Never Give Up – Fight Rett for a Cure

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We have been overwhelmed by the wonderful generosity and compassion of so many friends and family. We decided to raise our goal to $50,000 so we have an even bigger impact on Himani’s life and the lives of the 350,000 other girls and women with Rett Syndrome.


Himani was diagnosed with Rett Syndrome in May, 2018 just 3 weeks before her 3rd Birthday.  Both of us being doctors like any other parent realized the difficult situation ahead of us, but we refuse to give up hope for Himani. With that in mind, we have decided to do our part in helping to find a cure for Rett Syndrome.

The research is very promising, and with continued progress and sufficient funding, it’s possible that there could be treatments and maybe even a cure for Rett in the near future.  We have become involved with a non-profit organization called "the Rett Syndrome Research Trust (RSRT)”.  Through this campaign we are asking you to join us in supporting RSRT and the search for a cure.  Your donations will lead to a better future for Himani and thousands of other children with Rett Syndrome.

Thank you all.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (150)

  1. Anonymous 
    2 months ago
    $250
  2. Ashna Pokhrel  
    5 months ago
    $50
  3. Divya Salhan 
    6 months ago
    $100
  4. Venuka Kondragunta 
    6 months ago
    $500
  5. Salesforce.org  
    6 months ago
    $1,900
  6. Jhansi Kunam 
    7 months ago
    $2,500
  7. Prodip Paul 
    7 months ago
    $500
  8. chandrasekhar Bellamkonda 
    7 months ago
    $1,400
  9. INTERFAITH MEDICAL CENTER 
    7 months ago
    $2,000
  10. RAVEENDRA CHIGURUPATI 
    7 months ago
    $2,000
  11. Jeff Cheung  
    8 months ago
    $250
  12. Salesforce.org match of Chandrasekhar Ballamkonda 
    8 months ago
    $1,000
  13. Germaine Durant 
    9 months ago
    $100
  14. Rahul Thotakura 
    9 months ago
    $100
  15. Parthasarathi Marapareddigari 
    9 months ago
    $250
  16. Subramanyeswara Arekapudi 
    9 months ago
    $500
  17. Siva Soma 
    9 months ago
    $250
  18. Krishna Addala 
    9 months ago
    $100
  19. Krishna Addala 
    9 months ago
    $100
  20. Prem Parajuli 
    10 months ago
    $100
  21. Ajay Gupta 
    10 months ago
    $50
  22. yamini atluri 
    10 months ago
    $250
  23. Prerna Ganjoo 
    10 months ago
    $100
  24. Anonymous 
    10 months ago
    $50
  25. Kiran Bandi 
    10 months ago
    $250
  26. Chandrasekhar Bellamkonda 
    10 months ago
    $1,000
  27. PRASAD POLISETTY 
    10 months ago
    $500
  28. shalini cherala 
    10 months ago
    $250
  29. Anonymous 
    10 months ago
    $200
  30. Nancy Shrestha 
    10 months ago
    $100
  31. Raju saripudi 
    10 months ago
    $50
  32. sruthi saripudi 
    10 months ago
    $200
  33. Srinivas ABBURI 
    10 months ago
    $500
  34. Anonymous 
    10 months ago
    $100
  35. ODAY ALHAFIDH 
    10 months ago
    $50
  36. Subhash Gorrepati 
    10 months ago
    $250
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    10 months ago
    $100
  38. Maruthi Rayani 
    10 months ago
    $200
  39. Ramesh Adhikari  
    10 months ago
    $250
  40. Anonymous 
    10 months ago
    $100
  41. Su Aung 
    10 months ago
    $50
  42. Bhaskar Shetty  
    10 months ago
    $25
  43. Anonymous 
    10 months ago
    $1,000
  44. Anonymous 
    10 months ago
    $100
  45. Anonymous 
    10 months ago
    $500
  46. Anonymous 
    10 months ago
    $500
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    10 months ago
    $100
  48. Madhavi Darsi 
    10 months ago
    $1,000
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    10 months ago
    $250
  50. Praveen Datar 
    10 months ago
    $500
  51. Anonymous 
    10 months ago
    $300
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    10 months ago
    $50
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    10 months ago
    $500
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    10 months ago
    $400
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    10 months ago
    $400
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    10 months ago
    $250
  57. lakshmi attoti 
    10 months ago
    $100
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    10 months ago
    $100
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    10 months ago
    $500
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    10 months ago
    $100
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    10 months ago
    $100
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    10 months ago
    $50
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    10 months ago
    $100
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    10 months ago
