Lopez | Reverse Rett NYC 2017

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Imagine the symptoms of Autism, Cerebral Palsy, Epilepsy, Anxiety Disorders and Parkinson's all in one little girl......that is Rett Syndrome...... and the unfortunate reality for my 16 year old daughter. She is unable to speak or use her hands, has loss of motor control and circulatory and digestive disfunction. Yet everyday she has a huge smile on her face.


Please help us raise $$ for research in support of RSRT and The Tri-State Rett Syndrome Center at the Children's Hospital at Montefiore Medical Center. If you cannot attend our gala on November 13, 2017, please consider donating here. No amount is too small---every bit brings us closer to a cure!


For more information on the event and to purchase tickets, visit the event page here!


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (22)

  1. Howard Solomon 
    9 months ago
    $100
  2. Marilyn Sladowsky 
    10 months ago
    $18
  3. Randi Leeds  
    10 months ago
    $100
  4. Diane Howell 
    10 months ago
    $500
  5. Jami Colombino 
    11 months ago
    $50
  6. Dan Cabo 
    11 months ago
    $100
  7. Alison Luba 
    11 months ago
    $100
  8. Elizabeth Grieco-Lombardi 
    11 months ago
    $25
  9. Amy Buncher 
    11 months ago
    $100
  10. Kathryn Schroeder 
    11 months ago
    $50
  11. Lara Edelstein 
    11 months ago
    $36
  12. Juliana Regan 
    11 months ago
    $50
  13. Jennifer Faber 
    11 months ago
    $100
  14. Wendee Surgan 
    11 months ago
    $50
  15. Denise Tortorelli 
    11 months ago
    $50
  16. Heather Campbell Wood 
    11 months ago
    $25
  17. ACCOUNTING 1 
    11 months ago
    $18
  18. Nancy Barasch  
    11 months ago
    $100
  19. Randy Popowitz 
    11 months ago
    $50
  20. Jodi Clarin 
    12 months ago
    $18
  21. Gina Penna 
    12 months ago
    $20
  22. Bessie Savery 
    12 months ago
    $250

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