Magnolia’s Hope

  • Description
  • FAQ
  • Comments
  • Supporters

On December 17th, 2013, our daughter Magnolia, was diagnosed with Rett Syndrome. She was 3 years old when she was diagnosed. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.


Rett syndrome leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities.


We are certain that a cure will happen in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett.


Please. Join this fight.


Thanks.



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


Supporters (243)

  1. JASON ORLOW 
    2 weeks ago
    $200
  2. Kaylen Nelson 
    2 weeks ago
    $75
  3. Anonymous 
    1 month ago
    $75
  4. Anonymous 
    1 month ago
    $32
  5. Minjia Xu 
    2 months ago
    $25
  6. Phyllis & Philip Horelick 
    2 months ago
    $100
  7. Ronnie & Herbert Price 
    2 months ago
    $50
  8. Paula & David Rosenblum 
    2 months ago
    $25
  9. Audrey & Martin Dash 
    2 months ago
    $100
  10. Francine & Bob Fish 
    2 months ago
    $36
  11. Herbert & Judy Fried 
    3 months ago
    $50
  12. Majie Takas 
    3 months ago
    $100
  13. Anonymous 
    3 months ago
    $25
  14. Marsha Matthews 
    3 months ago
    $25
  15. Anonymous 
    3 months ago
    $50
  16. Julia Casper 
    3 months ago
    $300
  17. iona Budd 
    4 months ago
    $100
  18. Anonymous 
    4 months ago
    $1,500
  19. Yen Ha 
    4 months ago
    $136
  20. Anonymous 
    4 months ago
    $250
  21. Shannon Murphy 
    5 months ago
    $25
  22. Dani Pettin 
    5 months ago
    $50
  23. Anonymous 
    5 months ago
    $71
  24. Anonymous 
    5 months ago
    $71
  25. Anonymous 
    5 months ago
    $78
  26. Anonymous 
    6 months ago
    $71
  27. Anonymous 
    6 months ago
    $71
  28. Mary Ellen Davis 
    6 months ago
    $50
  29. Anonymous 
    6 months ago
    $71
  30. Anonymous 
    6 months ago
    $1,000
  31. Anonymous 
    6 months ago
    $48
  32. margie maroney 
    6 months ago
    $100
  33. Anonymous 
    6 months ago
    $72
  34. Gabrielle Birkner 
    7 months ago
    $100
  35. Anonymous 
    7 months ago
    $10
  36. Christopher Woltering 
    7 months ago
    $50
  37. Adam Finberg 
    7 months ago
    $25
  38. Anonymous 
    7 months ago
    $71
  39. Anonymous 
    7 months ago
    $72
  40. Jodi Horowitz 
    7 months ago
    $100
  41. Anthony Eccher 
    7 months ago
    $100
  42. Alicyn Packard 
    7 months ago
    $100
  43. Lauren Flans 
    7 months ago
    $18
  44. Krista Yu 
    7 months ago
    $100
  45. Marc Tesler  
    7 months ago
    $1,000
  46. Steve Tesler 
    7 months ago
    $100
  47. Susan Shaw 
    7 months ago
    $25
  48. Jordan Press 
    7 months ago
    $118
  49. Gilda Press 
    8 months ago
    $50
  50. Carrie Menachem  
    8 months ago
    $25
  51. Prerna Chawla 
    8 months ago
    $10
  52. Paul Caplan-Bennett 
    8 months ago
    $100
  53. Madeleine Diamond 
    8 months ago
    $100
  54. Shannon Murphy 
    8 months ago
    $50
  55. Anonymous 
    9 months ago
    $70
  56. Jiyeun Rha 
    9 months ago
    $50
  57. Todd Schirmer 
    11 months ago
    $100
  58. Elsie Wotton 
    11 months ago
    $66
  59. Betty & Leonard Selsky 
    12 months ago
    $300
  60. Stacey Futterman Tauriello 
    1 year ago
    $100
  61. AXA Foundation 
    1 year ago
    $925
  62. Ronnie & Herbert Price 
    1 year ago
    $100
  63. Megan & Matthew Neel 
    1 year ago
    $700
  64. Gene Rintels 
    1 year ago
    $0
  65. Merril Tesler 
    1 year ago
    $925
  66. Stephanie Trell 
    1 year ago
    $25
  67. Geneva Johnson 
    1 year ago
    $25
  68. Michael Newman 
    1 year ago
    $1,000
  69. Jennifer Tribulski 
    1 year ago
    $50
  70. Jordan Press 
    1 year ago
    $222
  71. Anonymous 
    1 year ago
    $50
  72. Tonya Joergensen  
    1 year ago
    $50
  73. Betty Morey 
    1 year ago
    $100
  74. Lynne Winters 
    1 year ago
    $100
  75. Ronni Seifert-Allen 
    1 year ago
    $50
  76. Pia Tung 
    1 year ago
    $25
