Magnolia’s Hope

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On December 17th, 2013, our daughter Magnolia, was diagnosed with Rett Syndrome. She was 3 years old when she was diagnosed. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.


On September 17th, 2017 AJ and Maggie's aide Shelly will run the Malibu Triathlon in an effort to raise money and awareness for Rest Syndrome.


Rett syndrome leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities.


We are certain that a cure will happen in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett.


Please. Join this fight.


Thanks.



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


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  1. Gilda Press 
    3 days ago
    $100
  2. Ellen Bromley 
    1 week ago
    $100
  3. Richard Tesler 
    2 weeks ago
    $125
  4. Todd Schirmer 
    3 weeks ago
    $50
  5. jeffrey lieberman 
    3 weeks ago
    $75
  6. Leo Tesler 
    1 month ago
    $50
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    1 month ago
    $50
  8. Katherine Page 
    1 month ago
    $100
  9. Marc Silverman 
    1 month ago
    $250
  10. Lanha Hong 
    1 month ago
    $25
  11. Anonymous 
    2 months ago
    $200
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    2 months ago
    $100
  13. Jon Seiler 
    2 months ago
    $36
  14. Madeline & Jeffrey Diamond 
    2 months ago
    $150
  15. stephen ozen 
    2 months ago
    $180
  16. Gabriel Schwartz 
    2 months ago
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    2 months ago
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    2 months ago
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    3 months ago
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    3 months ago
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    3 months ago
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    3 months ago
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    3 months ago
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    4 months ago
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    4 months ago
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    4 months ago
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  28. Sara Polon 
    4 months ago
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  29. Mitchell Federer 
    4 months ago
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    4 months ago
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  31. Jeff Lieberman 
    4 months ago
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  32. Dan Levy 
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    4 months ago
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  36. Emily Margolis  
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  37. Michael Melzer 
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  38. Dana Harnett 
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    5 months ago
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  40. Mari Wilson 
    5 months ago
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  41. Sean Nelson 
    5 months ago
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  42. Susan and Mark Schmidek 
    6 months ago
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  43. Ernestine Starnes 
    6 months ago
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  44. Gilda Press 
    7 months ago
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    9 months ago
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    9 months ago
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  48. Rachel Levy 
    11 months ago
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  49. David Bookman 
    11 months ago
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  50. Leo Tesler 
    11 months ago
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  51. Kat Page 
    11 months ago
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  52. Danielle Kaplowitz 
    11 months ago
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  53. Veke Tesler Nate Schmelkin 
    11 months ago
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  54. Marc Tesler  
    11 months ago
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  55. Erik Weiner 
    11 months ago
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  56. Lori & Ken Bloomberg 
    12 months ago
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    12 months ago
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    12 months ago
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  60. Nancy Rabinowitz 
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    12 months ago
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  66. david roter 
    12 months ago
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  67. Kim Molstre 
    12 months ago
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  68. Gilda Press 
    12 months ago
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  69. sarina sanandaji 
    12 months ago
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  70. Julie Kornstein 
    12 months ago
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  71. Lerna Terpanjian 
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  72. Nina Mishkin 
    12 months ago
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  73. Lindsey Schwimmer 
    12 months ago
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  74. Ellen Bromley  
    12 months ago
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  75. Michael Melzer 
    1 year ago
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  76. nancy klein 
