Never Give Up – Fight Rett for a Cure

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We have been overwhelmed by the wonderful generosity and compassion of so many friends and family. We decided to raise our goal to $50,000 so we have an even bigger impact on Himani’s life and the lives of the 350,000 other girls and women with Rett Syndrome.


Himani was diagnosed with Rett Syndrome in May, 2018 just 3 weeks before her 3rd Birthday.  Both of us being doctors like any other parent realized the difficult situation ahead of us, but we refuse to give up hope for Himani. With that in mind, we have decided to do our part in helping to find a cure for Rett Syndrome.

The research is very promising, and with continued progress and sufficient funding, it’s possible that there could be treatments and maybe even a cure for Rett in the near future.  We have become involved with a non-profit organization called "the Rett Syndrome Research Trust (RSRT)”.  Through this campaign we are asking you to join us in supporting RSRT and the search for a cure.  Your donations will lead to a better future for Himani and thousands of other children with Rett Syndrome.

Thank you all.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (150)

  1. Anonymous 
    4 months ago
    $250
  2. Ashna Pokhrel  
    8 months ago
    $50
  3. Divya Salhan 
    8 months ago
    $100
  4. Venuka Kondragunta 
    9 months ago
    $500
  5. Salesforce.org  
    9 months ago
    $1,900
  6. Jhansi Kunam 
    9 months ago
    $2,500
  7. Prodip Paul 
    9 months ago
    $500
  8. chandrasekhar Bellamkonda 
    9 months ago
    $1,400
  9. INTERFAITH MEDICAL CENTER 
    10 months ago
    $2,000
  10. RAVEENDRA CHIGURUPATI 
    10 months ago
    $2,000
  11. Jeff Cheung  
    10 months ago
    $250
  12. Salesforce.org match of Chandrasekhar Ballamkonda 
    11 months ago
    $1,000
  13. Germaine Durant 
    11 months ago
    $100
  14. Rahul Thotakura 
    11 months ago
    $100
  15. Parthasarathi Marapareddigari 
    11 months ago
    $250
  16. Subramanyeswara Arekapudi 
    11 months ago
    $500
  17. Siva Soma 
    11 months ago
    $250
  18. Krishna Addala 
    12 months ago
    $100
  19. Krishna Addala 
    12 months ago
    $100
  20. Prem Parajuli 
    12 months ago
    $100
  21. Ajay Gupta 
    12 months ago
    $50
  22. yamini atluri 
    12 months ago
    $250
  23. Prerna Ganjoo 
    12 months ago
    $100
  24. Anonymous 
    1 year ago
    $50
  25. Kiran Bandi 
    1 year ago
    $250
  26. Chandrasekhar Bellamkonda 
    1 year ago
    $1,000
  27. PRASAD POLISETTY 
    1 year ago
    $500
  28. shalini cherala 
    1 year ago
    $250
  29. Anonymous 
    1 year ago
    $200
  30. Nancy Shrestha 
    1 year ago
    $100
  31. Raju saripudi 
    1 year ago
    $50
  32. sruthi saripudi 
    1 year ago
    $200
  33. Srinivas ABBURI 
    1 year ago
    $500
  34. Anonymous 
    1 year ago
    $100
  35. ODAY ALHAFIDH 
    1 year ago
    $50
  36. Subhash Gorrepati 
    1 year ago
    $250
  37. Mariyam Abbasi  
    1 year ago
    $100
  38. Maruthi Rayani 
    1 year ago
    $200
  39. Ramesh Adhikari  
    1 year ago
    $250
  40. Anonymous 
    1 year ago
    $100
  41. Su Aung 
    1 year ago
    $50
  42. Bhaskar Shetty  
    1 year ago
    $25
  43. Anonymous 
    1 year ago
    $1,000
  44. Anonymous 
    1 year ago
    $100
  45. Anonymous 
    1 year ago
    $500
  46. Anonymous 
    1 year ago
    $500
  47. Swaroop Ramaiah 
    1 year ago
    $100
  48. Madhavi Darsi 
    1 year ago
    $1,000
  49. Kanchan Karki 
    1 year ago
    $250
  50. Praveen Datar 
    1 year ago
    $500
  51. Anonymous 
    1 year ago
    $300
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    1 year ago
    $50
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    1 year ago
    $500
  54. Anonymous 
    1 year ago
    $400
  55. Anonymous 
    1 year ago
    $400
  56. Vinay Tak 
    1 year ago
    $250
  57. lakshmi attoti 
    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $500
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    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $50
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    1 year ago
    $100
