Magnolia’s Hope

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On December 17th 2013, our daughter Magnolia, was diagnosed with Rett Syndrome. She was 3 years old when she was diagnosed. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.


Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities.

We believe that a cure is very possible in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett.

Please. Join this fight.



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


Supporters (120)

  1. Jay Rittberg 
    3 days ago
    50
  2. Coastal Tool & Supply Corp.  
    2 weeks ago
    250
  3. Rachel Levy 
    2 months ago
    25
  4. David Bookman 
    2 months ago
    100
  5. Leo Tesler 
    2 months ago
    2,000
  6. Kat Page 
    2 months ago
    50
  7. Danielle Kaplowitz 
    2 months ago
    50
  8. Veke Tesler Nate Schmelkin 
    2 months ago
    171
  9. Marc Tesler  
    2 months ago
    100
  10. Erik Weiner 
    2 months ago
    25
  11. Lori & Ken Bloomberg 
    3 months ago
    20
  12. Christina Othonos 
    3 months ago
    20
  13. Max Strongin 
    3 months ago
    100
  14. James Kiernan 
    3 months ago
    50
  15. Nancy Rabinowitz 
    3 months ago
    50
  16. Amy Zweiman 
    3 months ago
    50
  17. Larry Machiz 
    3 months ago
    250
  18. Ali Kwiat  
    3 months ago
    100
  19. Jamie Bahar 
    3 months ago
    50
  20. Norma Rubin 
    3 months ago
    180
  21. david roter 
    3 months ago
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  22. Kim Molstre 
    3 months ago
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  23. Gilda Press 
    3 months ago
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  24. sarina sanandaji 
    3 months ago
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  25. Julie Kornstein 
    3 months ago
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  26. Lerna Terpanjian 
    3 months ago
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  27. Nina Mishkin 
    3 months ago
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  28. Lindsey Schwimmer 
    3 months ago
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  29. Ellen Bromley  
    3 months ago
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  30. Michael Melzer 
    3 months ago
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  31. nancy klein 
    3 months ago
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  32. Micah Coletti 
    4 months ago
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  33. Steven Tesler 
    4 months ago
    500
  34. Gabriel Schwartz 
    4 months ago
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  35. Patricia Goldman  
    4 months ago
    100
  36. Bruce Tenenbaum 
    4 months ago
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  37. Ernestine Starnes 
    4 months ago
    1,000
  38. Randie Specter 
    4 months ago
    36
  39. Ryan Jeffers 
    4 months ago
    2,000
  40. Allison Kiessling 
    4 months ago
    25
  41. Susan Weinstein 
    4 months ago
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  42. Kathryn Richardson 
    4 months ago
    500
  43. Anne Orcutt 
    4 months ago
    20
  44. Shelly Orcutt 
    4 months ago
    20
  45. Donald Merten 
    4 months ago
    1,000
  46. Zeke Tesler 
    4 months ago
    10
  47. Vasilios Aloupis 
    4 months ago
    50
  48. David Bookman 
    4 months ago
    100
  49. JAY GUZOWSKI 
    4 months ago
    100
  50. Anna Caffarelli 
    4 months ago
    40
  51. Jay Herrick 
    4 months ago
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  52. Ernestine A Starnes 
    4 months ago
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  53. Zal Sarkari 
    4 months ago
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  54. Sheila Carroll 
    4 months ago
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  55. Slava Brin 
    4 months ago
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  56. Todd Schirmer 
    4 months ago
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  57. Susan and Mark Schmidek 
    4 months ago
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  58. Anne Orcutt  
    4 months ago
    40
  59. Rich Tesler 
    4 months ago
    40
  60. Rich Tesler 
    4 months ago
    500
  61. Rich Tesler 
    4 months ago
    130
  62. Teresa Cramer 
    4 months ago
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  63. Jen Tribulski 
    4 months ago
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  64. jessica rosenblatt 
    4 months ago
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  65. David Bookman 
    5 months ago
    100
  66. Jonathan Levy 
    5 months ago
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  67. Arleen Schwartz  
    5 months ago
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  68. Madeleine Diamond 
    5 months ago
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  69. The Tauriello, Press and Futterman Family and 5 Point Physical Therapy 
    5 months ago
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  70. BOB J OCONNELL 
    5 months ago
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    5 months ago
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  72. Barry Winters 
    5 months ago
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    5 months ago
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    5 months ago
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  76. sally calavetta 
    6 months ago
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    6 months ago
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  78. Andrew Fitzgerald 
    6 months ago
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    6 months ago
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  80. Andreas Olavarria 
    6 months ago
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  81. Brad Helmink 
    6 months ago
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  82. Jeff Lieberman 
    6 months ago
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  83. HOlly Anger 
    6 months ago
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    6 months ago
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  85. Dana Harnett 
    6 months ago
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  86. Erica (Schwartz) Picheny 
    6 months ago
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  87. Robert Polsky 
    6 months ago
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  88. Mandy Wolfson 
    6 months ago
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  89. Michael Melzer 
    6 months ago
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  90. Deb Leipzig 
    6 months ago
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  91. Emily Rittberg  
    6 months ago
    250
  92. Jamie Garfinkel 
    6 months ago
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  93. Megan Buell 
    6 months ago
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  94. Catherine Clemmens 
    6 months ago
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  95. Jennifer Wink Hays 
    6 months ago
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  96. Marsha Michel 
    6 months ago
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  97. Catherine Starnes  
    6 months ago
    500
  98. Ernestine Starnes 
    6 months ago
    1,000
  99. Laura Lopez 
    6 months ago
    100
  100. Jennifer Wilson 
    6 months ago
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  101. Mary Ambelang 
    6 months ago
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  102. Angie Gregory 
    6 months ago
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  103. Robyn & Mike Neel 
    6 months ago
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  104. Alexa Knight 
    6 months ago
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  105. Shira Weiss 
    6 months ago
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  106. Kathryn Bell 
    6 months ago
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  107. Ernest Klatt 
    6 months ago
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  108. Giordana Segneri 
    7 months ago
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  109. Mel Rothstein 
    7 months ago
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  110. Rebecca Lew 
    7 months ago
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    7 months ago
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  112. Linda Zunker 
    7 months ago
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  113. Catalina Mathers-Suter 
    9 months ago
    25
  114. Brian Canino 
    9 months ago
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  115. Johnny Wilson 
    9 months ago
    5
  116. Philip Gilpin 
    9 months ago
    100
  117. Victor Mueller Junior 
    9 months ago
    100
  118. AJ Tesler 
    9 months ago
    1,160.28
  119. Ernestine Starnes 
    9 months ago
    1,000
  120. Edrian Colina 
    9 months ago
    5

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