Never Give Up – Fight Rett for a Cure

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We have been overwhelmed by the wonderful generosity and compassion of so many friends and family. We decided to raise our goal to $50,000 so we have an even bigger impact on Himani’s life and the lives of the 350,000 other girls and women with Rett Syndrome.


Himani was diagnosed with Rett Syndrome in May, 2018 just 3 weeks before her 3rd Birthday.  Both of us being doctors like any other parent realized the difficult situation ahead of us, but we refuse to give up hope for Himani. With that in mind, we have decided to do our part in helping to find a cure for Rett Syndrome.

The research is very promising, and with continued progress and sufficient funding, it’s possible that there could be treatments and maybe even a cure for Rett in the near future.  We have become involved with a non-profit organization called "the Rett Syndrome Research Trust (RSRT)”.  Through this campaign we are asking you to join us in supporting RSRT and the search for a cure.  Your donations will lead to a better future for Himani and thousands of other children with Rett Syndrome.

Thank you all.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (148)

  1. Divya Salhan 
    1 week ago
    $100
  2. Venuka Kondragunta 
    1 week ago
    $500
  3. Salesforce.org  
    2 weeks ago
    $1,900
  4. Jhansi Kunam 
    4 weeks ago
    $2,500
  5. Prodip Paul 
    1 month ago
    $500
  6. chandrasekhar Bellamkonda 
    1 month ago
    $1,400
  7. INTERFAITH MEDICAL CENTER 
    1 month ago
    $2,000
  8. RAVEENDRA CHIGURUPATI 
    1 month ago
    $2,000
  9. Jeff Cheung  
    2 months ago
    $250
  10. Salesforce.org match of Chandrasekhar Ballamkonda 
    2 months ago
    $1,000
  11. Germaine Durant 
    3 months ago
    $100
  12. Rahul Thotakura 
    3 months ago
    $100
  13. Parthasarathi Marapareddigari 
    3 months ago
    $250
  14. Subramanyeswara Arekapudi 
    3 months ago
    $500
  15. Siva Soma 
    3 months ago
    $250
  16. Krishna Addala 
    4 months ago
    $100
  17. Krishna Addala 
    4 months ago
    $100
  18. Prem Parajuli 
    4 months ago
    $100
  19. Ajay Gupta 
    4 months ago
    $50
  20. yamini atluri 
    4 months ago
    $250
  21. Prerna Ganjoo 
    4 months ago
    $100
  22. Anonymous 
    4 months ago
    $50
  23. Kiran Bandi 
    4 months ago
    $250
  24. Chandrasekhar Bellamkonda 
    4 months ago
    $1,000
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    4 months ago
    $500
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    4 months ago
    $250
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    4 months ago
    $200
  28. Nancy Shrestha 
    4 months ago
    $100
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    4 months ago
    $50
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    4 months ago
    $200
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    4 months ago
    $500
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    4 months ago
    $100
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    4 months ago
    $50
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    4 months ago
    $250
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    4 months ago
    $100
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    4 months ago
    $200
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    4 months ago
    $250
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    4 months ago
    $100
  39. Su Aung 
    4 months ago
    $50
  40. Bhaskar Shetty  
    4 months ago
    $25
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    4 months ago
    $1,000
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    4 months ago
    $100
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    4 months ago
    $500
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    4 months ago
    $500
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    4 months ago
    $100
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    4 months ago
    $1,000
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    4 months ago
    $250
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    4 months ago
    $500
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    4 months ago
    $300
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    4 months ago
    $50
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    4 months ago
    $500
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    $400
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    4 months ago
    $400
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    4 months ago
    $250
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    4 months ago
    $100
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    4 months ago
    $100
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    4 months ago
    $500
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    $100
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    4 months ago
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    4 months ago
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    4 months ago
    $30
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    4 months ago
    $250
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    4 months ago
    $500
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    $100
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    4 months ago
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    4 months ago
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    4 months ago
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    4 months ago
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    4 months ago
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    4 months ago
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    4 months ago
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    4 months ago
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    4 months ago
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    4 months ago
    $100
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    4 months ago
    $500
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    4 months ago
    $100
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    4 months ago
    $250
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    4 months ago
    $300
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    4 months ago
    $30
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    4 months ago
    $500
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    4 months ago
    $200
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    4 months ago
    $250
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    4 months ago
    $500
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    4 months ago
    $25
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    4 months ago
    $500
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    4 months ago
    $100
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    4 months ago
    $100
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    4 months ago
    $20
  100. WUT YI HNINN 
    4 months ago
    $500
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    4 months ago
    $300
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    4 months ago
    $500
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    4 months ago
    $150
  104. Mazin Khalid 
    4 months ago
    $50
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    4 months ago
    $300
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    4 months ago
    $500
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    4 months ago
    $100
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    4 months ago
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    4 months ago
    $250
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    4 months ago
    $500
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    4 months ago
    $50
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    4 months ago
    $200
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    4 months ago
    $275
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    4 months ago
    $50
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    4 months ago
    $200
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    4 months ago
    $100
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    4 months ago
    $50
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    4 months ago
    $100
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    4 months ago
    $50
  120. Saroj Sapkota 
    4 months ago
    $50
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    4 months ago
    $100
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    4 months ago
    $5
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    4 months ago
    $50
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    4 months ago
    $100
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    4 months ago
    $200
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    4 months ago
    $7.23
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    4 months ago
    $50
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    4 months ago
    $20
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    4 months ago
    $100
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    4 months ago
    $50
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    4 months ago
    $50
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    4 months ago
    $100
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    4 months ago
    $500
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    4 months ago
    $500
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    4 months ago
    $100
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    4 months ago
    $250
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    4 months ago
    $20
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    4 months ago
    $50
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    4 months ago
    $100
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    4 months ago
    $250
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    4 months ago
    $100
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    4 months ago
    $500
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    4 months ago
    $250
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    4 months ago
    $100
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    4 months ago
    $100
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    4 months ago
    $50
  147. Vinod Nookala 
    4 months ago
    $50
  148. Gopi Krishna Vadlamudi 
    4 months ago
    $1,000

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