Magnolia’s Hope

  • Description
  • FAQ
  • Comments
  • Supporters

On December 17th, 2013, our daughter Magnolia, was diagnosed with Rett Syndrome. She was 3 years old when she was diagnosed. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.


Rett syndrome leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities.


We are certain that a cure will happen in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett.


Please. Join this fight.


Thanks.



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


Supporters (245)

  1. Courtney Lamb 
    2 weeks ago
    $50
  2. Anonymous 
    2 months ago
    $67
  3. JASON ORLOW 
    2 months ago
    $200
  4. Kaylen Nelson 
    2 months ago
    $75
  5. Anonymous 
    3 months ago
    $75
  6. Anonymous 
    3 months ago
    $32
  7. Minjia Xu 
    4 months ago
    $25
  8. Phyllis & Philip Horelick 
    4 months ago
    $100
  9. Ronnie & Herbert Price 
    4 months ago
    $50
  10. Paula & David Rosenblum 
    4 months ago
    $25
  11. Audrey & Martin Dash 
    4 months ago
    $100
  12. Francine & Bob Fish 
    4 months ago
    $36
  13. Herbert & Judy Fried 
    4 months ago
    $50
  14. Majie Takas 
    4 months ago
    $100
  15. Anonymous 
    5 months ago
    $25
  16. Marsha Matthews 
    5 months ago
    $25
  17. Anonymous 
    5 months ago
    $50
  18. Julia Casper 
    5 months ago
    $300
  19. iona Budd 
    5 months ago
    $100
  20. Anonymous 
    5 months ago
    $1,500
  21. Yen Ha 
    6 months ago
    $136
  22. Anonymous 
    6 months ago
    $250
  23. Shannon Murphy 
    7 months ago
    $25
  24. Dani Pettin 
    7 months ago
    $50
  25. Anonymous 
    7 months ago
    $71
  26. Anonymous 
    7 months ago
    $71
  27. Anonymous 
    7 months ago
    $78
  28. Anonymous 
    7 months ago
    $71
  29. Anonymous 
    8 months ago
    $71
  30. Mary Ellen Davis 
    8 months ago
    $50
  31. Anonymous 
    8 months ago
    $71
  32. Anonymous 
    8 months ago
    $1,000
  33. Anonymous 
    8 months ago
    $48
  34. margie maroney 
    8 months ago
    $100
  35. Anonymous 
    8 months ago
    $72
  36. Gabrielle Birkner 
    8 months ago
    $100
  37. Anonymous 
    8 months ago
    $10
  38. Christopher Woltering 
    8 months ago
    $50
  39. Adam Finberg 
    9 months ago
    $25
  40. Anonymous 
    9 months ago
    $71
  41. Anonymous 
    9 months ago
    $72
  42. Jodi Horowitz 
    9 months ago
    $100
  43. Anthony Eccher 
    9 months ago
    $100
  44. Alicyn Packard 
    9 months ago
    $100
  45. Lauren Flans 
    9 months ago
    $18
  46. Krista Yu 
    9 months ago
    $100
  47. Marc Tesler  
    9 months ago
    $1,000
  48. Steve Tesler 
    9 months ago
    $100
  49. Susan Shaw 
    9 months ago
    $25
  50. Jordan Press 
    9 months ago
    $118
  51. Gilda Press 
    9 months ago
    $50
  52. Carrie Menachem  
    9 months ago
    $25
  53. Prerna Chawla 
    9 months ago
    $10
  54. Paul Caplan-Bennett 
    9 months ago
    $100
  55. Madeleine Diamond 
    10 months ago
    $100
  56. Shannon Murphy 
    10 months ago
    $50
  57. Anonymous 
    11 months ago
    $70
  58. Jiyeun Rha 
    11 months ago
    $50
  59. Todd Schirmer 
    1 year ago
    $100
  60. Elsie Wotton 
    1 year ago
    $66
  61. Betty & Leonard Selsky 
    1 year ago
    $300
  62. Stacey Futterman Tauriello 
    1 year ago
    $100
  63. AXA Foundation 
    1 year ago
    $925
  64. Ronnie & Herbert Price 
    1 year ago
    $100
  65. Megan & Matthew Neel 
    1 year ago
    $700
  66. Gene Rintels 
    1 year ago
    $0
  67. Merril Tesler 
    1 year ago
    $925
  68. Stephanie Trell 
    1 year ago
    $25
  69. Geneva Johnson 
    1 year ago
    $25
  70. Michael Newman 
    1 year ago
    $1,000
  71. Jennifer Tribulski 
    1 year ago
    $50
  72. Jordan Press 
    1 year ago
    $222
  73. Anonymous 
    1 year ago
    $50
  74. Tonya Joergensen  
    1 year ago
    $50
  75. Betty Morey 
    1 year ago
    $100
  76. Lynne Winters 
    1 year ago
    $100
  77. Ronni Seifert-Allen 
    1 year ago
