Never Give Up – Fight Rett for a Cure

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We have been overwhelmed by the wonderful generosity and compassion of so many friends and family. We decided to raise our goal to $50,000 so we have an even bigger impact on Himani’s life and the lives of the 350,000 other girls and women with Rett Syndrome.


Himani was diagnosed with Rett Syndrome in May, 2018 just 3 weeks before her 3rd Birthday.  Both of us being doctors like any other parent realized the difficult situation ahead of us, but we refuse to give up hope for Himani. With that in mind, we have decided to do our part in helping to find a cure for Rett Syndrome.

The research is very promising, and with continued progress and sufficient funding, it’s possible that there could be treatments and maybe even a cure for Rett in the near future.  We have become involved with a non-profit organization called "the Rett Syndrome Research Trust (RSRT)”.  Through this campaign we are asking you to join us in supporting RSRT and the search for a cure.  Your donations will lead to a better future for Himani and thousands of other children with Rett Syndrome.

Thank you all.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (150)

  1. Anonymous 
    1 week ago
    $250
  2. Ashna Pokhrel  
    4 months ago
    $50
  3. Divya Salhan 
    4 months ago
    $100
  4. Venuka Kondragunta 
    4 months ago
    $500
  5. Salesforce.org  
    5 months ago
    $1,900
  6. Jhansi Kunam 
    5 months ago
    $2,500
  7. Prodip Paul 
    5 months ago
    $500
  8. chandrasekhar Bellamkonda 
    5 months ago
    $1,400
  9. INTERFAITH MEDICAL CENTER 
    5 months ago
    $2,000
  10. RAVEENDRA CHIGURUPATI 
    5 months ago
    $2,000
  11. Jeff Cheung  
    6 months ago
    $250
  12. Salesforce.org match of Chandrasekhar Ballamkonda 
    7 months ago
    $1,000
  13. Germaine Durant 
    7 months ago
    $100
  14. Rahul Thotakura 
    7 months ago
    $100
  15. Parthasarathi Marapareddigari 
    7 months ago
    $250
  16. Subramanyeswara Arekapudi 
    7 months ago
    $500
  17. Siva Soma 
    7 months ago
    $250
  18. Krishna Addala 
    8 months ago
    $100
  19. Krishna Addala 
    8 months ago
    $100
  20. Prem Parajuli 
    8 months ago
    $100
  21. Ajay Gupta 
    8 months ago
    $50
  22. yamini atluri 
    8 months ago
    $250
  23. Prerna Ganjoo 
    8 months ago
    $100
  24. Anonymous 
    8 months ago
    $50
  25. Kiran Bandi 
    8 months ago
    $250
  26. Chandrasekhar Bellamkonda 
    8 months ago
    $1,000
  27. PRASAD POLISETTY 
    8 months ago
    $500
  28. shalini cherala 
    8 months ago
    $250
  29. Anonymous 
    8 months ago
    $200
  30. Nancy Shrestha 
    8 months ago
    $100
  31. Raju saripudi 
    8 months ago
    $50
  32. sruthi saripudi 
    8 months ago
    $200
  33. Srinivas ABBURI 
    8 months ago
    $500
  34. Anonymous 
    8 months ago
    $100
  35. ODAY ALHAFIDH 
    8 months ago
    $50
  36. Subhash Gorrepati 
    8 months ago
    $250
  37. Mariyam Abbasi  
    8 months ago
    $100
  38. Maruthi Rayani 
    8 months ago
    $200
  39. Ramesh Adhikari  
    8 months ago
    $250
  40. Anonymous 
    8 months ago
    $100
  41. Su Aung 
    8 months ago
    $50
  42. Bhaskar Shetty  
    8 months ago
    $25
  43. Anonymous 
    8 months ago
    $1,000
  44. Anonymous 
    8 months ago
    $100
  45. Anonymous 
    8 months ago
    $500
  46. Anonymous 
    8 months ago
    $500
  47. Swaroop Ramaiah 
    8 months ago
    $100
  48. Madhavi Darsi 
    8 months ago
    $1,000
  49. Kanchan Karki 
    8 months ago
    $250
  50. Praveen Datar 
    8 months ago
    $500
  51. Anonymous 
    8 months ago
    $300
  52. Geetha Dronachalam 
    8 months ago
    $50
  53. Sujay Inampudi  
    8 months ago
    $500
  54. Anonymous 
    8 months ago
    $400
  55. Anonymous 
    8 months ago
    $400
  56. Vinay Tak 
    8 months ago
    $250
  57. lakshmi attoti 
    8 months ago
    $100
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    8 months ago
    $100
  59. Rana Singh  
    8 months ago
    $500
  60. Anonymous 
    8 months ago
    $100
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    8 months ago
    $100
  62. Anonymous 
    8 months ago
    $50
  63. Addagada Rao 
    8 months ago
