Never Give Up – Fight Rett for a Cure

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We have been overwhelmed by the wonderful generosity and compassion of so many friends and family. We decided to raise our goal to $50,000 so we have an even bigger impact on Himani’s life and the lives of the 350,000 other girls and women with Rett Syndrome.


Himani was diagnosed with Rett Syndrome in May, 2018 just 3 weeks before her 3rd Birthday.  Both of us being doctors like any other parent realized the difficult situation ahead of us, but we refuse to give up hope for Himani. With that in mind, we have decided to do our part in helping to find a cure for Rett Syndrome.

The research is very promising, and with continued progress and sufficient funding, it’s possible that there could be treatments and maybe even a cure for Rett in the near future.  We have become involved with a non-profit organization called "the Rett Syndrome Research Trust (RSRT)”.  Through this campaign we are asking you to join us in supporting RSRT and the search for a cure.  Your donations will lead to a better future for Himani and thousands of other children with Rett Syndrome.

Thank you all.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (149)

  1. Ashna Pokhrel  
    2 months ago
    $50
  2. Divya Salhan 
    2 months ago
    $100
  3. Venuka Kondragunta 
    2 months ago
    $500
  4. Salesforce.org  
    3 months ago
    $1,900
  5. Jhansi Kunam 
    3 months ago
    $2,500
  6. Prodip Paul 
    3 months ago
    $500
  7. chandrasekhar Bellamkonda 
    3 months ago
    $1,400
  8. INTERFAITH MEDICAL CENTER 
    3 months ago
    $2,000
  9. RAVEENDRA CHIGURUPATI 
    3 months ago
    $2,000
  10. Jeff Cheung  
    4 months ago
    $250
  11. Salesforce.org match of Chandrasekhar Ballamkonda 
    5 months ago
    $1,000
  12. Germaine Durant 
    5 months ago
    $100
  13. Rahul Thotakura 
    5 months ago
    $100
  14. Parthasarathi Marapareddigari 
    5 months ago
    $250
  15. Subramanyeswara Arekapudi 
    5 months ago
    $500
  16. Siva Soma 
    5 months ago
    $250
  17. Krishna Addala 
    6 months ago
    $100
  18. Krishna Addala 
    6 months ago
    $100
  19. Prem Parajuli 
    6 months ago
    $100
  20. Ajay Gupta 
    6 months ago
    $50
  21. yamini atluri 
    6 months ago
    $250
  22. Prerna Ganjoo 
    6 months ago
    $100
  23. Anonymous 
    6 months ago
    $50
  24. Kiran Bandi 
    6 months ago
    $250
  25. Chandrasekhar Bellamkonda 
    6 months ago
    $1,000
  26. PRASAD POLISETTY 
    6 months ago
    $500
  27. shalini cherala 
    6 months ago
    $250
  28. Anonymous 
    6 months ago
    $200
  29. Nancy Shrestha 
    6 months ago
    $100
  30. Raju saripudi 
    6 months ago
    $50
  31. sruthi saripudi 
    6 months ago
    $200
  32. Srinivas ABBURI 
    6 months ago
    $500
  33. Anonymous 
    6 months ago
    $100
  34. ODAY ALHAFIDH 
    6 months ago
    $50
  35. Subhash Gorrepati 
    6 months ago
    $250
  36. Mariyam Abbasi  
    6 months ago
    $100
  37. Maruthi Rayani 
    6 months ago
    $200
  38. Ramesh Adhikari  
    6 months ago
    $250
  39. Anonymous 
    6 months ago
    $100
  40. Su Aung 
    6 months ago
    $50
  41. Bhaskar Shetty  
    6 months ago
    $25
  42. Anonymous 
    6 months ago
    $1,000
  43. Anonymous 
    6 months ago
    $100
  44. Anonymous 
    6 months ago
    $500
  45. Anonymous 
    6 months ago
    $500
  46. Swaroop Ramaiah 
    6 months ago
    $100
  47. Madhavi Darsi 
    6 months ago
    $1,000
  48. Kanchan Karki 
    6 months ago
    $250
  49. Praveen Datar 
    6 months ago
    $500
  50. Anonymous 
    6 months ago
    $300
  51. Geetha Dronachalam 
    6 months ago
    $50
  52. Sujay Inampudi  
    6 months ago
    $500
  53. Anonymous 
    6 months ago
    $400
  54. Anonymous 
    6 months ago
    $400
  55. Vinay Tak 
    6 months ago
    $250
  56. lakshmi attoti 
    6 months ago
    $100
  57. Tigran Gevorgyan 
    6 months ago
    $100
  58. Rana Singh  
    6 months ago
    $500
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    6 months ago
    $100
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    6 months ago
    $100
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    6 months ago
    $50
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    6 months ago
    $100
  63. Anonymous 