    1 year ago
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  77. Micah Coletti 
    1 year ago
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  78. Steven Tesler 
    1 year ago
    $500
  79. Gabriel Schwartz 
    1 year ago
    $500
  80. Patricia Goldman  
    1 year ago
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  81. Bruce Tenenbaum 
    1 year ago
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  82. Ernestine Starnes 
    1 year ago
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  83. Randie Specter 
    1 year ago
    $36
  84. Ryan Jeffers 
    1 year ago
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  85. Allison Kiessling 
    1 year ago
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  86. Susan Weinstein 
    1 year ago
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  87. Kathryn Richardson 
    1 year ago
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  88. Anne Orcutt 
    1 year ago
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  89. Shelly Orcutt 
    1 year ago
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  90. Donald Merten 
    1 year ago
    $1,000
  91. Zeke Tesler 
    1 year ago
    $10
  92. Vasilios Aloupis 
    1 year ago
    $50
  93. David Bookman 
    1 year ago
    $100
  94. JAY GUZOWSKI 
    1 year ago
    $100
  95. Anna Caffarelli 
    1 year ago
    $40
  96. Jay Herrick 
    1 year ago
    $200
  97. Ernestine A Starnes 
    1 year ago
    $250
  98. Zal Sarkari 
    1 year ago
    $100
  99. Sheila Carroll 
    1 year ago
    $30
  100. Slava Brin 
    1 year ago
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  101. Todd Schirmer 
    1 year ago
    $100
  102. Susan and Mark Schmidek 
    1 year ago
    $500
  103. Anne Orcutt  
    1 year ago
    $40
  104. Rich Tesler 
    1 year ago
    $40
  105. Rich Tesler 
    1 year ago
    $500
  106. Rich Tesler 
    1 year ago
    $130
  107. Teresa Cramer 
    1 year ago
    $20
  108. Jen Tribulski 
    1 year ago
    $40
  109. jessica rosenblatt 
    1 year ago
    $54
  110. David Bookman 
    1 year ago
    $100
  111. Jonathan Levy 
    1 year ago
    $100
  112. Arleen Schwartz  
    1 year ago
    $100
  113. Madeleine Diamond 
    1 year ago
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  114. The Tauriello, Press and Futterman Family and 5 Point Physical Therapy 
    1 year ago
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    1 year ago
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  117. Barry Winters 
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  118. Edrian Colina 
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  119. Jen Tribulski 
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  120. Chris Erwin 
    1 year ago
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  121. sally calavetta 
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    1 year ago
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  123. Andrew Fitzgerald 
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  124. Mark Friedlander 
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  126. Brad Helmink 
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  127. Jeff Lieberman 
    1 year ago
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  128. HOlly Anger 
    1 year ago
    $20
  129. susan peyser 
    1 year ago
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  130. Dana Harnett 
    1 year ago
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  131. Erica (Schwartz) Picheny 
    1 year ago
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  132. Robert Polsky 
    1 year ago
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  133. Mandy Wolfson 
    1 year ago
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  134. Michael Melzer 
    1 year ago
    $100
  135. Deb Leipzig 
    1 year ago
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  136. Emily Rittberg  
    1 year ago
    $250
  137. Jamie Garfinkel 
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  138. Megan Buell 
    1 year ago
    $500
  139. Catherine Clemmens 
    1 year ago
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  140. Jennifer Wink Hays 
    1 year ago
    $250
  141. Marsha Michel 
    1 year ago
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  142. Catherine Starnes  
    1 year ago
    $500
  143. Ernestine Starnes 
    1 year ago
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  144. Laura Lopez 
    1 year ago
    $100
  145. Jennifer Wilson 
    1 year ago
    $15
  146. Mary Ambelang 
    1 year ago
    $500
  147. Angie Gregory 
    1 year ago
    $250
  148. Robyn & Mike Neel 
    1 year ago
    $300
  149. Alexa Knight 
    1 year ago
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  150. Shira Weiss 
    1 year ago
    $150
  151. Kathryn Bell 
    1 year ago
    $250
  152. Ernest Klatt 
    1 year ago
    $500
  153. Giordana Segneri 
    1 year ago
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  154. Mel Rothstein 
    1 year ago
    $500
  155. Rebecca Lew 
    1 year ago
    $250
  156. Rebecca Lew 
    1 year ago
    $100
  157. Linda Zunker 
    1 year ago
    $100
  158. Catalina Mathers-Suter 
    1 year ago
    $25
  159. Brian Canino 
    1 year ago
    $20
  160. Johnny Wilson 
    1 year ago
    $5
  161. Philip Gilpin 
    2 years ago
    $100
  162. Victor Mueller Junior 
    2 years ago
    $100
  163. AJ Tesler 
    2 years ago
    $1,160.28
  164. Ernestine Starnes 
    2 years ago
    $1,000
  165. Edrian Colina 
    2 years ago
    $5

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