
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    $100
  23. Han Cui 
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  24. Yi Lin 
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  25. Lihua Yuan 
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    $250
  26. Qiuyuan Liu 
    1 year ago
    $100
  27. John wu 
    1 year ago
    $100
  28. Jianming Jin 
    1 year ago
    $100
  29. L an Huang 
    1 year ago
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  30. Mimi Li 
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  31. Xiaolong Han 
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    $250
  32. Yin Yan 
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  33. Lcucy Lu 
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  34. Qianjun Xu 
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  35. Kewei Sha 
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  36. Wenjia Hou 
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  37. Tao Liu 
    1 year ago
    $100
  38. Xinrong Xie 
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  39. 华菊 俞 
    1 year ago
    $15.15
  40. 娟 糜 
    1 year ago
    $15.15
  41. 毅 安 
    1 year ago
    $250
  42. Yang Jianxin 
    1 year ago
    $10
  43. Qiang Wu 
    1 year ago
    $1,000
  44. 臣栋 孙 
    1 year ago
    $134.54
  45. Bin Shao 
    1 year ago
    $50
  46. 淑芳 许 
    1 year ago
    $15.15
  47. 烽 刘 
    1 year ago
    $500
  48. 军辉 周 
    1 year ago
    $60.60
  49. 曼 李 
    1 year ago
    $15.15
  50. Quan Zhou 
    1 year ago
    $250
  51. 惠娟 叶 
    1 year ago
    $30.50
  52. 建波 余 
    1 year ago
    $60.60
  53. 钊 孙 
    1 year ago
    $45.45
  54. 少慧 陈 
    1 year ago
    $75.75
  55. 晶晶 曲 
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  56. 林娟 李 
    1 year ago
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    1 year ago
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  58. Wen Wu 
    1 year ago
    $100
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    $75
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    $151.50
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    $100
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    $100
  72. SHUJIE ZHU 
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  73. Wei Zhuang 
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    $100
  74. Jing Li 
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  75. xinjie li 
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    $50
  76. Jianglin Liu 
    1 year ago
    $100
  77. Jiting Yang 
    1 year ago
    $100
  78. Zhandong Liu 
    1 year ago
    $100
  79. 志春 程 
    1 year ago
    $30.50
  80. 璇 孙 
    1 year ago
    $30.50
  81. 素梅 刘 
    1 year ago
    $91
  82. Qiongyan Fang 
    1 year ago
    $150
  83. Liya An 
    1 year ago
    $30.50
  84. 春梅 罗 
    1 year ago
    $30.50
  85. 岗 严 
    1 year ago
    $30.50
  86. 晓然 胡 
    1 year ago
    $30.50
  87. 颖 刘 
    1 year ago
    $30.50
  88. 超 牟 
    1 year ago
    $151.50
  89. 海琳 朱 
    1 year ago
    $45.50
  90. Yu Li  
    1 year ago
    $100
  91. Yi Liu 
    1 year ago
    $100
  92. Bin Wei 
    1 year ago
    $75
  93. Chunhui Zhao 
    1 year ago
    $50
  94. Lihui Shi 
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    $100
  95. wenqi zhang 
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    $100
  96. Chen Jia 
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    $100
  97. Xiaolong Han 
    1 year ago
    $100
  98. Yingchen Liu 
    1 year ago
    $151.50
  99. bob dawson 
    1 year ago
    $300
  100. Huili Cheng 
    1 year ago
    $151.50
  101. XIANMING CAI 
    1 year ago
    $400
  102. Daochun Sun 
    1 year ago
    $100
  103. Wenhao Zhang 
    1 year ago
    $151.50
  104. Lin Hua 
    1 year ago
    $500
  105. Jihan Wang 
    1 year ago
    $50
  106. hui yu 
    1 year ago
    $1,000
  107. Jingbin Li 
    1 year ago
    $100
  108. Yajun Wang 
    1 year ago
    $100

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