    6 months ago
    $250
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    6 months ago
    $250
  65. Ranjith Kamity 
    6 months ago
    $500
  66. Anonymous 
    6 months ago
    $100
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    6 months ago
    $100
  68. Gopichand Pendurti 
    6 months ago
    $500
  69. Bhaskar reddy Madhira 
    6 months ago
    $500
  70. Saveena Manhas 
    6 months ago
    $30
  71. Kiran Ray 
    6 months ago
    $250
  72. Anil Reddivari 
    6 months ago
    $500
  73. Bilal Shahzad A Khan 
    6 months ago
    $100
  74. Abduljabbar Altekreeti 
    6 months ago
    $100
  75. Varun Yadav 
    6 months ago
    $1,000
  76. Neelima Patibandla 
    6 months ago
    $50
  77. Shankara N 
    6 months ago
    $50
  78. Srikant Nannapaneni 
    6 months ago
    $500
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    6 months ago
    $250
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    6 months ago
    $350
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    6 months ago
    $100
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    6 months ago
    $100
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    6 months ago
    $100
  84. Jagadeesh Batana 
    6 months ago
    $50
  85. Jagadeesh Batana 
    6 months ago
    $50
  86. Anonymous 
    6 months ago
    $100
  87. Padmaja Gunjupali  
    6 months ago
    $500
  88. Sudheer Mogilappagari 
    6 months ago
    $100
  89. Vikas Agrawal 
    6 months ago
    $250
  90. Cynthia Ko 
    6 months ago
    $300
  91. Su Myat Paing 
    6 months ago
    $30
  92. Pradeep Chaganti 
    6 months ago
    $500
  93. Steven Sherman 
    6 months ago
    $200
  94. Aye Nwe 
    6 months ago
    $250
  95. Htay Tint 
    6 months ago
    $500
  96. Anonymous 
    6 months ago
    $25
  97. Anonymous 
    6 months ago
    $500
  98. Sandar Win 
    6 months ago
    $100
  99. Sandar Win 
    6 months ago
    $100
  100. Rupesh Khanal 
    6 months ago
    $20
  101. WUT YI HNINN 
    6 months ago
    $500
  102. Bhanu Kosuru 
    6 months ago
    $300
  103. Babita Saaraswat 
    6 months ago
    $500
  104. Sulakshman Madala 
    6 months ago
    $150
  105. Mazin Khalid 
    6 months ago
    $50
  106. Vinod Nookala 
    6 months ago
    $300
  107. Stanka Kankipati 
    6 months ago
    $500
  108. n meka 
    6 months ago
    $100
  109. Zaw Win Tun 
    6 months ago
    $100
  110. Anonymous 
    6 months ago
    $250
  111. Madhu Nadimpalli 
    6 months ago
    $500
  112. Varma Kosuri 
    6 months ago
    $50
  113. Antony Lixon 
    6 months ago
    $200
  114. Chiranjeevi Gadiparthi  
    6 months ago
    $275
  115. Yeshwanth Mandava 
    6 months ago
    $50
  116. Abhisekh Sinha Ray 
    6 months ago
    $200
  117. Sanjana Mandava 
    6 months ago
    $100
  118. Tarun Jaiswal 
    6 months ago
    $50
  119. Anonymous 
    6 months ago
    $100
  120. Anonymous 
    6 months ago
    $50
  121. Saroj Sapkota 
    6 months ago
    $50
  122. Binita Kharel Nepal 
    6 months ago
    $100
  123. George Houston 
    6 months ago
    $5
  124. Anonymous 
    6 months ago
    $50
  125. Thein Swe 
    6 months ago
    $100
  126. s v 
    6 months ago
    $200
  127. Anonymous 
    6 months ago
    $7.23
  128. Anonymous 
    6 months ago
    $50
  129. Anonymous 
    6 months ago
    $20
  130. Sivaji Medikonda 
    6 months ago
    $100
  131. Anudeep Bhimani 
    6 months ago
    $50
  132. Anonymous 
    6 months ago
    $50
  133. Sridevi Chennupati 
    6 months ago
    $100
  134. Usha Kurra 
    6 months ago
    $500
  135. Thara Basavaiah 
    6 months ago
    $500
  136. Nalini Kolla 
    6 months ago
    $100
  137. Chadani Ayer 
    6 months ago
    $250
  138. Anonymous 
    6 months ago
    $20
  139. Yeswanth Attoti 
    6 months ago
    $50
  140. Anonymous 
    6 months ago
    $100
  141. Vamsi Kanneganti 
    6 months ago
    $250
  142. Sumra Abbasi 
    6 months ago
    $100
  143. Anonymous 
    6 months ago
    $500
  144. Anonymous 
    6 months ago
    $250
  145. Chandana Attoti 
    6 months ago
    $100
  146. Govardhani Mandava 
    6 months ago
    $100
  147. Anonymous 
    6 months ago
    $50
  148. Vinod Nookala 
    6 months ago
    $50
  149. Gopi Krishna Vadlamudi 
    6 months ago
    $1,000

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