Natalie’s Never Giving Up!

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Thank you for visiting our fundraising page to help fight Rett Syndrome!

Our Natalie is our whole world, to put it mildly. We want to do our part to fight alongside Natalie as she battles this terrible syndrome. As she works tirelessly to regain skills she has lost or new skills that she continues to amaze us with, we will work toward the day that a cure is found. A day when she can wake up and not have to fight.


Because, for our sweet girl, every day is a battle. She is our warrior. She is the strongest person we know. Although she can't walk on her own, she works every day to get stronger and to control her steps. We can't wait for her to experience the freedom to choose where she wants to go - and just GO! We can see her frustration, how much she wants her independence, and it breaks our hearts.


Although she can't speak, we know she has so much to share. She constantly babbles, chatters and throws in the occasional yell. When she is able to repeat a word she's just heard, the joy on her face is electrifying. She is learning to use her eyegaze device for communication, and we are so excited that she'll be able to communicate with us. But the real dream is to hear our sweet girl tell us, in her own, unique voice, exactly what is on her mind.


Although Natalie's hands don't always do what she wants or needs, she pushes herself to use them purposefully. She loves pictures and art, and we look forward to the day that she will be able to hold a crayon or a paintbrush and create her own.


But Rett does not define Natalie. It is just a part of her amazing being.


She loves (LOVES) music - her favorite songs, "Can't Stop the Feeling," “Faith” from Sing and the entire Moana soundtrack can turn even the most dire moment into a dance party.


She loves her dogs, Alice and Rory, and will reach out to touch them - giggling as they stick their cold, wet noses in her face.


She loves the outdoors, whether it's a walk in her wagon, a ride in her trailer (pulled behind mom's bike), a canoe or boat ride, or a hike - she's (literally) a happy camper. She’s even taken a stab at skiing, and loved that, too!


She loves the beach, and recently stood, independently, for the first time ever while enjoying the sand between her toes. Her biggest smiles to date were captured while visiting her family in North Carolina - watching the waves in the ocean, letting them wash over her feet and bury her toes in soft sand.


And speaking of family, Natalie sure loves hers. She lights up when she sees them, gives them the sweetest hugs that tell us, when she can't, how much she loves them. We are so lucky to have the family we have. They have shown such amazing support as we come to terms with Natalie's diagnosis. We would be lost without them.


And last - Natalie loves Flamingos! Her trusty sidekick, Mingo, is almost always within arm's reach - day or night - whether she's at therapy, school, a doctor's appointment, or just lounging in the hammock - Mingo is always there.


Natalie is never giving up, and neither are we. We hope that you will consider joining us in our fight to Reverse Rett.


Molly & Adam Fleming


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (266)

