Let’s Make Rett History!

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As many of you know finding a cure for Rett Syndrome is something very near and dear to my heart.  11 years ago my best friend’s daughter was diagnosed with Rett Syndrome (something I had never heard of until that day).  Today she and more than 350,000 girls and women are afflicted around the world with the unforgiving symptoms of Rett – imagine Autism, Cerebral Palsy, Parkinson’s, Epilepsy, Anxiety Disorder, and the inability to speak all in one little girlUntil recently, Rett was assumed incurable but that assumption is NOW OVER.

Please help me in reaching my goal of raising $350,000 towards finding a cure for all of those inspiring, courageous, and trapped little girls out there.  No donation amount or effort is too small so please SHARE and CLICK to donate so we can MAKE HISTORY TOGETHER!!

Colleen Palmer

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (3)

  1. Julie & Rebecca Rakowitz 
    2 weeks ago
  2. Eileen McMahon  
    3 weeks ago
  3. Alison Margo 
    3 weeks ago

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