Magnolia’s Hope

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On December 17th 2013, our daughter Magnolia, was diagnosed with Rett Syndrome. She was 3 years old when she was diagnosed. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.


Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with basic daily activities.

We believe that a cure is very possible in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett.

Please. Join this fight.



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


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    1 week ago
    1,000
  2. Gilda Press 
    2 months ago
    200
  3. AIG Corporate Match 
    3 months ago
    4,000
  4. Jay Rittberg 
    3 months ago
    50
  5. Coastal Tool & Supply Corp.  
    4 months ago
    250
  6. Rachel Levy 
    5 months ago
    25
  7. David Bookman 
    5 months ago
    100
  8. Leo Tesler 
    5 months ago
    2,000
  9. Kat Page 
    5 months ago
    50
  10. Danielle Kaplowitz 
    5 months ago
    50
  11. Veke Tesler Nate Schmelkin 
    5 months ago
    171
  12. Marc Tesler  
    5 months ago
    100
  13. Erik Weiner 
    5 months ago
    25
  14. Lori & Ken Bloomberg 
    6 months ago
    20
  15. Christina Othonos 
    6 months ago
    20
  16. Max Strongin 
    6 months ago
    100
  17. James Kiernan 
    6 months ago
    50
  18. Nancy Rabinowitz 
    6 months ago
    50
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    6 months ago
    50
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    6 months ago
    250
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    6 months ago
    100
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    6 months ago
    50
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    6 months ago
    180
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    6 months ago
    100
  26. Gilda Press 
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    100
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    6 months ago
    40
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    6 months ago
    100
  30. Nina Mishkin 
    6 months ago
    100
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    100
  32. Ellen Bromley  
    6 months ago
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    6 months ago
    100
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    7 months ago
    100
  36. Steven Tesler 
    7 months ago
    500
  37. Gabriel Schwartz 
    7 months ago
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  38. Patricia Goldman  
    7 months ago
    100
  39. Bruce Tenenbaum 
    7 months ago
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  40. Ernestine Starnes 
    7 months ago
    1,000
  41. Randie Specter 
    7 months ago
    36
  42. Ryan Jeffers 
    7 months ago
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  43. Allison Kiessling 
    7 months ago
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  44. Susan Weinstein 
    7 months ago
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    7 months ago
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    7 months ago
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    7 months ago
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  48. Donald Merten 
    7 months ago
    1,000
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    7 months ago
    10
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    7 months ago
    50
  51. David Bookman 
    7 months ago
    100
  52. JAY GUZOWSKI 
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    100
  53. Anna Caffarelli 
    7 months ago
    40
  54. Jay Herrick 
    7 months ago
    200
  55. Ernestine A Starnes 
    7 months ago
    250
  56. Zal Sarkari 
    7 months ago
    100
  57. Sheila Carroll 
    7 months ago
    30
  58. Slava Brin 
    7 months ago
    100
  59. Todd Schirmer 
    7 months ago
    100
  60. Susan and Mark Schmidek 
    7 months ago
    500
  61. Anne Orcutt  
    7 months ago
    40
  62. Rich Tesler 
    7 months ago
    40
  63. Rich Tesler 
    7 months ago
    500
  64. Rich Tesler 
    7 months ago
    130
  65. Teresa Cramer 
    7 months ago
    20
  66. Jen Tribulski 
    8 months ago
    40
  67. jessica rosenblatt 
    8 months ago
    54
  68. David Bookman 
    8 months ago
    100
  69. Jonathan Levy 
    8 months ago
    100
  70. Arleen Schwartz  
    8 months ago
    100
  71. Madeleine Diamond 
    8 months ago
    100
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    100
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    100
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    100
  78. Chris Erwin 
    9 months ago
    250
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    9 months ago
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  80. Roslyn Minkoff 
    9 months ago
    50
  81. Andrew Fitzgerald 
    9 months ago
    100
  82. Mark Friedlander 
    9 months ago
    50
  83. Andreas Olavarria 
    9 months ago
    100
  84. Brad Helmink 
    9 months ago
    25
  85. Jeff Lieberman 
    9 months ago
    100
  86. HOlly Anger 
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    20
  87. susan peyser 
    9 months ago
    100
  88. Dana Harnett 
    9 months ago
    500
  89. Erica (Schwartz) Picheny 
    9 months ago
    100
  90. Robert Polsky 
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  91. Mandy Wolfson 
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  92. Michael Melzer 
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    100
  93. Deb Leipzig 
    9 months ago
    36
  94. Emily Rittberg  
    9 months ago
    250
  95. Jamie Garfinkel 
    9 months ago
    100
  96. Megan Buell 
    9 months ago
    500
  97. Catherine Clemmens 
    9 months ago
    50
  98. Jennifer Wink Hays 
    9 months ago
    250
  99. Marsha Michel 
    9 months ago
    100
  100. Catherine Starnes  
    9 months ago
    500
  101. Ernestine Starnes 
    9 months ago
    1,000
  102. Laura Lopez 
    9 months ago
    100
  103. Jennifer Wilson 
    9 months ago
    15
  104. Mary Ambelang 
    9 months ago
    500
  105. Angie Gregory 
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    250
  106. Robyn & Mike Neel 
    9 months ago
    300
  107. Alexa Knight 
    9 months ago
    100
  108. Shira Weiss 
    9 months ago
    150
  109. Kathryn Bell 
    9 months ago
    250
  110. Ernest Klatt 
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    500
  111. Giordana Segneri 
    10 months ago
    50
  112. Mel Rothstein 
    10 months ago
    500
  113. Rebecca Lew 
    10 months ago
    250
  114. Rebecca Lew 
    10 months ago
    100
  115. Linda Zunker 
    10 months ago
    100
  116. Catalina Mathers-Suter 
    12 months ago
    25
  117. Brian Canino 
    12 months ago
    20
  118. Johnny Wilson 
    12 months ago
    5
  119. Philip Gilpin 
    1 year ago
    100
  120. Victor Mueller Junior 
    1 year ago
    100
  121. AJ Tesler 
    1 year ago
    1,160.28
  122. Ernestine Starnes 
    1 year ago
    1,000
  123. Edrian Colina 
    1 year ago
    5

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