  77. Anna Kraske 
    1 year ago
    $25
  78. Noelle Saldana 
    1 year ago
    $100
  79. Gilda Press 
    1 year ago
    $100
  80. Ellen Bromley 
    1 year ago
    $100
  81. Richard Tesler 
    1 year ago
    $125
  82. Todd Schirmer 
    1 year ago
    $50
  83. jeffrey lieberman 
    1 year ago
    $75
  84. Leo Tesler 
    1 year ago
    $50
  85. Zeke Tesler 
    1 year ago
    $50
  86. Katherine Page 
    1 year ago
    $100
  87. Marc Silverman 
    1 year ago
    $250
  88. Lanha Hong 
    1 year ago
    $25
  89. Anonymous 
    1 year ago
    $200
  90. Lynne Winters 
    1 year ago
    $100
  91. Jon Seiler 
    1 year ago
    $36
  92. Madeline & Jeffrey Diamond 
    1 year ago
    $150
  93. stephen ozen 
    1 year ago
    $180
  94. Gabriel Schwartz 
    1 year ago
    $1,000
  95. Avrielle Peltz 
    1 year ago
    $50
  96. Victor Mueller, Jr. 
    1 year ago
    $25
  97. John and Eileen Boland 
    1 year ago
    $100
  98. The Mallette Family 
    1 year ago
    $100
  99. Randie Specter 
    1 year ago
    $100
  100. Matthew Neel 
    2 years ago
    $200
  101. Heather Sullivan 
    2 years ago
    $500
  102. Ernie & Betty klatt 
    2 years ago
    $1,000
  103. Emily Rittberg 
    2 years ago
    $250
  104. Donald Merten 
    2 years ago
    $500
  105. Cheryl L DWYER 
    2 years ago
    $100
  106. Sara Polon 
    2 years ago
    $100
  107. Mitchell Federer 
    2 years ago
    $50
  108. Brett Kreisman 
    2 years ago
    $100
  109. Jeff Lieberman 
    2 years ago
    $100
  110. Dan Levy 
    2 years ago
    $500
  111. Margaret Wager  
    2 years ago
    $50
  112. Lauren Zalis  
    2 years ago
    $36
  113. Adam Bibi 
    2 years ago
    $100
  114. Emily Margolis  
    2 years ago
    $100
  115. Michael Melzer 
    2 years ago
    $100
  116. Dana Harnett 
    2 years ago
    $500
  117. Gerry Malig 
    2 years ago
    $10
  118. Mari Wilson 
    2 years ago
    $100
  119. Sean Nelson 
    2 years ago
    $1,000
  120. Susan and Mark Schmidek 
    2 years ago
    $500
  121. Ernestine Starnes 
    2 years ago
    $1,000
  122. Gilda Press 
    2 years ago
    $200
  123. AIG Corporate Match 
    2 years ago
    $4,000
  124. Anonymous 
    2 years ago
    $50
  125. Coastal Tool & Supply Corp.  
    2 years ago
    $250
  126. Rachel Levy 
    2 years ago
    $25
  127. David Bookman 
    2 years ago
    $100
  128. Leo Tesler 
    2 years ago
    $2,000
  129. Kat Page 
    2 years ago
    $50
  130. Danielle Kaplowitz 
    2 years ago
    $50
  131. Veke Tesler Nate Schmelkin 
    2 years ago
    $171
  132. Marc Tesler  
    2 years ago
    $100
  133. Erik Weiner 
    2 years ago
    $25
  134. Lori & Ken Bloomberg 
    2 years ago
    $20
  135. Christina Othonos 
    2 years ago
    $20
  136. Max Strongin 
    2 years ago
    $100
  137. James Kiernan 
    2 years ago
    $50
  138. Nancy Rabinowitz 
    2 years ago
    $50
  139. Amy Zweiman 
    2 years ago
    $50
  140. Larry Machiz 
    2 years ago
    $250
  141. Ali Kwiat  
    2 years ago
    $100
  142. Jamie Bahar 
    2 years ago
    $50
  143. Norma Rubin 
    2 years ago
    $180
  144. david roter 
    2 years ago
    $100
  145. Kim Molstre 
    2 years ago
    $100
  146. Gilda Press 
    2 years ago
    $100
  147. sarina sanandaji 
    2 years ago
    $40
  148. Julie Kornstein 
    2 years ago
    $100
  149. Lerna Terpanjian 
    2 years ago
    $100
  150. Nina Mishkin 
    2 years ago
    $100
  151. Lindsey Schwimmer 
    2 years ago
    $100
  152. Ellen Bromley  
    2 years ago
    $100
  153. Michael Melzer 
    2 years ago
    $100
  154. nancy klein 
    2 years ago
    $100
  155. Micah Coletti 
    2 years ago
    $100
  156. Steven Tesler 
    2 years ago
    $500
  157. Gabriel Schwartz 
    2 years ago
    $500
  158. Patricia Goldman  
    2 years ago
    $100
  159. Bruce Tenenbaum 
    2 years ago
    $500
  160. Ernestine Starnes 
    2 years ago
    $1,000
  161. Randie Specter 
    2 years ago
    $36
  162. Ryan Jeffers 