  1. mary curran 
    2 weeks ago
    $100
  2. mary curran 
    2 weeks ago
    $200
  3. Keith and Sue Nason 
    3 weeks ago
    $500
  4. Molly & Adam Fleming 
    3 weeks ago
    $1,075
  5. Hannah Charter 
    3 weeks ago
    $100
  6. CarMax Foundation  
    4 weeks ago
    $500
  7. Tyler Izzard  
    1 month ago
    $10
  8. Patty Johnson  
    1 month ago
    $100
  9. James Schellenger 
    1 month ago
    $1,000
  10. Gerry & Carolyn Urban 
    1 month ago
    $100
  11. Constance Lang 
    1 month ago
    $50
  12. Melissa Sullivan  
    2 months ago
    $100
  13. Anonymous 
    2 months ago
    $250
  14. Kathy Jordan 
    2 months ago
    $50
  15. mary curran 
    2 months ago
    $100
  16. Luke Fleming 
    2 months ago
    $250
  17. Christina Fleming 
    2 months ago
    $250
  18. Carolyn Pettit 
    2 months ago
    $50
  19. Megan Steahly 
    2 months ago
    $40
  20. Tony Brown 
    2 months ago
    $250
  21. Two Labs Charitable Fund 
    2 months ago
    $1,000
  22. Kathy Danec 
    2 months ago
    $100
  23. Molly & Adam Fleming 
    2 months ago
    $100
  24. Alex Keane 
    2 months ago
    $50
  25. Kimberly Stoltz 
    3 months ago
    $1,000
  26. Susan Tillman 
    3 months ago
    $40
  27. Rachel Warren 
    3 months ago
    $25
  28. Stephanie Erickson 
    3 months ago
    $25
  29. Emily LaMonica 
    3 months ago
    $50
  30. Virginis McCargish 
    3 months ago
    $20
  31. The Faloona Family 
    3 months ago
    $250
  32. Joan Mack 
    3 months ago
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  34. Hannah Schaap 
    3 months ago
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    3 months ago
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    3 months ago
    $100
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    3 months ago
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    3 months ago
    $20
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    3 months ago
    $30
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    3 months ago
    $50
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    3 months ago
    $50
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    3 months ago
    $50
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    3 months ago
    $20
  45. Stephanie Erickson 
    3 months ago
    $25
  46. Lindsey Allen 
    3 months ago
    $5
  47. Lindsey Allen 
    3 months ago
    $15
  48. Ki Griffo 
    4 months ago
    $30
  49. Sue & Keith Nason 
    4 months ago
    $110
  50. Jaime & Andrew Mocca 
    4 months ago
    $15
  51. Karen Fleming 
    4 months ago
    $50
  52. Robert Mowery 
    4 months ago
    $25
  53. Emma Vander Stoep  
    4 months ago
    $200
  54. Meredith Brink 
    5 months ago
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  55. Jess Izzard 
    5 months ago
    $105
  56. Dana Underwood 
    5 months ago
    $50
  57. Jess Izzard 
    5 months ago
    $130
  58. Let's Flamingle for a Cure! 
    5 months ago
    $7,247.35
  59. Jess Izzard 
    5 months ago
    $225
  60. Leticia Bombardier 
    5 months ago
    $100
  61. Krista Pannell 
    6 months ago
    $25
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    6 months ago
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  63. Cody Balch 
    6 months ago
    $250
  64. Jess Izzard  
    6 months ago
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  65. Karen Fleming 
    6 months ago
    $187
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    6 months ago
    $200
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    6 months ago
    $200
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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  86. Studio J LLC 
    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
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    6 months ago
    $40
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    7 months ago
    $100
  96. Keith and Sue Nason 
    7 months ago
    $55
  97. Elisabeth Schuster 
    8 months ago
    $100
  98. Molly Fleming 
    8 months ago
    $1,200
  99. Shannon Dryer 
    8 months ago
    $250
  100. Heather Kern 
    8 months ago
    $50
  101. Loretta Rolle 
    8 months ago
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    8 months ago
    $20
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    9 months ago
    $50
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    9 months ago
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    9 months ago
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    9 months ago
    $155
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    9 months ago
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    9 months ago
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    9 months ago
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    9 months ago
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    10 months ago
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    10 months ago
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  113. Dru Collins 
    10 months ago
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  114. Keith and Sue Nason 
    10 months ago
    $500
  115. Kimberly Stoltz 
    10 months ago
    $250
  116. Karen Fleming 
    11 months ago
    $50
  117. Juan Navas 
    11 months ago
    $20
  118. Marcia Gomez Fiore 
    11 months ago
    $50
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    11 months ago
    $25
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    11 months ago
    $300
  121. brooke russ 
    12 months ago
    $40
  122. Anonymous 
    12 months ago
    $50
  123. Dianna Hischemiller  
    12 months ago
    $55
  124. Jessalyn Mayer 
    12 months ago
    $15
  125. Kimberly Stoltz 
    12 months ago
    $250
  126. Patrick Uehlein 
    12 months ago
    $50
  127. Mark Steahly 
    12 months ago
    $25
  128. Jamie Paskvan 
    12 months ago
    $50
  129. Kimberly Stoltz 
    1 year ago
    $250
  130. Ashley Elig 
    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
    $50
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  135. Amy Hollingsworth 
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  137. Lori Disbennett 
    1 year ago
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    1 year ago