    $100
  64. Anonymous 
    8 months ago
    $250
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    8 months ago
    $250
  66. Ranjith Kamity 
    8 months ago
    $500
  67. Anonymous 
    8 months ago
    $100
  68. sriharsha uppalapati 
    8 months ago
    $100
  69. Gopichand Pendurti 
    8 months ago
    $500
  70. Bhaskar reddy Madhira 
    8 months ago
    $500
  71. Saveena Manhas 
    8 months ago
    $30
  72. Kiran Ray 
    8 months ago
    $250
  73. Anil Reddivari 
    8 months ago
    $500
  74. Bilal Shahzad A Khan 
    8 months ago
    $100
  75. Abduljabbar Altekreeti 
    8 months ago
    $100
  76. Varun Yadav 
    8 months ago
    $1,000
  77. Neelima Patibandla 
    8 months ago
    $50
  78. Shankara N 
    8 months ago
    $50
  79. Srikant Nannapaneni 
    8 months ago
    $500
  80. Anonymous 
    8 months ago
    $250
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    8 months ago
    $350
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    8 months ago
    $100
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    8 months ago
    $100
  84. Omar Abdulfattah 
    8 months ago
    $100
  85. Jagadeesh Batana 
    8 months ago
    $50
  86. Jagadeesh Batana 
    8 months ago
    $50
  87. Anonymous 
    8 months ago
    $100
  88. Padmaja Gunjupali  
    8 months ago
    $500
  89. Sudheer Mogilappagari 
    8 months ago
    $100
  90. Vikas Agrawal 
    8 months ago
    $250
  91. Cynthia Ko 
    8 months ago
    $300
  92. Su Myat Paing 
    8 months ago
    $30
  93. Pradeep Chaganti 
    8 months ago
    $500
  94. Steven Sherman 
    8 months ago
    $200
  95. Aye Nwe 
    8 months ago
    $250
  96. Htay Tint 
    8 months ago
    $500
  97. Anonymous 
    8 months ago
    $25
  98. Anonymous 
    8 months ago
    $500
  99. Sandar Win 
    8 months ago
    $100
  100. Sandar Win 
    8 months ago
    $100
  101. Rupesh Khanal 
    8 months ago
    $20
  102. WUT YI HNINN 
    8 months ago
    $500
  103. Bhanu Kosuru 
    8 months ago
    $300
  104. Babita Saaraswat 
    8 months ago
    $500
  105. Sulakshman Madala 
    8 months ago
    $150
  106. Mazin Khalid 
    8 months ago
    $50
  107. Vinod Nookala 
    8 months ago
    $300
  108. Stanka Kankipati 
    8 months ago
    $500
  109. n meka 
    8 months ago
    $100
  110. Zaw Win Tun 
    8 months ago
    $100
  111. Anonymous 
    8 months ago
    $250
  112. Madhu Nadimpalli 
    8 months ago
    $500
  113. Varma Kosuri 
    8 months ago
    $50
  114. Antony Lixon 
    8 months ago
    $200
  115. Chiranjeevi Gadiparthi  
    8 months ago
    $275
  116. Yeshwanth Mandava 
    8 months ago
    $50
  117. Abhisekh Sinha Ray 
    8 months ago
    $200
  118. Sanjana Mandava 
    8 months ago
    $100
  119. Tarun Jaiswal 
    8 months ago
    $50
  120. Anonymous 
    8 months ago
    $100
  121. Anonymous 
    8 months ago
    $50
  122. Saroj Sapkota 
    8 months ago
    $50
  123. Binita Kharel Nepal 
    8 months ago
    $100
  124. George Houston 
    8 months ago
    $5
  125. Anonymous 
    8 months ago
    $50
  126. Thein Swe 
    8 months ago
    $100
  127. s v 
    8 months ago
    $200
  128. Anonymous 
    8 months ago
    $7.23
  129. Anonymous 
    8 months ago
    $50
  130. Anonymous 
    8 months ago
    $20
  131. Sivaji Medikonda 
    8 months ago
    $100
  132. Anudeep Bhimani 
    8 months ago
    $50
  133. Anonymous 
    8 months ago
    $50
  134. Sridevi Chennupati 
    8 months ago
    $100
  135. Usha Kurra 
    8 months ago
    $500
  136. Thara Basavaiah 
    8 months ago
    $500
  137. Nalini Kolla 
    8 months ago
    $100
  138. Chadani Ayer 
    8 months ago
    $250
  139. Anonymous 
    8 months ago
    $20
  140. Yeswanth Attoti 
    8 months ago
    $50
  141. Anonymous 
    8 months ago
    $100
  142. Vamsi Kanneganti 
    8 months ago
    $250
  143. Sumra Abbasi 
    8 months ago
    $100
  144. Anonymous 
    8 months ago
    $500
  145. Anonymous 
    8 months ago
    $250
  146. Chandana Attoti 
    8 months ago
    $100
  147. Govardhani Mandava 
    8 months ago
    $100
  148. Anonymous 
    8 months ago
    $50
  149. Vinod Nookala 
    8 months ago
    $50
  150. Gopi Krishna Vadlamudi 
    8 months ago
    $1,000

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