    $50
  78. Pia Tung 
    1 year ago
    $25
  79. Anna Kraske 
    1 year ago
    $25
  80. Noelle Saldana 
    1 year ago
    $100
  81. Gilda Press 
    1 year ago
    $100
  82. Ellen Bromley 
    1 year ago
    $100
  83. Richard Tesler 
    1 year ago
    $125
  84. Todd Schirmer 
    1 year ago
    $50
  85. jeffrey lieberman 
    1 year ago
    $75
  86. Leo Tesler 
    1 year ago
    $50
  87. Zeke Tesler 
    1 year ago
    $50
  88. Katherine Page 
    1 year ago
    $100
  89. Marc Silverman 
    1 year ago
    $250
  90. Lanha Hong 
    2 years ago
    $25
  91. Anonymous 
    2 years ago
    $200
  92. Lynne Winters 
    2 years ago
    $100
  93. Jon Seiler 
    2 years ago
    $36
  94. Madeline & Jeffrey Diamond 
    2 years ago
    $150
  95. stephen ozen 
    2 years ago
    $180
  96. Gabriel Schwartz 
    2 years ago
    $1,000
  97. Avrielle Peltz 
    2 years ago
    $50
  98. Victor Mueller, Jr. 
    2 years ago
    $25
  99. John and Eileen Boland 
    2 years ago
    $100
  100. The Mallette Family 
    2 years ago
    $100
  101. Randie Specter 
    2 years ago
    $100
  102. Matthew Neel 
    2 years ago
    $200
  103. Heather Sullivan 
    2 years ago
    $500
  104. Ernie & Betty klatt 
    2 years ago
    $1,000
  105. Emily Rittberg 
    2 years ago
    $250
  106. Donald Merten 
    2 years ago
    $500
  107. Cheryl L DWYER 
    2 years ago
    $100
  108. Sara Polon 
    2 years ago
    $100
  109. Mitchell Federer 
    2 years ago
    $50
  110. Brett Kreisman 
    2 years ago
    $100
  111. Jeff Lieberman 
    2 years ago
    $100
  112. Dan Levy 
    2 years ago
    $500
  113. Margaret Wager  
    2 years ago
    $50
  114. Lauren Zalis  
    2 years ago
    $36
  115. Adam Bibi 
    2 years ago
    $100
  116. Emily Margolis  
    2 years ago
    $100
  117. Michael Melzer 
    2 years ago
    $100
  118. Dana Harnett 
    2 years ago
    $500
  119. Gerry Malig 
    2 years ago
    $10
  120. Mari Wilson 
    2 years ago
    $100
  121. Sean Nelson 
    2 years ago
    $1,000
  122. Susan and Mark Schmidek 
    2 years ago
    $500
  123. Ernestine Starnes 
    2 years ago
    $1,000
  124. Gilda Press 
    2 years ago
    $200
  125. AIG Corporate Match 
    2 years ago
    $4,000
  126. Anonymous 
    2 years ago
    $50
  127. Coastal Tool & Supply Corp.  
    2 years ago
    $250
  128. Rachel Levy 
    2 years ago
    $25
  129. David Bookman 
    2 years ago
    $100
  130. Leo Tesler 
    2 years ago
    $2,000
  131. Kat Page 
    2 years ago
    $50
  132. Danielle Kaplowitz 
    2 years ago
    $50
  133. Veke Tesler Nate Schmelkin 
    2 years ago
    $171
  134. Marc Tesler  
    2 years ago
    $100
  135. Erik Weiner 
    2 years ago
    $25
  136. Lori & Ken Bloomberg 
    2 years ago
    $20
  137. Christina Othonos 
    2 years ago
    $20
  138. Max Strongin 
    2 years ago
    $100
  139. James Kiernan 
    2 years ago
    $50
  140. Nancy Rabinowitz 
    2 years ago
    $50
  141. Amy Zweiman 
    2 years ago
    $50
  142. Larry Machiz 
    2 years ago
    $250
  143. Ali Kwiat  
    2 years ago
    $100
  144. Jamie Bahar 
    2 years ago
    $50
  145. Norma Rubin 
    2 years ago
    $180
  146. david roter 
    2 years ago
    $100
  147. Kim Molstre 
    2 years ago
    $100
  148. Gilda Press 
    2 years ago
    $100
  149. sarina sanandaji 
    2 years ago
    $40
  150. Julie Kornstein 
    2 years ago
    $100
  151. Lerna Terpanjian 
    2 years ago
    $100
  152. Nina Mishkin 
    2 years ago
    $100
  153. Lindsey Schwimmer 
    2 years ago
    $100
  154. Ellen Bromley  
    2 years ago
    $100
  155. Michael Melzer 
    2 years ago
    $100
  156. nancy klein 
    2 years ago
    $100
  157. Micah Coletti 
    2 years ago
    $100
  158. Steven Tesler 
    2 years ago
    $500
  159. Gabriel Schwartz 
    2 years ago
    $500
  160. Patricia Goldman  
    2 years ago
    $100
  161. Bruce Tenenbaum 
    2 years ago
    $500
  162. Ernestine Starnes 
    2 years ago
    $1,000
  163. Randie Specter 
    2 years ago