    $250
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    10 months ago
    $250
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    10 months ago
    $500
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    10 months ago
    $100
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    10 months ago
    $100
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    10 months ago
    $500
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    10 months ago
    $500
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    10 months ago
    $30
  72. Kiran Ray 
    10 months ago
    $250
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    10 months ago
    $500
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    10 months ago
    $100
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    10 months ago
    $100
  76. Varun Yadav 
    10 months ago
    $1,000
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    10 months ago
    $50
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    10 months ago
    $50
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    10 months ago
    $500
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    10 months ago
    $250
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    10 months ago
    $350
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    10 months ago
    $100
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    10 months ago
    $100
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    10 months ago
    $100
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    10 months ago
    $50
  86. Jagadeesh Batana 
    10 months ago
    $50
  87. Anonymous 
    10 months ago
    $100
  88. Padmaja Gunjupali  
    10 months ago
    $500
  89. Sudheer Mogilappagari 
    10 months ago
    $100
  90. Vikas Agrawal 
    10 months ago
    $250
  91. Cynthia Ko 
    10 months ago
    $300
  92. Su Myat Paing 
    10 months ago
    $30
  93. Pradeep Chaganti 
    10 months ago
    $500
  94. Steven Sherman 
    10 months ago
    $200
  95. Aye Nwe 
    10 months ago
    $250
  96. Htay Tint 
    10 months ago
    $500
  97. Anonymous 
    10 months ago
    $25
  98. Anonymous 
    10 months ago
    $500
  99. Sandar Win 
    10 months ago
    $100
  100. Sandar Win 
    10 months ago
    $100
  101. Rupesh Khanal 
    10 months ago
    $20
  102. WUT YI HNINN 
    10 months ago
    $500
  103. Bhanu Kosuru 
    10 months ago
    $300
  104. Babita Saaraswat 
    10 months ago
    $500
  105. Sulakshman Madala 
    10 months ago
    $150
  106. Mazin Khalid 
    10 months ago
    $50
  107. Vinod Nookala 
    10 months ago
    $300
  108. Stanka Kankipati 
    10 months ago
    $500
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    10 months ago
    $100
  110. Zaw Win Tun 
    10 months ago
    $100
  111. Anonymous 
    10 months ago
    $250
  112. Madhu Nadimpalli 
    10 months ago
    $500
  113. Varma Kosuri 
    10 months ago
    $50
  114. Antony Lixon 
    10 months ago
    $200
  115. Chiranjeevi Gadiparthi  
    10 months ago
    $275
  116. Yeshwanth Mandava 
    10 months ago
    $50
  117. Abhisekh Sinha Ray 
    10 months ago
    $200
  118. Sanjana Mandava 
    10 months ago
    $100
  119. Tarun Jaiswal 
    10 months ago
    $50
  120. Anonymous 
    10 months ago
    $100
  121. Anonymous 
    10 months ago
    $50
  122. Saroj Sapkota 
    10 months ago
    $50
  123. Binita Kharel Nepal 
    10 months ago
    $100
  124. George Houston 
    10 months ago
    $5
  125. Anonymous 
    10 months ago
    $50
  126. Thein Swe 
    10 months ago
    $100
  127. s v 
    10 months ago
    $200
  128. Anonymous 
    10 months ago
    $7.23
  129. Anonymous 
    10 months ago
    $50
  130. Anonymous 
    10 months ago
    $20
  131. Sivaji Medikonda 
    10 months ago
    $100
  132. Anudeep Bhimani 
    10 months ago
    $50
  133. Anonymous 
    10 months ago
    $50
  134. Sridevi Chennupati 
    10 months ago
    $100
  135. Usha Kurra 
    10 months ago
    $500
  136. Thara Basavaiah 
    10 months ago
    $500
  137. Nalini Kolla 
    10 months ago
    $100
  138. Chadani Ayer 
    10 months ago
    $250
  139. Anonymous 
    10 months ago
    $20
  140. Yeswanth Attoti 
    10 months ago
    $50
  141. Anonymous 
    10 months ago
    $100
  142. Vamsi Kanneganti 
    10 months ago
    $250
  143. Sumra Abbasi 
    10 months ago
    $100
  144. Anonymous 
    10 months ago
    $500
  145. Anonymous 
    10 months ago
    $250
  146. Chandana Attoti 
    10 months ago
    $100
  147. Govardhani Mandava 
    10 months ago
    $100
  148. Anonymous 
    10 months ago
    $50
  149. Vinod Nookala 
    10 months ago
    $50
  150. Gopi Krishna Vadlamudi 
    10 months ago
    $1,000

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