Lopez | Reverse Rett NYC 2017

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Imagine the symptoms of Autism, Cerebral Palsy, Epilepsy, Anxiety Disorders and Parkinson's all in one little girl......that is Rett Syndrome...... and the unfortunate reality for my 16 year old daughter. She is unable to speak or use her hands, has loss of motor control and circulatory and digestive disfunction. Yet everyday she has a huge smile on her face.


Please help us raise $$ for research in support of RSRT and The Tri-State Rett Syndrome Center at the Children's Hospital at Montefiore Medical Center. If you cannot attend our gala on November 13, 2017, please consider donating here. No amount is too small---every bit brings us closer to a cure!


For more information on the event and to purchase tickets, visit the event page here!


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (22)

  1. Howard Solomon 
    11 months ago
    $100
  2. Marilyn Sladowsky 
    11 months ago
    $18
  3. Randi Leeds  
    1 year ago
    $100
  4. Diane Howell 
    1 year ago
    $500
  5. Jami Colombino 
    1 year ago
    $50
  6. Dan Cabo 
    1 year ago
    $100
  7. Alison Luba 
    1 year ago
    $100
  8. Elizabeth Grieco-Lombardi 
    1 year ago
    $25
  9. Amy Buncher 
    1 year ago
    $100
  10. Kathryn Schroeder 
    1 year ago
    $50
  11. Lara Edelstein 
    1 year ago
    $36
  12. Juliana Regan 
    1 year ago
    $50
  13. Jennifer Faber 
    1 year ago
    $100
  14. Wendee Surgan 
    1 year ago
    $50
  15. Denise Tortorelli 
    1 year ago
    $50
  16. Heather Campbell Wood 
    1 year ago
    $25
  17. ACCOUNTING 1 
    1 year ago
    $18
  18. Nancy Barasch  
    1 year ago
    $100
  19. Randy Popowitz 
    1 year ago
    $50
  20. Jodi Clarin 
    1 year ago
    $18
  21. Gina Penna 
    1 year ago
    $20
  22. Bessie Savery 
    1 year ago
    $250

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