    $36
  164. Ryan Jeffers 
    2 years ago
    $2,000
  165. Allison Kiessling 
    2 years ago
    $25
  166. Susan Weinstein 
    2 years ago
    $25
  167. Kathryn Richardson 
    2 years ago
    $500
  168. Anne Orcutt 
    2 years ago
    $20
  169. Shelly Orcutt 
    2 years ago
    $20
  170. Donald Merten 
    2 years ago
    $1,000
  171. Zeke Tesler 
    2 years ago
    $10
  172. Vasilios Aloupis 
    2 years ago
    $50
  173. David Bookman 
    2 years ago
    $100
  174. JAY GUZOWSKI 
    2 years ago
    $100
  175. Anna Caffarelli 
    2 years ago
    $40
  176. Jay Herrick 
    2 years ago
    $200
  177. Ernestine A Starnes 
    2 years ago
    $250
  178. Zal Sarkari 
    2 years ago
    $100
  179. Sheila Carroll 
    2 years ago
    $30
  180. Slava Brin 
    2 years ago
    $100
  181. Todd Schirmer 
    3 years ago
    $100
  182. Susan and Mark Schmidek 
    3 years ago
    $500
  183. Anne Orcutt  
    3 years ago
    $40
  184. Rich Tesler 
    3 years ago
    $40
  185. Rich Tesler 
    3 years ago
    $500
  186. Rich Tesler 
    3 years ago
    $130
  187. Teresa Cramer 
    3 years ago
    $20
  188. Jen Tribulski 
    3 years ago
    $40
  189. jessica rosenblatt 
    3 years ago
    $54
  190. David Bookman 
    3 years ago
    $100
  191. Jonathan Levy 
    3 years ago
    $100
  192. Arleen Schwartz  
    3 years ago
    $100
  193. Madeleine Diamond 
    3 years ago
    $100
  194. The Tauriello, Press and Futterman Family and 5 Point Physical Therapy 
    3 years ago
    $3,000
  195. BOB J OCONNELL 
    3 years ago
    $200
  196. Phyllis Horelick 
    3 years ago
    $100
  197. Barry Winters 
    3 years ago
    $100
  198. Edrian Colina 
    3 years ago
    $
  199. Jen Tribulski 
    3 years ago
    $100
  200. Chris Erwin 
    3 years ago
    $250
  201. sally calavetta 
    3 years ago
    $25
  202. Roslyn Minkoff 
    3 years ago
    $50
  203. Andrew Fitzgerald 
    3 years ago
    $100
  204. Mark Friedlander 
    3 years ago
    $50
  205. Andreas Olavarria 
    3 years ago
    $100
  206. Brad Helmink 
    3 years ago
    $25
  207. Jeff Lieberman 
    3 years ago
    $100
  208. HOlly Anger 
    3 years ago
    $20
  209. susan peyser 
    3 years ago
    $100
  210. Dana Harnett 
    3 years ago
    $500
  211. Erica (Schwartz) Picheny 
    3 years ago
    $100
  212. Robert Polsky 
    3 years ago
    $100
  213. Mandy Wolfson 
    3 years ago
    $100
  214. Michael Melzer 
    3 years ago
    $100
  215. Deb Leipzig 
    3 years ago
    $36
  216. Emily Rittberg  
    3 years ago
    $250
  217. Jamie Garfinkel 
    3 years ago
    $100
  218. Megan Buell 
    3 years ago
    $500
  219. Catherine Clemmens 
    3 years ago
    $50
  220. Jennifer Wink Hays 
    3 years ago
    $250
  221. Marsha Michel 
    3 years ago
    $100
  222. Catherine Starnes  
    3 years ago
    $500
  223. Ernestine Starnes 
    3 years ago
    $1,000
  224. Laura Lopez 
    3 years ago
    $100
  225. Jennifer Wilson 
    3 years ago
    $15
  226. Mary Ambelang 
    3 years ago
    $500
  227. Angie Gregory 
    3 years ago
    $250
  228. Robyn & Mike Neel 
    3 years ago
    $300
  229. Alexa Knight 
    3 years ago
    $100
  230. Shira Weiss 
    3 years ago
    $150
  231. Kathryn Bell 
    3 years ago
    $250
  232. Ernest Klatt 
    3 years ago
    $500
  233. Giordana Segneri 
    3 years ago
    $50
  234. Mel Rothstein 
    3 years ago
    $500
  235. Rebecca Lew 
    3 years ago
    $250
  236. Rebecca Lew 
    3 years ago
    $100
  237. Linda Zunker 
    3 years ago
    $100
  238. Catalina Mathers-Suter 
    3 years ago
    $25
  239. Brian Canino 
    3 years ago
    $20
  240. Johnny Wilson 
    3 years ago
    $5
  241. Philip Gilpin 
    3 years ago
    $100
  242. Victor Mueller Junior 
    3 years ago
    $100
  243. AJ Tesler 
    3 years ago
    $1,160.28
  244. Ernestine Starnes 
    3 years ago
    $1,000
  245. Edrian Colina 
    3 years ago
    $5

This is a unique website which will require a more modern browser to work!

Please upgrade today!