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    1 year ago
    $250
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    1 year ago
    $250
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    1 year ago
    $500
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    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $500
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    1 year ago
    $500
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    1 year ago
    $30
  72. Kiran Ray 
    1 year ago
    $250
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    1 year ago
    $500
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    1 year ago
    $100
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    1 year ago
    $100
  76. Varun Yadav 
    1 year ago
    $1,000
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    1 year ago
    $50
  78. Shankara N 
    1 year ago
    $50
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    1 year ago
    $500
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    1 year ago
    $250
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    1 year ago
    $350
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    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $50
  86. Jagadeesh Batana 
    1 year ago
    $50
  87. Anonymous 
    1 year ago
    $100
  88. Padmaja Gunjupali  
    1 year ago
    $500
  89. Sudheer Mogilappagari 
    1 year ago
    $100
  90. Vikas Agrawal 
    1 year ago
    $250
  91. Cynthia Ko 
    1 year ago
    $300
  92. Su Myat Paing 
    1 year ago
    $30
  93. Pradeep Chaganti 
    1 year ago
    $500
  94. Steven Sherman 
    1 year ago
    $200
  95. Aye Nwe 
    1 year ago
    $250
  96. Htay Tint 
    1 year ago
    $500
  97. Anonymous 
    1 year ago
    $25
  98. Anonymous 
    1 year ago
    $500
  99. Sandar Win 
    1 year ago
    $100
  100. Sandar Win 
    1 year ago
    $100
  101. Rupesh Khanal 
    1 year ago
    $20
  102. WUT YI HNINN 
    1 year ago
    $500
  103. Bhanu Kosuru 
    1 year ago
    $300
  104. Babita Saaraswat 
    1 year ago
    $500
  105. Sulakshman Madala 
    1 year ago
    $150
  106. Mazin Khalid 
    1 year ago
    $50
  107. Vinod Nookala 
    1 year ago
    $300
  108. Stanka Kankipati 
    1 year ago
    $500
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    1 year ago
    $100
  110. Zaw Win Tun 
    1 year ago
    $100
  111. Anonymous 
    1 year ago
    $250
  112. Madhu Nadimpalli 
    1 year ago
    $500
  113. Varma Kosuri 
    1 year ago
    $50
  114. Antony Lixon 
    1 year ago
    $200
  115. Chiranjeevi Gadiparthi  
    1 year ago
    $275
  116. Yeshwanth Mandava 
    1 year ago
    $50
  117. Abhisekh Sinha Ray 
    1 year ago
    $200
  118. Sanjana Mandava 
    1 year ago
    $100
  119. Tarun Jaiswal 
    1 year ago
    $50
  120. Anonymous 
    1 year ago
    $100
  121. Anonymous 
    1 year ago
    $50
  122. Saroj Sapkota 
    1 year ago
    $50
  123. Binita Kharel Nepal 
    1 year ago
    $100
  124. George Houston 
    1 year ago
    $5
  125. Anonymous 
    1 year ago
    $50
  126. Thein Swe 
    1 year ago
    $100
  127. s v 
    1 year ago
    $200
  128. Anonymous 
    1 year ago
    $7.23
  129. Anonymous 
    1 year ago
    $50
  130. Anonymous 
    1 year ago
    $20
  131. Sivaji Medikonda 
    1 year ago
    $100
  132. Anudeep Bhimani 
    1 year ago
    $50
  133. Anonymous 
    1 year ago
    $50
  134. Sridevi Chennupati 
    1 year ago
    $100
  135. Usha Kurra 
    1 year ago
    $500
  136. Thara Basavaiah 
    1 year ago
    $500
  137. Nalini Kolla 
    1 year ago
    $100
  138. Chadani Ayer 
    1 year ago
    $250
  139. Anonymous 
    1 year ago
    $20
  140. Yeswanth Attoti 
    1 year ago
    $50
  141. Anonymous 
    1 year ago
    $100
  142. Vamsi Kanneganti 
    1 year ago
    $250
  143. Sumra Abbasi 
    1 year ago
    $100
  144. Anonymous 
    1 year ago
    $500
  145. Anonymous 
    1 year ago
    $250
  146. Chandana Attoti 
    1 year ago
    $100
  147. Govardhani Mandava 
    1 year ago
    $100
  148. Anonymous 
    1 year ago
    $50
  149. Vinod Nookala 
    1 year ago
    $50
  150. Gopi Krishna Vadlamudi 
    1 year ago
    $1,000

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