    $20
  139. Charles Flynn 
    1 year ago
    $100
  140. Mama Tribe Robenstine 
    1 year ago
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  141. Perl & Harry Brown 
    1 year ago
    $500
  142. Kelley Engelbrecht 
    1 year ago
    $50
  143. Karen Fleming 
    1 year ago
    $100
  144. Sue Nason 
    1 year ago
    $600
  145. Sallie & Rusty Denner 
    1 year ago
    $500
  146. Adam & Molly Fleming 
    1 year ago
    $1,780
  147. Stephanie Erickson 
    1 year ago
    $50
  148. Jeanette Wimmers  
    1 year ago
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    1 year ago
    $30
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    1 year ago
    $45
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    1 year ago
    $30
  152. Anonymous 
    1 year ago
    $100
  153. Lisa Burns  
    1 year ago
    $25
  154. Ryan Eskridge  
    1 year ago
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  155. Wendy Harris 
    1 year ago
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    1 year ago
    $50
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    1 year ago
    $100
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    1 year ago
    $50
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    1 year ago
    $18
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    1 year ago
    $100
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    1 year ago
    $50
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    1 year ago
    $50
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    1 year ago
    $50
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    1 year ago
    $250
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    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $100
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    1 year ago
    $1,030
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    1 year ago
    $50
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
    $1,000
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
    $250
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
    $25
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    1 year ago
    $500
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    1 year ago
    $100
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    1 year ago
    $1,025
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    1 year ago
    $25
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    1 year ago
    $1,000
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    1 year ago
    $100
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    1 year ago
    $100
  198. Kimberly Stoltz 
    1 year ago
    $500
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    1 year ago
    $50
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    1 year ago
    $500
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    1 year ago
    $50
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    1 year ago
    $250
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    1 year ago
    $100
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    1 year ago
    $200
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    1 year ago
    $50
  206. Keith Nason 
    1 year ago
    $1,500
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    1 year ago
    $50
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    1 year ago
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    1 year ago
    $100
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    1 year ago
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    1 year ago
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    1 year ago
    $10
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    1 year ago
    $25
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    1 year ago
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    1 year ago
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    1 year ago
    $200
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    1 year ago
    $100
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    1 year ago
    $50
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    1 year ago
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    1 year ago
    $50
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    1 year ago
    $200
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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  237. Jenny Foti 
    1 year ago
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  238. Elisabeth Schuster 
    1 year ago
    $50
  239. Erica Butcher 
    1 year ago
    $25
  240. Travis Nelson 
    1 year ago
    $100
  241. Seth Schwed 
    1 year ago
    $50
  242. Hannah Charter 
    1 year ago
    $100
  243. Ty Calkins 
    1 year ago
    $150
  244. Whitney Ostavitz  
    1 year ago
    $25
  245. Emily Burton (Schellin) 
    1 year ago
    $100
  246. Susan Truitt  
    1 year ago
    $250
  247. Anonymous 
    1 year ago
    $25
  248. Kristin Tobin 
    1 year ago
    $40
  249. Lennon Schnabel 
    1 year ago
    $50
  250. Jenny Lin 
    1 year ago
    $100
  251. Max Elsass 
    1 year ago
    $50
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    1 year ago
    $250
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    1 year ago
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    1 year ago
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  255. Sarah Kuhnell 
    1 year ago
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  256. Connie Burton 
    1 year ago
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  257. Molly and Adam Fleming 
    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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  261. Anonymous 
    1 year ago
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  262. Karen Fleming 
    1 year ago
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  263. Annie Bingman 
    1 year ago
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  264. Karen Messaros-Langub 
    1 year ago
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  265. Kimberly Stoltz 
    1 year ago
    $500
  266. John Patterson  
    1 year ago
    $50

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