    2 years ago
    $2,000
  163. Allison Kiessling 
    2 years ago
    $25
  164. Susan Weinstein 
    2 years ago
    $25
  165. Kathryn Richardson 
    2 years ago
    $500
  166. Anne Orcutt 
    2 years ago
    $20
  167. Shelly Orcutt 
    2 years ago
    $20
  168. Donald Merten 
    2 years ago
    $1,000
  169. Zeke Tesler 
    2 years ago
    $10
  170. Vasilios Aloupis 
    2 years ago
    $50
  171. David Bookman 
    2 years ago
    $100
  172. JAY GUZOWSKI 
    2 years ago
    $100
  173. Anna Caffarelli 
    2 years ago
    $40
  174. Jay Herrick 
    2 years ago
    $200
  175. Ernestine A Starnes 
    2 years ago
    $250
  176. Zal Sarkari 
    2 years ago
    $100
  177. Sheila Carroll 
    2 years ago
    $30
  178. Slava Brin 
    2 years ago
    $100
  179. Todd Schirmer 
    2 years ago
    $100
  180. Susan and Mark Schmidek 
    2 years ago
    $500
  181. Anne Orcutt  
    2 years ago
    $40
  182. Rich Tesler 
    2 years ago
    $40
  183. Rich Tesler 
    2 years ago
    $500
  184. Rich Tesler 
    2 years ago
    $130
  185. Teresa Cramer 
    2 years ago
    $20
  186. Jen Tribulski 
    2 years ago
    $40
  187. jessica rosenblatt 
    2 years ago
    $54
  188. David Bookman 
    2 years ago
    $100
  189. Jonathan Levy 
    2 years ago
    $100
  190. Arleen Schwartz  
    2 years ago
    $100
  191. Madeleine Diamond 
    2 years ago
    $100
  192. The Tauriello, Press and Futterman Family and 5 Point Physical Therapy 
    2 years ago
    $3,000
  193. BOB J OCONNELL 
    2 years ago
    $200
  194. Phyllis Horelick 
    2 years ago
    $100
  195. Barry Winters 
    2 years ago
    $100
  196. Edrian Colina 
    2 years ago
    $
  197. Jen Tribulski 
    2 years ago
    $100
  198. Chris Erwin 
    2 years ago
    $250
  199. sally calavetta 
    2 years ago
    $25
  200. Roslyn Minkoff 
    2 years ago
    $50
  201. Andrew Fitzgerald 
    2 years ago
    $100
  202. Mark Friedlander 
    2 years ago
    $50
  203. Andreas Olavarria 
    2 years ago
    $100
  204. Brad Helmink 
    2 years ago
    $25
  205. Jeff Lieberman 
    2 years ago
    $100
  206. HOlly Anger 
    2 years ago
    $20
  207. susan peyser 
    2 years ago
    $100
  208. Dana Harnett 
    2 years ago
    $500
  209. Erica (Schwartz) Picheny 
    2 years ago
    $100
  210. Robert Polsky 
    2 years ago
    $100
  211. Mandy Wolfson 
    2 years ago
    $100
  212. Michael Melzer 
    2 years ago
    $100
  213. Deb Leipzig 
    2 years ago
    $36
  214. Emily Rittberg  
    2 years ago
    $250
  215. Jamie Garfinkel 
    2 years ago
    $100
  216. Megan Buell 
    2 years ago
    $500
  217. Catherine Clemmens 
    2 years ago
    $50
  218. Jennifer Wink Hays 
    2 years ago
    $250
  219. Marsha Michel 
    2 years ago
    $100
  220. Catherine Starnes  
    2 years ago
    $500
  221. Ernestine Starnes 
    2 years ago
    $1,000
  222. Laura Lopez 
    2 years ago
    $100
  223. Jennifer Wilson 
    2 years ago
    $15
  224. Mary Ambelang 
    2 years ago
    $500
  225. Angie Gregory 
    2 years ago
    $250
  226. Robyn & Mike Neel 
    2 years ago
    $300
  227. Alexa Knight 
    2 years ago
    $100
  228. Shira Weiss 
    2 years ago
    $150
  229. Kathryn Bell 
    3 years ago
    $250
  230. Ernest Klatt 
    3 years ago
    $500
  231. Giordana Segneri 
    3 years ago
    $50
  232. Mel Rothstein 
    3 years ago
    $500
  233. Rebecca Lew 
    3 years ago
    $250
  234. Rebecca Lew 
    3 years ago
    $100
  235. Linda Zunker 
    3 years ago
    $100
  236. Catalina Mathers-Suter 
    3 years ago
    $25
  237. Brian Canino 
    3 years ago
    $20
  238. Johnny Wilson 
    3 years ago
    $5
  239. Philip Gilpin 
    3 years ago
    $100
  240. Victor Mueller Junior 
    3 years ago
    $100
  241. AJ Tesler 
    3 years ago
    $1,160.28
  242. Ernestine Starnes 
    3 years ago
    $1,000
  243. Edrian Colina 
    3 years ago
    $5

This is a unique website which will require a more modern browser to work!

Please upgrade today!